Posts - CLL Support | HealthUnlocked

CLL Support

23,137 members • 39,744 posts

All posts for December 2022

Imbruvica and other cancers

I've been on Imbruvica for almost three years, my blood numbers went to normal within a few months, the side effects were tolerable, the main thing was that I...

I've been on Imbruvica for almost three years, my blood numbers went to normal w...

taffy2020

•2 years ago

5 Replies

Intermittent Fasting Could Put Type 2 Diabetes Patients into Remission

The prevention or management of type 2 diabetes by following a calorie-restricted diet is not a new idea. There are now dozens of doctors' Youtube...

The prevention or management of type 2 diabetes by following a calorie-restricte...

bennevisplace

•2 years ago

19 Replies

Finally Covid Antibiodies

Good morning I finally made some Covid antibodies after a bout with Covid. Not many, 1353, however, it is something. Not sure how long they will last.

Good morning I finally made some Covid antibodies after a bout with Covid. Not ...

country76

•2 years ago

9 Replies

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Prolonged medication holiday

Reposting, feel previous post was hijacked a bit. Wondering if anyone has been off BTKi treatment for long periods of time?Was on ibrutinib followed by...

Reposting, feel previous post was hijacked a bit. Wondering if anyone has been o...

Davidcara

•2 years ago

31 Replies

Delivery of mRNA therapies: Moderna's founder Bob Langer discusses past, present, and future

"mRNA is expected to become one of the major pillars of drug development. With an increasing number of concepts entering clinical trials, the first approval...

"mRNA is expected to become one of the major pillars of drug development. With a...

bennevisplace

•2 years ago

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Imbrutnib

I have a bottle of imbrutnib that I paid for and I can't return it to the pharmacy that I got it from to get my money back because they said they have no...

I have a bottle of imbrutnib that I paid for and I can't return it to the pharm...

Turntwo

•2 years ago

2 Replies

Zanubrutinib PFS, ORR Is Superior to Ibrutinib for Relapsed/Refractory CLL/SLL

Zanubrutinib PFS (Progression Free Survival) , ORR (Overall Response Rate) Is Superior to Ibrutinib for Relapsed/Refractory CLL/SLL Jennifer R. Brown, MD,...

Zanubrutinib PFS (Progression Free Survival) , ORR (Overall Response Rate) Is S...

lankisterguy

Volunteer•2 years ago

16 Replies

2nd CLL treatment

Has anyone received the combine treatments Acala & Brutunib? or a combine treatments: Retinuzomab & Venetoclax? I am in Ontario Canada

Has anyone received the combine treatments Acala & Brutunib? or a combine treat...

Champlain

•2 years ago

8 Replies

Husband on O+V, month 5, WBC Morphology abnormal

Just wondering if we should be expecting WBC Morphology to become "normal" once the O+V treatment is complete. I'm not sure what UMRD means concerning these...

Just wondering if we should be expecting WBC Morphology to become "normal" once ...

lisakc1

•2 years ago

14 Replies

Multiple infections could make us much sicker – strep A, RSV and flu are a dangerous mix

https://www.theguardian.com/commentisfree/2022/dec/12/infections-strep-a-rsv-flu-pandemic-diseases Daniela Ferreira Mon 12 Dec 2022 04.00 EST The pandemic...

https://www.theguardian.com/commentisfree/2022/dec/12/infections-strep-a-rsv-flu...

lankisterguy

Volunteer•2 years ago

2 Replies

Alerts

why am I not receiving any alerts?

Aerobobcat

•2 years ago

2 Replies

Calquence going from capsules to tablets

Hi everyone, I just reached out to my specialty pharmacy to order my refill of Calquence and was told that as of last month they are switching over from the...

Hi everyone, I just reached out to my specialty pharmacy to order my refill of ...

tee10

•2 years ago

6 Replies

"Three-drug combination highly effective in patients with high-risk forms of chronic lymphocytic leukemia"

Three-drug combination highly effective in patients with high-risk forms of chronic lymphocytic leukemia -...

Three-drug combination highly effective in patients with high-risk forms of chro...

JIDD

•2 years ago

1 Reply

Treatment of Relapsed CLL - Webinar

Whilst we worry about starting treatment for the first time, there are plenty of treatment choices potentially available to us. However, for those navigating...

Whilst we worry about starting treatment for the first time, there are plenty o...

Jm954

Administrator•2 years ago

4 Replies

CLL diagnosis with Obinutuzumab and Ventoclax offered as treatment

I am a 59 yr old female who was diagnosed with low-grade, non-Hodgkin lymphoma / CLL. Initially, I noticed a lump on my neck after getting my first Covid...

I am a 59 yr old female who was diagnosed with low-grade, non-Hodgkin lymphoma /...

Abbey222

•2 years ago

14 Replies

COVID: Staying Safe As The Virus Evolves - LLS Podcast / CLL Society’s COVID-19 Update December 5th, 2022 / Dec 15 2022 end Antibody Study

The Bloodline with LLS has a new episode!...

lankisterguy

Volunteer•2 years ago

7 Replies

Acalabrutinib and hair loss

I started on Acalabrutinib 3 weeks ago and one week in my hair started shedding. My Oncologist tells me this is not a recognised side effect, so I’m wondering...

I started on Acalabrutinib 3 weeks ago and one week in my hair started shedding....

Gampo

•2 years ago

28 Replies

IMMUNOGLOBULINS G, A, M

Blood labs just came in. Worrisome! Not sure how worried I should be, these test all came in extremely Low. IMMUNOGLOBULINS G, A, M Anyone familiar with...

Blood labs just came in. Worrisome! Not sure how worried I should be, these tes...

Tapps

•2 years ago

24 Replies

A New Forum https://cllforum.org (migration of CLLForum.com)

If anyone here has been a member of cllforum.com you may be aware that the forum is closing down on New Year's Day, as the web host is shutting off and the...

If anyone here has been a member of cllforum.com you may be aware that the forum...

drmoss_ca

•2 years ago

4 Replies

CLL in Central Nervous System?? The Hill just got steeper!

I have been gone for a while but have tried to keep up. I went to the Mayo Clinic and spent 4 days to check out my neurological issues with my feet,legs and...

I have been gone for a while but have tried to keep up. I went to the Mayo Cli...

Rico49

•2 years ago

20 Replies

Teenager Leukaemia free after a world-first use of sophisticated cell engineering.

A 13-year-old girl who relapsed with a particular type of blood cancer is now leukaemia-free after a world-first use of what scientists have described as the...

A 13-year-old girl who relapsed with a particular type of blood cancer is now le...

Juliette02

•2 years ago

1 Reply

vision change after taking Calquence / acalabrutinib for CLL

my eyesight gets really blurry after I take my medicine

Helma77

•2 years ago

5 Replies

Happy Story

https://www.bbc.com/news/health-63859184

YelvertonDevon

•2 years ago

1 Reply

Miracles of science and hope for us

https://www.bbc.com/news/health-63859184 Per Juliette02's introduction, with an alternative report: Teenager Leukaemia free after a...

https://www.bbc.com/news/health-63859184 Per Juliette02's introduction, with a...

nuji

•2 years ago

17 Replies

Calquence + chest pain

After six months taking CALQUENCE, I noticed light chest pains. Uncomfortable enough to avoid sleeping on my left side. I can still do my normal life, it’s...

After six months taking CALQUENCE, I noticed light chest pains. Uncomfortable en...

maresba14

•2 years ago

4 Replies

It's been a long haul

Hi to everyone, I'm new on this forum but not new to CLL. Sorry if this is a bit long but I'm hoping some might get some encouragement from my journey with...

Hi to everyone, I'm new on this forum but not new to CLL. Sorry if this is a bit...

biplane

•2 years ago

19 Replies

Bruising

Hello everyone. Just wondering if anyone who is on Calquence - Acalabrutinib, has had lots of bruises appear? It does say it is one of side affects. I dont...

Hello everyone. Just wondering if anyone who is on Calquence - Acalabrutinib, h...

Westie11-

•2 years ago

27 Replies

Fine-Tuning the Wave of Innovation in CLL

ASH2022 is happening in New Orleans, right now. Yesterday, there was a great webinar hosted on the PeerView platform that covered Personalized Models for...

ASH2022 is happening in New Orleans, right now. Yesterday, there was a great w...

SeymourB

•2 years ago

5 Replies

Watch and Wait on Acalabrutinib

Just went to my cll specialist for my 3 monthly check-in. I have been on Acalabrutinib for almost 2 years (22 months but who’s counting?) My numbers aren’t...

Just went to my cll specialist for my 3 monthly check-in. I have been on Acalabr...

Vizilo

•2 years ago

6 Replies

Confusing advice...help please!

Hi Everyone I haven't posted here for many months but find myself with a bit of a problem with confused covid advice. For 2 and a half years I am on third...

Hi Everyone I haven't posted here for many months but find myself with a bit of...

jaypax

•2 years ago

4 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for December 2022

Imbruvica and other cancers

Intermittent Fasting Could Put Type 2 Diabetes Patients into Remission

Finally Covid Antibiodies

Prolonged medication holiday

Delivery of mRNA therapies: Moderna's founder Bob Langer discusses past, present, and future

Imbrutnib

Zanubrutinib PFS, ORR Is Superior to Ibrutinib for Relapsed/Refractory CLL/SLL

2nd CLL treatment

Husband on O+V, month 5, WBC Morphology abnormal

Multiple infections could make us much sicker – strep A, RSV and flu are a dangerous mix

Alerts

Calquence going from capsules to tablets

"Three-drug combination highly effective in patients with high-risk forms of chronic lymphocytic leukemia"

Treatment of Relapsed CLL - Webinar

CLL diagnosis with Obinutuzumab and Ventoclax offered as treatment

COVID: Staying Safe As The Virus Evolves - LLS Podcast / CLL Society’s COVID-19 Update December 5th, 2022 / Dec 15 2022 end Antibody Study

Acalabrutinib and hair loss

IMMUNOGLOBULINS G, A, M

A New Forum https://cllforum.org (migration of CLLForum.com)

CLL in Central Nervous System?? The Hill just got steeper!

Teenager Leukaemia free after a world-first use of sophisticated cell engineering.

vision change after taking Calquence / acalabrutinib for CLL

Happy Story

Miracles of science and hope for us

Calquence + chest pain

It's been a long haul

Bruising

Fine-Tuning the Wave of Innovation in CLL

Watch and Wait on Acalabrutinib

Confusing advice...help please!

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