Gyny problems: I have recently had a pessary... - CLL Support

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Gyny problems

Magenta51 profile image
6 Replies

I have recently had a pessary inserted for prolapse. I have incontinence due to a car accident several years ago when I was on my back for 2 months with a catheter. When I came out of hospital I was incontinent. Due to covid etc nothing was done, but now am using a valve to retrain my bladder, with come success. Consultant says they have to consult with haematology to see if I can have surgery to deal with the prolapse and lose the catheter. My CLL blood tests have been favourable, and I now have monthly blood tests instead of weekly.

Anybody else had gyny problems as well as CLL?

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Magenta51 profile image
Magenta51
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6 Replies
CycleWonder profile image
CycleWonder

I’ve had bladder issues but may or may not be related to CLL or Covid. More likely due to what seemed like 50 bladder infections. I do OK unless I am really, really tired.

I don’t have the prolapse.

What are your platelets at?

Magenta51 profile image
Magenta51 in reply toCycleWonder

Blood test on Monday, have't been taking a lot of notice of platelets, they say everything is fine, have been coping with gyny probelms and feet problems

Magenta51 profile image
Magenta51 in reply toCycleWonder

125

CycleWonder profile image
CycleWonder

I think the real issue here may be whether the surgeon and other key members of the surgical team feel comfortable operating with your platelets at 125. But I believe the cutoff is 50, so you should be ok.

I had my hip replaced shortly after being diagnosed and had no issues.

Magenta51 profile image
Magenta51

That's encouraging, thanks. Had a gyny appointment yesterday, suggested using a valve to retrain bladder with a target of 6 months to remove catheter. Wish me luck!

MsChief profile image
MsChief

I have a cystocele - saw 2 women urologists - given options - this is a big surgery with recovery - I am 80 - 2nd urologist said with cll, your age and the degree of surgery, I recommend a pessary that should be changed every 3 months. So that’s what I did - working well - any major surgery with comorbidities needs to be carefully evaluated - often the fix can be worse than the problem. Remember - any major surgery is risky! Best of luck.MsChief

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