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CLL Support

22,532 members • 38,709 posts

All posts for December 2022

Calquence from Canada?

Merry Christmas from a cold Florida! After trying to get assistance from a foundation to no avail I have heard that I can order from a pharmacy in Canada for...

Merry Christmas from a cold Florida! After trying to get assistance from a found...

Sandlot

•1 year ago

6 Replies

People's lived experience of complete remission after long illness?

Hello. Just joined, first post. Quick background: dx in 2008 when I was 43 yo; FCR 2011 → MRD (minimal residual disease); lenolidamide 2011-14; zanibrutrinib...

Hello. Just joined, first post. Quick background: dx in 2008 when I was 43 yo; ...

Greyhound23

•1 year ago

17 Replies

Ibrutinib reduction

hello. good evening. I would like to know if this has happened to anyone. since March I reduced the dose of ibrutinib. from 420 to 280. and since then. I...

hello. good evening. I would like to know if this has happened to anyone. sin...

Bixilon

•1 year ago

12 Replies

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O and V treatment

Hello, I will be starting my obinutuzumab and Venetoclax treatment soon. I thought they were taken separately. Has anyone that has had or is going through...

Hello, I will be starting my obinutuzumab and Venetoclax treatment soon. I thou...

filmcaptive1

•1 year ago

17 Replies

CLL Society: This Week - December 20, 2022 COVID-19 Weekly Update from CLL Society -

https://cllsociety.org/2022/12/cll-societys-covid-19-update-for-the-week-of-december-19-2022/ CLL Society’s COVID-19 Update for the Week of December 19, 2022...

https://cllsociety.org/2022/12/cll-societys-covid-19-update-for-the-week-of-dece...

lankisterguy

Volunteer•1 year ago

1 Reply

Just curious

what was your white blood count when you started treatment? I know there are other results that determine just wanted to know wbc.

what was your white blood count when you started treatment? I know there are ot...

Createdpath

•1 year ago

15 Replies

WBC 18 to 61.56- how about WBC 22 to 3.6

Just read the interesting post about WBC 18 to 61.56. Many have said their wbc went up when they first started Acalabrutinib. Mine did the opposite. I went...

Just read the interesting post about WBC 18 to 61.56. Many have said their wbc ...

Rico49

•1 year ago

19 Replies

FCR-6plus years in remission - am I cured.

Had my 6 monthly telephone consultation yesterday. Still in remission with wbc at 5.7 and all in normal range. Super. So, I get round to the question “I know...

Had my 6 monthly telephone consultation yesterday. Still in remission with wbc a...

devonrr

•1 year ago

16 Replies

First COVID Antibody Test

I just got the results back from my first COVID antibody test. It said that my antibody level is 150. Is this a decent level? It is difficult to find much...

I just got the results back from my first COVID antibody test. It said that my ...

noeagaman

•1 year ago

20 Replies

Stomach Issues

Hi, I have been on Imbruvica since April 2018 and no treatment prior. My numbers are doing well. I have had many months of not feeling myself this past year. I...

Hi, I have been on Imbruvica since April 2018 and no treatment prior. My numbers...

Cgolen99

•1 year ago

34 Replies

Patient Power's MOST-READ ARTICLEs for 2022

MOST-READ ARTICLE What Does My Lymphocyte Count Mean? If you’ve had a complete blood count blood test and are wondering what the results for the...

MOST-READ ARTICLE What Does My Lymphocyte Count Mean? If you’ve had...

lankisterguy

Volunteer•1 year ago

Be the first to reply

Progressed

I saw my oncologist today and he feels my CLL has started to progress. After being on IB for 3.5 yrs and Calquence for 6 months it’s time to say goodbye to my...

I saw my oncologist today and he feels my CLL has started to progress. After bei...

steve_canada

•1 year ago

23 Replies

My diagnosis has changed from Lymphoprolific none nodal mantle cell lymphoma age 56 to more of a CLL at 79 years.

I would like to know other peoples experience with CLL. My lymphocytes went up to 270 and I was started on Acalabrutinib 100mg twice daily. Have been on this...

I would like to know other peoples experience with CLL. My lymphocytes went up t...

Jennifer_africa

•1 year ago

1 Reply

a little confused

I have had two FBC, one in 2020, when I had a swollen toe, and one just last October. In 2020 my lymphocytes were just above normal..I didn’t notice this and...

I have had two FBC, one in 2020, when I had a swollen toe, and one just last Oct...

Frankwt

•1 year ago

1 Reply

anyone not take Paxlovid?

Covid finally found me - tested positive this morning. Symptoms mild so far and had Bivalent booster is October. Been on acalabrutinib 3 years and doing well....

Covid finally found me - tested positive this morning. Symptoms mild so far and ...

rggerlac

•1 year ago

20 Replies

Latest Consultation/Bloods

Hi I am in UK. I have just had, in November, my consultation with haematologist to check bloods. I am on watch and wait. All looks stable. The key markers...

Hi I am in UK. I have just had, in November, my consultation with haematologis...

Divisidero

•1 year ago

10 Replies

Intermittent fasting -- a negative effect?

Hey, yall, we've recently been talking about various anti-aging regimens, and doing hit and run (take a lot, then days/weeks without, then a lot again). In...

Hey, yall, we've recently been talking about various anti-aging regimens, and do...

Vlaminck

•1 year ago

27 Replies

Blurred vision with Zanubrutinib (Brukinsa)

I wonder whether anybody who has been taking the recently-approved drug Zanubrutinib (Brukinsa) has experienced blurred vision? I started on the drug two...

I wonder whether anybody who has been taking the recently-approved drug Zanubrut...

Snoopy234

•1 year ago

3 Replies

short question short answer I expect😂

does anybody take Ventoclax with anything other than water ? I just wondered as I drink plenty of water but would like an alternative. Thankyou

does anybody take Ventoclax with anything other than water ? I just wondered as ...

Hilo13

•1 year ago

18 Replies

With CLL, infections can be fatal. Why hasn't rapid sequencing for serious infections and sepsis (Metagenomics) become standard of care?

In 2014, Sharon Peacock, a professor of microbiology at the Unviersity of Cambridge, wrote an important piece in Nature, first page shown below, advocating...

In 2014, Sharon Peacock, a professor of microbiology at the Unviersity of Cambri...

AussieNeil

Administrator•1 year ago

18 Replies

Blood work insight needed.

I'm a couple days in on full dose Venclexta with no side effects, but my cbc after day one of 400ml was a bit out of wack. WBC a tiny bit low, lymphocytes a...

I'm a couple days in on full dose Venclexta with no side effects, but my cbc aft...

Gradyboy

•1 year ago

8 Replies

Covid

Just a warning, for the 2nd time in a month my sister's care home has a covid outbreak no visits until new year,my son in law also have it,l think l will...

Just a warning, for the 2nd time in a month my sister's care home has a covid o...

sun_flower

•1 year ago

26 Replies

Can someone suggest a good CLL specialist at Vanderbilt hospital in Nashville.

Please suggest a good CLL specialist at Vanderbilt hospital in Nashville. Also, does anyone know Dr David Scott Morgan at Vanderbilt? Is he good and is he a...

Please suggest a good CLL specialist at Vanderbilt hospital in Nashville. Also, ...

Lovely67

•1 year ago

14 Replies

ASH presentations in total

See all presentations with summaries from OncLive. You will get 20 pages worth and can locate CLL research and the many CLL researchers with whom we are...

See all presentations with summaries from OncLive. You will get 20 pages worth ...

Teddo

•1 year ago

5 Replies

69th day on CALQUENCE

Hello....My ALC is at 50, red blood cells still low at 9 they were 7. I have been fighting a cough for two months, when I start talking I lose my voice....

Hello....My ALC is at 50, red blood cells still low at 9 they were 7. I have be...

helenolton

•1 year ago

2 Replies

Optimal Treatment Combinations in the Management of CLL/SLL Jeff Sharman, MD Provided by Clinical Care Options, LLC

Optimal Treatment Combinations in the Management of CLL/SLL Jeff Sharman, MD An installment of the educational program: Advances in Chronic...

Optimal Treatment Combinations in the Management of CLL/SLL Jeff Sharman, ...

lankisterguy

Volunteer•1 year ago

9 Replies

Obinutuzumab Question

Hello: As I posted recently that I’m going through O + V treatment presently. During December I will complete three weeks of Obin infusions. The first...

Hello: As I posted recently that I’m going through O + V treatment presently. ...

HopeME

•1 year ago

16 Replies

Starting Obinutuzumab infusions

I have been taking Imbruvica for @3years for CLL with good results. I'm going to start the Obinutuzumab infusions in January. I've had very little side effects...

I have been taking Imbruvica for @3years for CLL with good results. I'm going to...

BarneyFife

•1 year ago

24 Replies

recent diagnoses

my mum was recently diagnosed with CLL

Sami872368

•1 year ago

2 Replies

Anyone know where Dr. Mato is going?

Dr. Mato has been my doctor for the past 3 years and recently left Sloan Kettering. Does anyone know where he's headed? Thank you.

Dr. Mato has been my doctor for the past 3 years and recently left Sloan Ketteri...

Podge63

•1 year ago

17 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for December 2022

Calquence from Canada?

People's lived experience of complete remission after long illness?

Ibrutinib reduction

O and V treatment

CLL Society: This Week - December 20, 2022 COVID-19 Weekly Update from CLL Society -

Just curious

WBC 18 to 61.56- how about WBC 22 to 3.6

FCR-6plus years in remission - am I cured.

First COVID Antibody Test

Stomach Issues

Patient Power's MOST-READ ARTICLEs for 2022

Progressed

My diagnosis has changed from Lymphoprolific none nodal mantle cell lymphoma age 56 to more of a CLL at 79 years.

a little confused

anyone not take Paxlovid?

Latest Consultation/Bloods

Intermittent fasting -- a negative effect?

Blurred vision with Zanubrutinib (Brukinsa)

short question short answer I expect😂

With CLL, infections can be fatal. Why hasn't rapid sequencing for serious infections and sepsis (Metagenomics) become standard of care?

Blood work insight needed.

Covid

Can someone suggest a good CLL specialist at Vanderbilt hospital in Nashville.

ASH presentations in total

69th day on CALQUENCE

Optimal Treatment Combinations in the Management of CLL/SLL Jeff Sharman, MD Provided by Clinical Care Options, LLC

Obinutuzumab Question

Starting Obinutuzumab infusions

recent diagnoses

Anyone know where Dr. Mato is going?

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