uMRD Achieved!

[McBuster]

Greetings everyone. Just wanted to write to share my good news. I was on the O+V journey and had a rough time. I think I had every side affect imaginable, but I pushed through. I kept thinking, "It is just a year, suck it up and then you will have peace on the other end." Well, this morning I woke up to my test result that I did indeed achieve uMRD. What a glorious feeling. I finished up my meds last week. I am still not feeling great (ended up with a bacterial infection and started antibiotics the same day I took my last 4 Venetoclax tablets). Today is the last day for the antibiotics, so I am hoping for better days ahead. Thank you all for being there during my journey. You always made me feel like I was not alone and someone always was having the same symptoms I was, so I wasn't as scared. For those of you just starting this journey, hang in there if it is rough, better days are ahead. I also gained my first two grandchildren this year and another is on the way for February. Life is good. My good friend and inspiration, who sadly passed last month after a 12 year battle with breast cancer, always said, "Life is a gift, untie the bow!"

[Newdawn Administrator]

Congratulations McBuster and long may it last! 👍

Newdawn

[McBuster in reply to Newdawn]

Thank you so much!

[Panz]

You are never alone in our community!! This is just SUPER news and I just couldn’t be happier for you….thanks for sharing!

Panz 🙏☘️💕🌈🙂

[McBuster in reply to Panz]

Thank you! Love all the emojis! 💕

[hope-73]

Congratulations! Long may it last! Now just enjoy your life!

[noeagaman]

Congratulations! It's a great feeling isn't it? I hope that you have many years of remission! It has been 4 and a half for me so far...

Chris

[McBuster in reply to noeagaman]

Eeek! That is so exciting to hear. May you continue to have many more years. 🙌🙌

[noeagaman in reply to McBuster]

Thank you McBuster! That was with FCR that had to be cut short by two months so I am very thankful that it is still working.

Chris

[Justasheet1]

McB,

How did they confirm your umrd? Was it a blood test or a bmb?

Jeff

[McBuster in reply to Justasheet1]

Blood test.

[CycleWonder]

Congratulations!🎉🎉🎉🎉

Thanks for sharing your wonderful news and providing hope for all of us!

[Poodle2]

Fantastic news!!! Hope you recover from the infection soon and that you can enjoy your grandchildren! I am about to start cycle 2 of O+V and it has been a bumpy ride for me so far so I'm really grateful for posts like yours❤

All the best ❤

Petra

[McBuster in reply to Poodle2]

Hang in there. You can do it!! Feel free to message me if you have any questions about side affects. I can tell you how I managed if that will be helpful. - Mary

[Poodle2 in reply to McBuster]

Thank you Mary, so kind of you ❤ I will if I need to, I only started the V ramp up last week so I'm sure there will be things that come up.

[Gardengirl44 in reply to Poodle2]

We got this!!!!

[Davidcara]

Congratulations McBuster. So happy for you!

[Ghounds]

Congratulations, I admire your tenacity in keeping going through those hard times you had. Wishing you a quick recovery from your infection and a long and healthy remission.

[McBuster in reply to Ghounds]

Thank you! ❤️

[cllady01 Former Volunteer]

Thank you for your report. So happy to hear you are in remission and long may that be so.

Do keep us updated with your infection report---we want to hear soon that you are in the best of health with no joint pains and no infections to be treated.

Onward with gusto!

[McBuster in reply to cllady01]

Will do and thank you!

[Sanders9]

Congratulations that is excellent news

[SofiaDeo]

Yay, may your remission be super long lasting! May you be one who never needs treatment again!

[McBuster in reply to SofiaDeo]

Thank you and wouldn't that be grand!!!

[Oleboyredw-uk]

Congratulations, may you have many more uMRD results.

Best, rob

[Fran57]

Brilliant news!Stay safe and enjoy life!

Fran 😷

[Phil4-13]

McBuster, wonderful news! 🙂 Sandra

[Feldman]

Congratulations! So wonderful and inspiring to hear this great news. Enjoy life!

[Leyritzmom]

Congratulations on this great news. I have round 4 of Obinutuzumab today. The only side effects I have are gas and some stomach issues with venetoclax.Also sorry for the loss of your friend but I love her quote.

[McBuster in reply to Leyritzmom]

Good luck with your treatment. Hopefully you continue to sail through it! Thank you also for the mention of my friend. She was a true fighter and inspiration. Never did I see her without a smile. We are thankful that she is at peace and pain free now. 💕

[NaturalWaze]

Congratulations and long may it last!! (6 more weeks of V for me!)

[McBuster in reply to NaturalWaze]

Thank you! Six weeks will go fast.

[Teddo]

What a wonderful post, and what a wonderful spirit you have. Keep untying the bow.

[Gardengirl44]

I am so so happy for you!!!! I’m on same journey, similar age, and unmutated too!!! Same diagnosis time ! Tolerated O well. First full week on V. I may pick your brain now and then if ok. Congrats to you!!!!!!!!

[McBuster in reply to Gardengirl44]

Anytime!! All the best to you.

[Smac29]

Congratulations to you!! So very happy for you! 🎉🍾🎈🎈

[Thundercat2]

So happy to hear this McBuster as I am on the same journey with O+V. I haven't had too many side effects, a rough start with the O and some tummy aches but my numbers are doing well. I had a dip in my Hb that concerned me but the docs say not to worry. Feel so blessed to have this option.

Thank you for sharing and I hope your have a loooooong remission