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CLL Support

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Allopurinol

Hi Tedrog, I also started allopurinol when I started my Acalabrutinib one and a ...

Acalabrutinib side effects

I posted recently that I had been diagnosed with gout in big toe and so came off...
Eucalyptus22 profile image

On a break from Ibrutinib

I stopped taking Ibrutinib in February 2024. After five and a half years the sid...
Beattiem-UK profile image
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A really good basic CLL 101 test and treatment video

This may be the simplest and best explanation of the basics I've watched. Clear...
BigfootT profile image

IGHV mutated / TP53 unmutated

Just got further test results back and heard I have mutated IGHV and unmutated T...

Zanubrutinib and kidney stones

I have been on Zanubrutinib for four years and my blood results are normal. In t...
CorbetCat profile image

ABBV-101 update

Hi, I wanted to let you know that I'm faring well with the blood test results o...

Not allowed to have the RSV Vaccine

Yesterday I emailed my GP (Archers Practice in Eastleigh, Hampshire, UK) to requ...
Maranman profile image

Relieved!

just had CT scan to access pain and discomfort. All good! Also, lymph nodes decr...
Nana1961 profile image

Chemo-Free Triplet Yields 68% Response Rate in Richter Transformation

Original article citation: Tedeschi, A., Frustaci, A. M., Condoluci, A., Cosci...

persistent expectoration + venetoclax

Dear all, has anyone been taking venetoclax and gotten a kind of persistent expe...
BMFCDRW profile image

cataract surgery while on Zanubrutinib

I am having cataract surgery on my right eye in about a month. I will discuss a...
Bethsaida profile image

colonoscopy

The operation isn’t painful or difficult so don’t despair. I think with all the ...

Rituximab and high blood pressure

Can Rituximab cause your blood pressure to go high? At the end of a Rituximab tr...
Redkatt profile image

Consistenly low platelets and neutrophils

As this website is a wonderful source of support and knowledge for those with L...
Penicillen profile image

Appetite, weight, energy....

So, I am 13q deletion, mutated, watch and wait for about 7 years. Latest white c...
battanim profile image

How do they decide which treatment?

Hello. Back on August 21 at my bi-annual hematology checkup, my hematologist sai...

CLL treatment

Hi all I was diagnosed with CLL in 2021 & was on watch& wait until jan this yea...

Is there anyone with experience in bladder cancer treatment?

I am 74 and in CLL remission after a 24-month course of Venetoclax plus Rituxima...
RamsesII profile image

Continued Journey

First, thank you to all of people that send me encouraging comments. I understan...
FiArt12X profile image

Venclexa side effects

I’m on gazyva and 100 mg venclexta. I’ve had no side effects at al. But the p...
elm1 profile image

Two weeks, no change in WBC

This is just an update. Yesterday, Friday, I had my blood tested again and there...
Tajie profile image

Gilly

I currently have CLL & was diagnosed in December 2022. I’m in good health & have...

Abs Lymphs going up after shingles

We saw the doctor for the first time after having shingles. Before shingles h...
Pinhead1 profile image

I am still waiting for my CT scan results.

I am still awaiting my CT scan results which were done 4 weeks ago now. Hoping n...
Curry777 profile image

Weight loss after Covid

Hi everyone I had covid in June also with a relapse after taking Paxlovid, and ...
Kiwi77 profile image

still positive for covid

was negative after 8 days for 2 days then have what I am pretty sure is a covid ...
ap64 profile image

Real-world treatment switching and sequencing to next line of therapy of zanubrutinib, acalabrutinib, and ibrutinib in CLL/SLL

Acalabrutinib (Calquence) and zanubrutinib (Brukinsa) have been found to be much...
AussieNeil profile image
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NIH visit and Richters discussion

As some of you have posted about previously, today I also entered the NIH natura...
BigfootT profile image

efudex ( fluorouracil 5)

My dermatologist has suggested and prescribed the above medications for my face ...
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