Evusheld Shots: : Evusheld shots: are Oncology... - CLL Support

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Evusheld Shots:

Tapps profile image
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Evusheld shots: are Oncology Doctors recommending this newer “two shot” to CLL patients, especially those on Ibrutinib?

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Tapps
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12 Replies
JigFettler profile image
JigFettlerVolunteer

US and / or UK / other countries?

My dream Haem Team (UK) are not making it available to me.

Jig

DanBro1 profile image
DanBro1

My oncologist is recommending that I receive Evusheld...... I've had FOUR Covid vaccinations and no antibodies have been detected!

cllboy profile image
cllboy in reply to DanBro1

Ditto. Although I don't know when I will be able to get the shots due to limited supply.

Tapps profile image
Tapps in reply to DanBro1

Thank you for your reply. Same here, Phizer, four shots. I have left messages at two of my Doctors offices, both of the people that answered the phone, had not heard of Evusheld!??!!I have a Web Site that shows each location in the States that has Evusheld available, and how many, also says I must have a prescription.

Be well friend.

KatieBlue profile image
KatieBlue

In the US, the allotments are smaller than the patients who need them, so a lot depends on where you are and how they are rationing the supply.

B-cell blood cancers being treated with BTK inhibitors are prioritized for evusheld by the NIH, but the health system affiliated with my oncol is reserving their allotted doses for transplant recipients.

If I hadn’t known about evusheld, I wouldn’t have known to ask and it would not have been mentioned or “recommended” by the oncol from a perspective of scarcity.

I did find a smaller clinic that had some, managed to actually talk to some very helpful staff there and they were willing to set me up for treatment provided I had a doctor who would order evusheld for me. My oncol put through the orders.

Back to scarcity— the FDA recently came out with a revised initial dose of 300mg of tixagevimab and 300 mg of cilgavimab, instead of the originally authorized dose of 250 mg each. This essentially halved the amount of total available doses when there already aren’t enough.

Even at the original dosage, it was unclear whether there would be enough available for the 6 month follow up dose (which the FDA has left at 150 mg ea at this point).

wmay13241 profile image
wmay13241

My wife's oncologist told her Evusheld does not work well for the Omnicron variant. Instead he recommended a 4th booster.

Splashes profile image
Splashes

My oncologist offered evusheld to me. I've had 4 pfizer vaccines and yesterday received my 3rd and 4th evusheld. Today I will mask up and enter my 1st store in 2 years. 73 years old, high risk cll, severe covid destroyed 40 % of my lungs. Life is short. My wonderful doctors have me as protected as possible at this moment. I will be careful, but will start living again. Ask your doctor about evusheld availability to you.

Unglorious profile image
Unglorious in reply to Splashes

I am so happy for you, on the other hand I am so jealous, Evusheld is not available yet here in Canada, I too have not gone into an establishment for the past 2 years, how I long to be able to go into a store, yes, with all the precautions but with a little more confidence whicb the the rest of the world has from the benefit of the vaccines.

hhk50 profile image
hhk50

My doctor is recommending it. However, due to the short supply, I am waiting for it to become available in my cancer center. All patients are in lottery mode - when a shipment arrives they assign the Evusheld randomly to the patient base. I hope that my number comes up soon.

SeymourB profile image
SeymourB

My new hemo/onco was totally ignorant of Evusheld, Sotrovimab, Bebtelovimab, Paxlovid, and Molnupiravir. But got me the initial dose (300mg, 150mg for each MAB) of Evusheld. It took a week, and they did the shots at the cancer infusion center.

=seymour=

Patc890USA profile image
Patc890USA

I've had 4 Pfizer vaccines and one booster. After the 4th vaccine my antibody results said I was at 600. Then had a booster but didn't get checked after that. I got the Evusheld shots on Feb. 10th and got the second set of Evusheld yesterday. I had an antibody test last Sat and I was at >2500. My oncologist and doctors at NIH where I got the shots recommended them.

CLLBGone profile image
CLLBGone

I had 3 Modernas, an Evusheld is planned and scheduled in a few weeks

I had the covida loca back in December 2021 and rcvd Rgeneron. I was done with feeling sick and felt normal after four (or was it three) days after the Regeneron infusion.

In Feb 2022, I started feeling sick, waited about two weeks and tested positive on Feb 25th.

Covit Round 2 .....

It was pretty bad this time: excessive sweating (I had to change my clothes and bed sheets) unbelievable chills, zero energy, cough, feeling at times like my lungs were compromised, low grade fever on and off, no sense of taste and terrible taste in my mouth when I did manage to eat ... generally feeling like hammered s****.

My wonderful Hematologist was able to get me a Paxlovid RX the day I tested positive, Feb 25th, and a pharmacy close to my house had Paxlovid in stock.

It's six pills a day, 3 morning and 3 night for five days.

I now feel back to 100% . Dznt seem like I was sick at all.

My Hematologist has me scheduled, March 22, for Evusheld injections. 300 MG is the current suggested dose consisting of two shots. I'm thinking of going for the "assassin " two shots into one cheek.

The doctor is hopeful I'll get some durable protection from the Evusheld; but he admits its a bit of a crap shootbut with the odds somewhat in my favor . . . . . I'll take it.

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