Posts - CLL Support | HealthUnlocked

CLL Support

23,138 members • 39,744 posts

All posts for October 2022

Who gets Shingles.

I am assuming that anyone who has not had chicken pox should get the shingles vaccine with its painful side effects. I read in several places on google :...

I am assuming that anyone who has not had chicken pox should get the shingles va...

onu1tadi2

•2 years ago

36 Replies

I started Paxlovid again.

I tested positive again and started Paxlovid the next day. I can't find much written about repeating Paxlovid 3 months later when reinfected. Recap: I tested...

I tested positive again and started Paxlovid the next day. I can't find much wri...

RSilver

•2 years ago

11 Replies

Venetoclax - Morning vs Night

Has anyone's doctor advised the best time to take Venetoclax as far as it working better if taken in the morning vs. night? My doctor said the...

Has anyone's doctor advised the best time to take Venetoclax as far as it workin...

Winegrape

•2 years ago

10 Replies

Want to take advantage of all our features? Just log in!

Am I in the right place?

Hi everyone. Nice to meet you all. I don't know if I'm even in the right area here. Apologies if not. I have just been through having pre cancerous cells...

Hi everyone. Nice to meet you all. I don't know if I'm even in the right area h...

BethForrest

•2 years ago

6 Replies

More on Cimetidine (Tagamet) and CLL & NK Cell improvements

”Peripheral blood natural killer (NK) activity in patients with B-cell chronic lymphocytic leukemia (B-CLL) is frequently low or absent. Because cimetidine (a...

”Peripheral blood natural killer (NK) activity in patients with B-cell chronic l...

Rando21

•2 years ago

9 Replies

Shingles vaccine

Oh my l had my 2nd vaccine yesterday and l have had a horrible night, shivering, headache, aches and pains and peeing every half hour,the lst one was bad but...

Oh my l had my 2nd vaccine yesterday and l have had a horrible night, shivering,...

sun_flower

•2 years ago

35 Replies

Am I overly concerned?

Hello all I’m a 53 year old, diagnosed with CLL in November last year and almost 10 months in to my treatment which appears to be going ok. Taking Venetoclax...

Hello all I’m a 53 year old, diagnosed with CLL in November last year and almos...

PPT184

•2 years ago

20 Replies

The immune system doesn't know that your eye's exist - Ocular immune privilege

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2948372/#:~:text=The%20eye%20has%20a%20special,were%20not%20rejected%20%5B1%5D. The eye has a special...

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2948372/#:~:text=The%20eye%20has%20...

zaax

•2 years ago

2 Replies

Total knee replacement. Looking for advice, guidance and wisdom.

I have a few concerns about my upcoming Total Knee Replacement surgery and would really appreciate hearing from those who have already been through this. Main...

I have a few concerns about my upcoming Total Knee Replacement surgery and would...

JigFettler

Volunteer•2 years ago

39 Replies

Richter’s Transformation - Detection of early seeding of Richter transformation in chronic lymphocytic leukemia

Very interesting article on TR with Dr. Elias Campo among other doctors. Article published by the journal Nature. Posted on August 11. Read it because it gives...

Very interesting article on TR with Dr. Elias Campo among other doctors. Article...

Priss69

•2 years ago

29 Replies

oncologist

I’d like to know if anyone else has issues with which doctor to see or call when different symptoms show up. I’m in w & w for 3 years now. For the last 2...

I’d like to know if anyone else has issues with which doctor to see or call when...

Willowbug

•2 years ago

35 Replies

Dizziness on Ibrutinib

Hello, in 2022 my mom was diagnosed CLL (tp53,del 17p, unmutated), on August started treatment with Ibrutinib, 2 months later in general her condition is...

Hello, in 2022 my mom was diagnosed CLL (tp53,del 17p, unmutated), on August sta...

Marimari

•2 years ago

6 Replies

FDA updated their guidance offered to healthcare providers concerning Evusheld

Hi, On October 3, 2022, the FDA updated their guidance offered to healthcare providers concerning Evusheld, the only authorized Pre-Exposure Prophylaxis...

Hi, On October 3, 2022, the FDA updated their guidance offered to healthcare p...

bkoffman

CLL CURE Hero•2 years ago

9 Replies

Half dose of Acalabrutinib

Have any of you been transferred from a full to half dose of Acalabrutinib (1 pill a day) because the full dose caused infections ? If yes, did the half dose...

Have any of you been transferred from a full to half dose of Acalabrutinib (1 pi...

MikeOr

•2 years ago

15 Replies

Navigating the Hidden Costs of Clinical Trials on Patient Power

Navigating the Hidden Costs of Clinical Trials https://www.patientpower.info/navigating-the-hidden-costs-of-clinical-trials Nearly two years ago, Brad Adams’...

Navigating the Hidden Costs of Clinical Trials https://www.patientpower.info/na...

lankisterguy

Volunteer•2 years ago

1 Reply

Despair about hospital appointments

You may be aware about my ongoing struggles to get progress with my possible AFib after my scalding accident in June. I was referred for an Echocardigram and...

You may be aware about my ongoing struggles to get progress with my possible AFi...

kitchengardener2

•2 years ago

13 Replies

NEW - Aussies with CLL - Your invitation to help researchers explore treatment goals and provide opinions on different treatment options

Further to last month's care and management survey, this month Community and Patient Preference Research (CAPPRE), on behalf of a pharmaceutical company, is...

Further to last month's care and management survey, this month Community and Pat...

AussieNeil

Administrator•2 years ago

6 Replies

EHA 2022: Outcomes Following Treatment With a Covalent BTK and BCL2 Inhibitor

https://cllsociety.org/2022/08/eha-2022-outcomes-following-treatment-with-a-covalent-btk-and-bcl2-inhibitor-among-patients-with-chronic-lymphocytic-leukemia-cll

https://cllsociety.org/2022/08/eha-2022-outcomes-following-treatment-with-a-cova...

Lavinia-Blue

•2 years ago

10 Replies

Save the date! Our first conference for over two years! We're very pleased to invite you to our conference in Glasgow later this month.

We are excited to announce that our first conference for over two years will be held in Glasgow. Topic: 'Managing CLL in 2022- Treatment guidelines...

We are excited to announce that our first conference for over two years will be ...

pkguk2

Partner•2 years ago

3 Replies

Interaction of ibrutinib with pantoprazole…. ????

Hi,, I have been taking ibrutinib for about 40 days, I have had stomach reflux and indigestion for about a week. The next visit with my oncologist hematologist...

Hi,, I have been taking ibrutinib for about 40 days, I have had stomach reflux a...

ava1967ir

•2 years ago

14 Replies

CLL treatment

Hi everyone, I am wondering if I can get your thoughts/experience on some new results my dad got from his doctor after his recent CLL follow up. His levels...

Hi everyone, I am wondering if I can get your thoughts/experience on some new re...

Rubymom

•2 years ago

7 Replies

Obinutuzumab + venetoclax

Scheduled to start treatment end of the month to have CLL under control.Felt fine otherwise and it’s pretty nerve racking going into a year long treatment.Dr...

Scheduled to start treatment end of the month to have CLL under control.Felt fin...

Jasmine_tea

•2 years ago

24 Replies

Spikervax the latest covid jab.

Hi All This is my sixth jab the previous two Pfzier jabs apart from a tender arm the only other thing I get is a swelling under my arm. This usually last for...

Hi All This is my sixth jab the previous two Pfzier jabs apart from a tender ar...

TheFlyer

•2 years ago

1 Reply

Cinetidine & Loratadine ect

I’ve noticed I don’t seem to have night sweats or certain other issues (feverish ache sensation) with my CLL when I take Claritin(Loratadine). Is that just...

I’ve noticed I don’t seem to have night sweats or certain other issues (feverish...

Rando21

•2 years ago

17 Replies

CoVid 19 and CLL

Hi everyone, As I consider how to live with CLL and Covid with a spouse that is NOT on board with logical approach to me safety, I am wondering how all of you...

Hi everyone, As I consider how to live with CLL and Covid with a spouse that is...

skipro

•2 years ago

76 Replies

Stabilisation enquiry

Good afternoon CLL Community I was told in the past week by the consultant haematologist that it is unlikely that my CLL is unlikely to worsen/cause...

Good afternoon CLL Community I was told in the past week by the consultant hae...

BannowBayLad

•2 years ago

5 Replies

Omicron vaccine

Does anybody know how long to wait to have antibodies checked after the Omicron booster, what are the billing codes? I was in a study through the LLS last...

Does anybody know how long to wait to have antibodies checked after the Omicron ...

Imalpn

•2 years ago

5 Replies

Moderna and Lymph Nodes

just FYI, one week ago I had a booster with Moderna’s new dual variant vaccine. Felt awful for one day then just fine. However around 36 hours later a node...

just FYI, one week ago I had a booster with Moderna’s new dual variant vaccine. ...

Lawand1

•2 years ago

7 Replies

I stopped methadone will my period come back?

Im 35 days clean from methadone im 26 im scared i wont get my period will my period come back help please im painicing help

Im 35 days clean from methadone im 26 im scared i wont get my period will my per...

Shannansmyth47

•2 years ago

1 Reply

thanks to all who responded to Gazyva as monotherapy

A big THANK YOU to everyone who responded to my question about the gazyva as a mono therapy .. it is really helpful to learn of your experience of when you...

A big THANK YOU to everyone who responded to my question about the gazyva as a ...

craterlake

•2 years ago

3 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for October 2022

Who gets Shingles.

I started Paxlovid again.

Venetoclax - Morning vs Night

Am I in the right place?

More on Cimetidine (Tagamet) and CLL & NK Cell improvements

Shingles vaccine

Am I overly concerned?

The immune system doesn't know that your eye's exist - Ocular immune privilege

Total knee replacement. Looking for advice, guidance and wisdom.

Richter’s Transformation - Detection of early seeding of Richter transformation in chronic lymphocytic leukemia

oncologist

Dizziness on Ibrutinib

FDA updated their guidance offered to healthcare providers concerning Evusheld

Half dose of Acalabrutinib

Navigating the Hidden Costs of Clinical Trials on Patient Power

Despair about hospital appointments

NEW - Aussies with CLL - Your invitation to help researchers explore treatment goals and provide opinions on different treatment options

EHA 2022: Outcomes Following Treatment With a Covalent BTK and BCL2 Inhibitor

Save the date! Our first conference for over two years! We're very pleased to invite you to our conference in Glasgow later this month.

Interaction of ibrutinib with pantoprazole…. ????

CLL treatment

Obinutuzumab + venetoclax

Spikervax the latest covid jab.

Cinetidine & Loratadine ect

CoVid 19 and CLL

Stabilisation enquiry

Omicron vaccine

Moderna and Lymph Nodes

I stopped methadone will my period come back?

thanks to all who responded to Gazyva as monotherapy

Search posts

Pinned Posts

Latest poll

Part 2 of How well do you know HealthUnlocked's features? Rate yourself on this multichoice poll. Answers later or you can check Help!

Topics

Archive