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CLL Support

22,532 members • 38,709 posts

All posts for August 2022

Atrial Fibrillation and Bradycardia What CLL Treatment might I get

Hi. I am just wondering if anyone has had any treatment whilst having Atrial Fibrillation and Bradycardia. I have AF and B which I believe I may have had for...

Hi. I am just wondering if anyone has had any treatment whilst having Atrial Fib...

•2 years ago

Covid-19 2nd Positive

Hi folks,well it’s almost 12 months since my 1st Covid positive and this morning I have tested positive for the 2nd time.I have thus far received 2...

Hi folks,well it’s almost 12 months since my 1st Covid positive and this morning...

•2 years ago

Chronic lymphocytic leukemia: 2022 update on diagnostic and therapeutic procedures

This publication is by Michael Hallek,Othman Al-Sawaf and outlines the latest in the diagnosis and treatment of CLL. I think it will be interesting for many...

This publication is by Michael Hallek,Othman Al-Sawaf and outlines the latest in...

•2 years ago

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Finishing line for Pirtobrutinib (Loxo) & Venetoclax combination trial.

I have just completed the 2 year combination clinical trial with Pirtobrutinib and Venetoclax - I think a small study of us in Australia. ( Also worldwide)...

I have just completed the 2 year combination clinical trial with Pirtobrutinib a...

•2 years ago

obinutuzumab to start soon! What all to expect

my husband is on acalaibrutinib- day 6 and his schedule for obinutuzumab is planned next week.. it’s an altogether new combination we will be taking. Doctor...

my husband is on acalaibrutinib- day 6 and his schedule for obinutuzumab is plan...

•2 years ago

Has anyone had a brain MRI while on venetoclax or rituximib ?

I began to relapse CLL early 2021, started treatment on venetoclax Aug 2021 and then 6 X monthly rituximib infusions. In Mar 2022, a month after the last...

I began to relapse CLL early 2021, started treatment on venetoclax Aug 2021 and ...

•2 years ago

Help me to understand please.

Hi guys, I am fairly recently diagnosed with CLL (April 22). I’ve just had my second appointment with my consultant. He told me that my WBC count had risen...

Hi guys, I am fairly recently diagnosed with CLL (April 22). I’ve just had my se...

•2 years ago

Had telephone consultation this morning.

I had my three monthly telephone consultation this morning. As usual I worried myself silly yesterday and until the call came this morning. More so because...

I had my three monthly telephone consultation this morning. As usual I worried ...

kitchengardener2

•2 years ago

Novavax vs MRNA

wondering if the immune compromised would respond differently to Novavax vaccine versus MRNA vaccines.

wondering if the immune compromised would respond differently to Novavax vaccin...

•2 years ago

lymphyproliferative screen

interested to know if anyone recognises this result BHOD number value 35363 - came through on my NHS app. Not sure what it means

interested to know if anyone recognises this result BHOD number value 35363 - ca...

•2 years ago

CLL treatment and early menopause

Does anyone have resources on whether or how V+O treatment impacts menopause? My specialist is a bit out of his league on this one because I'm one of the...

Does anyone have resources on whether or how V+O treatment impacts menopause? My...

•2 years ago

uMRD Achieved!

Greetings everyone. Just wanted to write to share my good news. I was on the O+V journey and had a rough time. I think I had every side affect imaginable,...

Greetings everyone. Just wanted to write to share my good news. I was on the O...

•2 years ago

blurred vision

My husband has been on acalabrutinib for about 5 months. The last two weeks or so he has been experiencing blurred vision, on and off but worse in the...

My husband has been on acalabrutinib for about 5 months. The last two weeks or ...

•2 years ago

Cuts, Bruises & CLL

Good day everyone. I have a question regarding cuts and bruises. Is it common to find that you bruise more easily or that your skin gets little cuts here...

Good day everyone. I have a question regarding cuts and bruises. Is it common...

•2 years ago

Venetoclax and side effects?

Hello, My brother has been taking ibrutinib for more than a year. As his abdominal lymph nodes began to enlarge, doctors have switched Ibrutinib to...

Hello, My brother has been taking ibrutinib for more than a year. As his abdo...

•2 years ago

overall survival time with new medicines?

I understand that the new meds provide a better quality of life and are effective if you have aggressive forms of CLL( ex TP53 and or Unmutated IGVH. Any...

I understand that the new meds provide a better quality of life and are effectiv...

•2 years ago

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