Allopurinol: Hi Tedrog, I also started... - CLL Support

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Allopurinol

Islandjewel23 profile image
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Hi Tedrog, I also started allopurinol when I started my Acalabrutinib one and a half years ago. It took almost a year for my lymphocytes to go down, so I remained on allopurinol the whole time until they were within normal limits. The thinking was that I should stay on it as long as my lymph’s were dropping to protect my kidneys. I tolerated the allopurinol very well and wasn’t given any specific instructions, but I always hydrate well anyway. I hope you do as well! Take care and best of luck to you. Julie

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Islandjewel23
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AussieNeil profile image
AussieNeilPartnerAdministrator

Julie, it looks like you meant to reply directly to tedrog 's post healthunlocked.com/cllsuppo...

Unfortunately, some people can't tolerate allopurinol :(

Neil

Islandjewel23 profile image
Islandjewel23 in reply toAussieNeil

Hi Neil, yes it is strange; I was answering his question but in the same feed. I got an email from Health Unlocked stating that since I’d posted about Allopurinol before I might be able to give him support in that area. I just replied in that same email. Confusing. Thanks for the heads up.

tedrog profile image
tedrog in reply toIslandjewel23

I see you Julie, thank you. Best, Ted

JerrysGirl3 profile image
JerrysGirl3

yes. I take the allopurinol with my venetoclax I believe to protect my kidneys! Great drug!!

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