Is there anyone with experience in bladder cancer treatment?

[RamsesII]

I am 74 and in CLL remission after a 24-month course of Venetoclax plus Rituximab completed in September 2023.

In July 2023 I was diagnosed with low grade, non-muscle invasive (PTa) bladder cancer and had a 12-month treatment with Epirubicin per respective protocol. Although biopsies at 3-month intervals during the 12-nonth treatment came out clean, the last one done two weeks ago showed recurrence of low grade, non-muscle invasive (PTa) bladder cancer. It seems that the most effective treatment would now be with BCG, which however is not recommended for people with CLL. I am due to see my hematologist this Wednesday to discuss the situation.

Meanwhile I wonder whether any of you has faced this dilemma and his/her experience or advice in this respect.

Many thanks!

Ramses

[lankisterguy Volunteer]

Hi RamsesII,

There have been several previous postings that mention Bladder Cancer- see:

healthunlocked.com/cllsuppo...

Also on that page and this page, look for the box labeled

"Related Posts

*Can CLL treatment or CLL cause bladder cancer? healthunlocked.com/cllsuppo...

*Bladder cancer and Cll healthunlocked.com/cllsuppo...

*CLL and bladder cancer healthunlocked.com/cllsuppo...

*CLL in bladder healthunlocked.com/cllsuppo...

*CLL Infiltration of Bladder healthunlocked.com/cllsuppo...

+

Len

[cmh55]

Hey Ramses,

I had high grade noninvasive papillary urothelialoma in 2022. Following transurethral resection, after healing, I received weekly BCG instillations for 6 weeks. After a clear cystoscopy, I had monthly Gemcitabine for 6 months. I’m now on 6 month cystoscopy surveillance. I was diagnosed with CLL in 2014 but have been watch and wait since.

[cmh55 in reply to cmh55]

By the way, my urologist stated that BCG elicits a T cell response so CLL should not diminish effectiveness.

[Spark_Plug]

Bacillus Calmette-Guerin (BCG) Treatment my.clevelandclinic.org/heal...

Information about what BCG means.