New to an on line community

[Geministars]

Never been evolved in an on line community before and not sure how to get the best out of it

[Panz]

Our community is one of caring and support and we are here to talk about things and support each other as we are on this journey together. This is a great place to come when you have questions as we as a group have seen and been thru a lot.

This is not a death sentence as it once was. It is very treatable and some of us have had issues for many years. The main thing is we are here to listen and try to offer support.

I personally am in my 35 year and I am doing super….not always fun or easy but very doable. Much like a rollercoaster ride.

Another nice feature is you can chat any time of the day. We are blessed with some very special leaders. You have definitely come to the right place!!

Hang in there! All the very very best to you.

Panz 🙏💕🙂👍🎄🎅🏻🤶🏻

[Walkingtall62]

Hi, welcome to the club nobody wanted to join. I was much the same as you with my first post, so I copied someone else’s. I was amazed to see nice genuine replies. No question is silly. You will find people on here who have had CLL/SLL for a long time, or just a short time. Some are very knowledgeable. All are sympathetic. It’s best to mark your questions only being shown to this community. You will see how to do this at the bottom of each post. Sorry I don’t have the correct words!. Someone else will. Feel free to look at anybody’s posts and any replies. You will soon feel very comfortable. Take care

[AussieNeil Administrator]

Welcome Gemini stars,

In addition to Panz 's welcome, I hope you find these pinned posts helpful.

12 TIPS to get more out of this CLL Support forum - and help others do the same.

healthunlocked.com/cllsuppo...

Navigating HealthUnlocked

healthunlocked.com/cllsuppo...

Neil

[lankisterguy Volunteer]

Hi Geministars,

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Welcome to the group none of us wanted to join.

We see questions like your nearly every week, so you may want to use the box on this page labeled: "Related Posts

*New to the community! healthunlocked.com/cllsuppo...

*New to this community... healthunlocked.com/cllsuppo......

*New to community looking for answers healthunlocked.com/cllsuppo...

*New to the CLL community. healthunlocked.com/cllsuppo....

*New to community, 1 year with CLL healthunlocked.com/cllsuppo...

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And many of those will direct you to our: "Pinned Posts

*HU CLL Support Community Guidelines along with further recom... healthunlocked.com/cllsuppo...

*Newly diagnosed with Chronic Lymphocytic Leukemia or Small L... healthunlocked.com/cllsuppo...

*30 tips for living well with CLL (an update of "Coping Strat... healthunlocked.com/cllsuppo...

*12 TIPS to get more out of this CLL Support forum - and help... healthunlocked.com/cllsuppo...

*VACCINATIONS FOR PEOPLE WITH CHRONIC LYMPHOCYTIC LEUKEMIA (C... healthunlocked.com/cllsuppo...

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Len

[scryer99]

Been here a year, here’s what I have picked up:

1) It’s a very supportive community - ask and ye shall receive

2) some of the basics are covered in standing posts like those posted above. Also check out cllsociety.org which has a lot of good resources for new CLLers

3) if you have a question about something, searching this community’s past posts is often helpful. Be careful about older posts, though, therapy has advanced rapidly the last few years.

4) Pay it forward. I got great advice on difficult issues early, so I try to repay those efforts here.

5) Some things help more than others. Supportive words and sharing your relevant experience is helpful. Evidence-backed discussion of treatment options and effects is helpful. Random potential curatives discussed on the general internet not backed by study evidence are interesting and well-meant, but not always helpful.

6) Respect anonymity. Many of us have social or employment situations where searchable records of our conversations are a concern. Individual posts can be locked to help with this.

7) Be kind.

Welcome aboard. Newcomers are treated with respect and care here; you’ll be fine.

One last thing: fill out your profile, and provide a few counts/numbers if you are posting about your results with questions. It will help our board medical professionals and others offer advice that is relevant to you.

[Scotrn]

Getting a diagnosis of CLL or SLL is frightening. I found this site early on and have gained knowledge and support, and this has helped to alleviate some of my fears. I don't post much but I do read the posts almost everyday. I feel less alone as It also gives me a connection to a community. I hope the site helps you as much as it has me.

[sidesy]

Welcome .....I think what's best in this community is we are all fighting and pushing in the same direction. There are 1000's of people who will understand how you feel ,what youre going through....medical terms, treatments and from a user perspective. I wish you well in your journey 🙏

Gary 👏