Posts - CLL Support | HealthUnlocked

CLL Support

23,137 members • 39,744 posts

All posts for December 2022

Travel Insurance

Has anyone been able to get travel insurance whilst taking Ibrutinib & Venetoclax ? Is it classed as chemotherapy? Thanks

Has anyone been able to get travel insurance whilst taking Ibrutinib & Venetocla...

SupportiveMum

•2 years ago

4 Replies

Treatment of Richter's syndrome - ASH 2022 Education Program

This year's American Society of Hematology (ASH) annual conference is now underway and the ASH Education Program, Volume 2022, Issue 1 booklet that was...

This year's American Society of Hematology (ASH) annual conference is now underw...

CLLerinOz

Administrator•2 years ago

4 Replies

Rash and drug Dupixent?

I have horrible Red full body rash. have tried several RX and OTC products. has anyone tried ( Dupixent )

I have horrible Red full body rash. have tried several RX and OTC products. ha...

Tapps

•2 years ago

5 Replies

Want to take advantage of all our features? Just log in!

Paranoid: Would It Be Misguided To "Request" 2nd-Line Treatment?

Hi everyone, As you might know, I (11q, SLL) started V+O three years ago, completed successfully after a year, uMRD in the blood. Bliss for 18 months, then...

Hi everyone, As you might know, I (11q, SLL) started V+O three years ago, compl...

DRM18

•2 years ago

54 Replies

Venclexta users question.

So question to people on Venclexta. Do you ever feel a weird sensation in your lymphnodes? I swear everytime I ramp up, I can feel it in my lymphnodes and...

So question to people on Venclexta. Do you ever feel a weird sensation in your l...

Gradyboy

•2 years ago

33 Replies

Richters maybe

Well, the dreaded word Richters has come up. Next week going in for a lymph node biopsy and full body Pet/CT scan. Send positive thoughts my way please.

Well, the dreaded word Richters has come up. Next week going in for a lymph node...

Alex830

•2 years ago

38 Replies

Trouble with exhaustion and putting on weight

Hi All, On W&W for CLL for four years. Last CLL Monitoring Bloods and Physical ok 4 weeks ago. I had bad reactions to 4th and 5th vaccine, high pulse rate,...

Hi All, On W&W for CLL for four years. Last CLL Monitoring Bloods and Physical ...

Vindicatrix

•2 years ago

5 Replies

CLL Stage 0... Pulsing Rapamycin & Metformin & fasting

Hello, i was wondering if anyone had heard of this approach for CLL stage 0 (wait & see) there is multiple study showing that it might be beneficial to combine...

Hello, i was wondering if anyone had heard of this approach for CLL stage 0 (wai...

spare75

•2 years ago

30 Replies

Blood Test 101: Understanding Red Blood Cell Development - Patient Power - Recognizing Skin Lymphoma Signs and Symptoms

Patient Power has two interesting articles in today's newsletter https://www.patientpower.info/blood-test-101-understanding-red-cell-development...

Patient Power has two interesting articles in today's newsletter https://www.p...

lankisterguy

Volunteer•2 years ago

2 Replies

2nd evusheld

I had my first evusheld infusion on July 7, 2022. I asked my CLL specialist about getting another infusion this month after the 6 month wait. Recently I...

I had my first evusheld infusion on July 7, 2022. I asked my CLL specialist a...

Claybuster

•2 years ago

22 Replies

Off patent drug possibility for Covid. Ursodeoxycholic acid (UDCA), an approved liver disease drug, reduces ACE2 levels on lab-grown cells

There seems to be a deal of excitement in certain media areas about research involving UK, European and US researchers on a covid treatment drug. The one in...

There seems to be a deal of excitement in certain media areas about research inv...

Eucalyptus22

•2 years ago

1 Reply

CLL Advocates Network webinar today 7th Dec at 5pm GMT

Don't forget to register for today's CLL webinar. "How are advances in Bruton’s tyrosine kinase targeted therapies continuing to change how chronic...

Don't forget to register for today's CLL webinar. "How are advances in Bruton’s...

Irishcll

•2 years ago

Be the first to reply

COVID update: Who remains at higher risk? by LLS.org

COVID update: Who remains at higher risk? https://www.lls.org/covid-19-resources Almost exactly three years ago on December 12, 2019, we received the first...

COVID update: Who remains at higher risk? https://www.lls.org/covid-19-resourc...

lankisterguy

Volunteer•2 years ago

5 Replies

Scientists finally know why people get more colds and flu in winter

Scientists finally know why people get more colds and flu in winter By Sandee LaMotte, CNN Published 6:40 AM EST, Tue December 6, 2022...

Scientists finally know why people get more colds and flu in winter By Sandee L...

lankisterguy

Volunteer•2 years ago

24 Replies

Topical treatment for multiple Squamous Cell Carcinomas

It is clear from the previous posts that quite a few of the CLL patients here developed multiple Squamous Cell Carcinomas, often requiring several surgeries...

It is clear from the previous posts that quite a few of the CLL patients here de...

MikeOr

•2 years ago

7 Replies

Autoimmune hemolytic anemia (AIHA), Immune thrombocytopenia (ITP) and other autoimmune complications and extranodal involvement in CLL

"Autoimmune conditions are common in CLL and are often managed in a distinct manner from primary autoimmune disease. Leukemic involvement of other organs is...

"Autoimmune conditions are common in CLL and are often managed in a distinct man...

CLLerinOz

Administrator•2 years ago

7 Replies

Loxo 305

Not sure how long the Loxo trial has been running - my 3 years are up next May. Is there anyone who has actually finished their 3 years already? If so, are...

Not sure how long the Loxo trial has been running - my 3 years are up next May. ...

UKfulloflife

•2 years ago

11 Replies

CLL and complications

hi all its been an age since i was on this site. Recap, I was found to have Cll in 2012. Its been a tough road but for myself and due to a weak immune system I...

hi all its been an age since i was on this site. Recap, I was found to have Cll ...

Tonnross

•2 years ago

21 Replies

Treatment Options

I want to investigate treatment options. Is that a smart thing to do now or wait until my Dr suggests something then look it up? He hasn’t said I will start...

I want to investigate treatment options. Is that a smart thing to do now or wait...

Wendy328

•2 years ago

29 Replies

NJ Has More Soil Fungi Causing Lung Infections Than Previously Thought, doctors may have missed signs of fungal lung infection in patients.

NJ Has More Soil Fungi Causing Lung Infections Than Previously Thought...

lankisterguy

Volunteer•2 years ago

4 Replies

Fully Funded Ibrutinib is finally coming to New Zealand!

But not as first line therapy alas, though some haematologists may perhaps work around these conditions. Venetoclax + Rituximab is already fully funded here...

But not as first line therapy alas, though some haematologists may perhaps work ...

morepork

•2 years ago

3 Replies

Weight Loss with VenClexta

Morning family, I am a 24 year CLL patient. I have been on 140mg of Ibrutinib daily for the last 8 years. 8 months ago my Dr. added VenClexta to my regimen...

Morning family, I am a 24 year CLL patient. I have been on 140mg of Ibrutinib ...

999990Bruno

•2 years ago

13 Replies

Lymphatic Drainage by Vibration Platforms

The attached article reports apoptosis of cancer cells by low frequency vibration (not CLL & experiment was in-vitro) Vibration platforms claim multiple...

The attached article reports apoptosis of cancer cells by low frequency vibrati...

nuji

•2 years ago

19 Replies

Celebrating the end of treatment with a case of Covid!

On Monday I took my last Venetoclax from a year of treatment. Woo hoo! About a week before, I noticed that my lymph nodes in my underarms felt swollen and...

On Monday I took my last Venetoclax from a year of treatment. Woo hoo! About...

Winegrape

•2 years ago

18 Replies

UKHSA update on scarlet fever and invasive Group A streptococcal infection

https://www.gov.uk/government/news/ukhsa-update-on-scarlet-fever-and-invasive-group-a-strep Extract: "Scarlet fever is caused by bacteria called group A...

https://www.gov.uk/government/news/ukhsa-update-on-scarlet-fever-and-invasive-gr...

bennevisplace

•2 years ago

6 Replies

Starting treatment Wednesday

Hello everyone, has anyone had obinutzumab and venetoclax, if anyone could share there experiences it would be much appreciated.... 👍

Hello everyone, has anyone had obinutzumab and venetoclax, if anyone could share...

mfc86

•2 years ago

7 Replies

Venetoclax and coughing (a lot)

Stop reading now if you are a bit sensitive…. Since I started Venetoclax (in July) I have coughed and coughed up as well as had sinuses absolutely full of...

Stop reading now if you are a bit sensitive…. Since I started Venetoclax (in Jul...

carolly

•2 years ago

8 Replies

Running with CLL

Hello, I wanted to share this journey with you because I ran competitively for 30 years as a worldclass marathoner. I am 64 now and retired 7 years ago,...

Hello, I wanted to share this journey with you because I ran competitively for 3...

elitemarathoner

•2 years ago

56 Replies

Chronic lymphocytic leukemia treatment algorithm 2022

This 29 November 2022 review article published in the Blood Cancer Journal presents an up-to-date treatment algorithm for CLL....

This 29 November 2022 review article published in the Blood Cancer Journal prese...

CLLerinOz

Administrator•2 years ago

17 Replies

First day I am feeling well after, Calquence

I have been on Calquence for 54 days. This has been a journey, for me. I am happy I took a leave from work for three months. I had several side effects,...

I have been on Calquence for 54 days. This has been a journey, for me. I am hap...

helenolton

•2 years ago

7 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for December 2022

Travel Insurance

Treatment of Richter's syndrome - ASH 2022 Education Program

Rash and drug Dupixent?

Paranoid: Would It Be Misguided To "Request" 2nd-Line Treatment?

Venclexta users question.

Richters maybe

Trouble with exhaustion and putting on weight

CLL Stage 0... Pulsing Rapamycin & Metformin & fasting

Blood Test 101: Understanding Red Blood Cell Development - Patient Power - Recognizing Skin Lymphoma Signs and Symptoms

2nd evusheld

Off patent drug possibility for Covid. Ursodeoxycholic acid (UDCA), an approved liver disease drug, reduces ACE2 levels on lab-grown cells

CLL Advocates Network webinar today 7th Dec at 5pm GMT

COVID update: Who remains at higher risk? by LLS.org

Scientists finally know why people get more colds and flu in winter

Topical treatment for multiple Squamous Cell Carcinomas

Autoimmune hemolytic anemia (AIHA), Immune thrombocytopenia (ITP) and other autoimmune complications and extranodal involvement in CLL

Loxo 305

CLL and complications

Treatment Options

NJ Has More Soil Fungi Causing Lung Infections Than Previously Thought, doctors may have missed signs of fungal lung infection in patients.

Fully Funded Ibrutinib is finally coming to New Zealand!

Weight Loss with VenClexta

Lymphatic Drainage by Vibration Platforms

Celebrating the end of treatment with a case of Covid!

UKHSA update on scarlet fever and invasive Group A streptococcal infection

Starting treatment Wednesday

Venetoclax and coughing (a lot)

Running with CLL

Chronic lymphocytic leukemia treatment algorithm 2022

First day I am feeling well after, Calquence

Search posts

Pinned Posts

Latest poll

Part 2 of How well do you know HealthUnlocked's features? Rate yourself on this multichoice poll. Answers later or you can check Help!

Topics

Archive