First day I am feeling well after, Calquence - CLL Support

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First day I am feeling well after, Calquence

helenolton profile image
7 Replies

I have been on Calquence for 54 days. This has been a journey, for me. I am happy I took a leave from work for three months. I had several side effects, headaches, loud ringing in my ears, and I had severe muscle pain, and had a hard time walking. Some days I cried, but its is better to take a pill then Chemo. Then I caught a virus it lasted for three weeks. Today, I have to say I am feeling better. I even took a 13 min. walk. I do have anemia, which have contributed to some of these side effects. I am hoping I can return to work on Dec. 27.

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helenolton profile image
helenolton
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7 Replies
MisfitK profile image
MisfitK

Hugs and thanks to you for letting us know how it's going. It helps all of us in watch and wait to prep our families for what may come.

Keep us updated on how it keeps going!

helenolton profile image
helenolton in reply to MisfitK

Thank you

SofiaDeo profile image
SofiaDeo

Glad you are feeling better, please keep us updated on your progress!

cllady01 profile image
cllady01Former Volunteer

When you are feeling well enough, please read the following information about safely using HU and keep yourself and others safe from having personal information online:

healthunlocked.com/cllsuppo...

It would be best to start with this specific post--the link will tell you how.

MyAZsunshine72 profile image
MyAZsunshine72

Sorry to hear about the side effects. That is a little scary. I am supposed to start on calquence, but my insurance policy denied the claim my doctor sent in. I am trying to figure out how to find a (medicare part D) insurance company and help to pay for this drug.

Sushibruno profile image
Sushibruno in reply to MyAZsunshine72

Was your medication covered?

Mahunny profile image
Mahunny in reply to MyAZsunshine72

call Astra Zeneca directly. They have a program to cover the cost of co-pay so maybe they will cover full cost if your insurance denies. (844) 275-2360 Cannot hurt to call and ask! Good luck and let us know how it goes!

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