Not sure how long the Loxo trial has been running - my 3 years are up next May. Is there anyone who has actually finished their 3 years already? If so, are you still on the drug, or are you back on watch and wait (voluntarily or otherwise?).
Thanks
Not sure how long the Loxo trial has been running - my 3 years are up next May. Is there anyone who has actually finished their 3 years already? If so, are you still on the drug, or are you back on watch and wait (voluntarily or otherwise?).
Thanks
Hi
I'm on it but not as part of a trial. Just started my 3rd cycle and things are going well. Not sure how long I'll be on it for as I have ITP as well which is causing a few issues. I'm also in the UK.
Sorry to hear that, but glad things are going well. So it must now be available generally, which is good news. Thanks for that!
Great to hear Nicebaps! I have ITP too, nice news that you are doing well.
In the US at least, veltuzumab was given orphan drug status for ITP and it may work somewhat on CLL. I was in an early trial for CLL use, it halted my aggressive variant but didn't regress me. I was considered a "failure" after a few months of my lymphs not growing but not going down and kicked out of the trial. It was given subcutaneous so no "infusion reaction" issues. IDK if it's available in Europe anywhere. It may help the ITP and halt your CLL to boot.
I've just posted about a review article that deals with the issue of ITP that may be of interest to you.
I was on the LOXO 305 study for 19 cycles but unfortunately relapsed this past January. I had no side effects. I am currently on MS-553 after falling LP-168. It’s been a wild ride. I hope you have a really long long remission on LOXO. Good luck. Tony