Posts - CLL Support | HealthUnlocked

CLL Support

22,866 members • 39,229 posts

All posts for August 2022

EVUSHELD

First post here. I have had CLL for approximately six years and have been very fortunate to not need any treatment. Had my yearly check-in with my doctor...

First post here. I have had CLL for approximately six years and have been very ...

Greenon60

•2 years ago

18 Replies

Atorvastatin

Hi GP dr as sent a message through for my Hubby to start on drugs Satin Atorvastatin . No explanation Hubby is on flair trial drug Ibrubtinb 3 tabs a day as...

Hi GP dr as sent a message through for my Hubby to start on drugs Satin Atorva...

Duder

•2 years ago

6 Replies

LET’S GET READY FOR WORLD CLL DAY ON 1 SEPTEMBER!

WORLD CLL DAY 2022 is only a few weeks away! Every 1 September, the global CLL community unites to raise awareness about chronic lymphocytic leukemia...

WORLD CLL DAY 2022 is only a few weeks away! Every 1 September, the global CLL ...

HAIRBEAR_UK

Founder Admin•2 years ago

1 Reply

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Allergic Skin Reaction While Using Paxlovid?

I tested positive for Covid on Sunday, started Paxlovid on Monday. Terrible itching today.I want to add that I'm on Calquence too and now have exzema....

I tested positive for Covid on Sunday, started Paxlovid on Monday. Terrible ...

Naisy

•2 years ago

2 Replies

confused

I recently went for a ultrasound on my Gallbladder as my doctor suspected gallstones Unfortunately I had the report back no stones But my liver he says...

I recently went for a ultrasound on my Gallbladder as my doctor suspected gallst...

Liver007123

•2 years ago

6 Replies

2nd dose of Paxlovid

Judging by the comments from my pharmacist and the Urgent Care Doctor, I may be the first person locally to get prescribed Paxlovid twice. My Timeline:...

Judging by the comments from my pharmacist and the Urgent Care Doctor, I may be...

RSilver

•2 years ago

16 Replies

Study shows that over half of known human pathogenic diseases can be aggravated by climate change

Recently published in Nature https://www.nature.com/articles/s41558-022-01426-1 "Here we carried out a systematic search for empirical examples about the...

Recently published in Nature https://www.nature.com/articles/s41558-022-01426-1 ...

bennevisplace

•2 years ago

15 Replies

Any experience with taking Ibrutinib with Eliquis?

I'm taking Eliquis because of blood clots and Losartan for high BP. Tomorrow I'm scheduled to start 420 mg Ibrutinib. I'm concerned about possible...

I'm taking Eliquis because of blood clots and Losartan for high BP. Tomorrow I'...

Living2

•2 years ago

7 Replies

What pox do you choose?

I choose the monkeypox, with which we will get to know very briefly for general culture. I ask people who don't like to read about diseases to refrain or read...

I choose the monkeypox, with which we will get to know very briefly for general ...

Yalokin

•2 years ago

6 Replies

Hello. I haven't received the publications in my email for several days, what will be the reason? Thank you

publications

Bixilon

•2 years ago

1 Reply

Need Urgent help for CAR-T therapy

Hello! My friend, a 57 year old male, who resides in India, has been suggested CAR-T therapy as a last resort. Here’s his cancer chronology 9/2009 - DX...

Hello! My friend, a 57 year old male, who resides in India, has been suggested...

nuji

•2 years ago

8 Replies

Did you know that...

...the subtype of chronic lymphocytic leukemia with VH gene mutations is equally common in men and women, while chronic lymphocytic leukemia without VH gene...

...the subtype of chronic lymphocytic leukemia with VH gene mutations is equally...

Yalokin

•2 years ago

Be the first to reply

My Covid experience.

I write this as only the facts. I don’t intend to make any political statement, nor want to argue. Just the facts: On 7/7/22 my wife and I hosted two young...

I write this as only the facts. I don’t intend to make any political statement...

fishnman

•2 years ago

18 Replies

Dizziness

I'm currently on Watch and Wait. I have been feeling very dizzy and light headed recently when I wake up or lie down. Have put it down to the hot weather...

I'm currently on Watch and Wait. I have been feeling very dizzy and light head...

Adlucy

•2 years ago

16 Replies

3 IGHV Mutation Rate

Why my report have three IGHV mutation rate IGH LEADER 1 Dominant sequence at 72.5% (IGHV3-15_01, IGHJ4_02) productive sequence with mutation rate at 8%...

Why my report have three IGHV mutation rate IGH LEADER 1 Dominant sequence at...

tms99532

•2 years ago

5 Replies

CLL and oral cancer

has anyone here experienced oral cancers? I know we are 5 times more likely to get secondary cancers having CLL, I had a speckled Leukoplakia and have just two...

has anyone here experienced oral cancers? I know we are 5 times more likely to g...

Heidiypi1

•2 years ago

4 Replies

Medicare plan D coming $2000 yearly drug copay cap looks to soon be law.

I was already on watch and wait when I transitioned to Medicare from private insurance. I signed up for traditional medicare and a plan G supplemental. As...

I was already on watch and wait when I transitioned to Medicare from private in...

Pacificview

•2 years ago

33 Replies

Rare Skin Disorder - PLEVA

Went to the dermatologistyesterday to get some funny dark spots remove with liquid nitrogen; they were nothing really to be concerned about but I wanted them...

Went to the dermatologistyesterday to get some funny dark spots remove with liqu...

markjeep51

•2 years ago

9 Replies

Fibromyalgia after covid vaccine?

Hello everyone….been away for awhile. Two weeks after first covid vaccine I got hit with dry eyes/dry mouth, brain fog, insomnia and digestive issues and...

Hello everyone….been away for awhile. Two weeks after first covid vaccine I got...

Ladydi49

•2 years ago

7 Replies

PI3K inhibitors (idelalisib,copanlisib, duvelisib, parsaclisib, umbralisib, zandelisib, ACP-319) in CLL: where do we go from here?

While we have never been as spoiled for treatment choice as we are now, PI3K inhibitor safety is being very closely monitored by the FDA. So, it's timely...

While we have never been as spoiled for treatment choice as we are now, PI3K inh...

CLLerinOz

Administrator•2 years ago

6 Replies

Incorrect Interpretation of BTKis & Incidence of SPM

gardening-girl

•2 years ago

15 Replies

Evusheld and white blood cells

Has anyone found a rise in white blood cells after having Evusheld?

Lindaan

•2 years ago

4 Replies

My CLL journey

Started my journey with Calquence. So far I have made it a habit to connect with a pharmacist at Biologics that dispensed the drug. He has been helpful...

Started my journey with Calquence. So far I have made it a habit to connect wit...

Missmuffinandme

•2 years ago

11 Replies

Attention Those Taking Ibrutinib & BTK Inhibitors:Second Cancer Incidence in CLL Patients Receiving BTK Inhibitors

The publication examines the relationship between the use of ibrutinib and acalabrutinib with the incidence of second primary cancers. There are data on risk...

The publication examines the relationship between the use of ibrutinib and acala...

Yalokin

•2 years ago

28 Replies

Update after uMRD/completed antiobiotic

I am not feeling very good at all. I was hoping that after I completed the round of antibiotics on Monday, that I would be seeing some improvement. Every day...

I am not feeling very good at all. I was hoping that after I completed the roun...

McBuster

•2 years ago

5 Replies

Car-T and other cellular therapies in CLL: The Present and Future

Hi All: If you want to hear an EXCELLENT presentation on Car-T therapy by Dr. Mazyar Shadman, MD, MPH, please go to cllsociety.org. The moderator is Dr....

Hi All: If you want to hear an EXCELLENT presentation on Car-T therapy by Dr. M...

Varney

•2 years ago

2 Replies

Opinion: Why We Fall for Fad Diets, by Janet Chrzan in The Scientist

- Human beings are susceptible to the latest nutritional trends, regardless of their actual biological value. Janet Chrzan is Adjunct Assistant...

- Human beings are susceptible to the latest nutritional trends, regardless of ...

AussieNeil

Administrator•2 years ago

9 Replies

Large Bruises

I have been on imbruvica for about 27 months. My blood is mostly stable but my platelets are 8800 or here in Canada it is indicated as 91 and 150 is normal. My...

I have been on imbruvica for about 27 months. My blood is mostly stable but my p...

Kmegood

•2 years ago

11 Replies

Swollen legs on O&V

I am on O&V treatment. 200 mg of venetoclax daily so far. My lower legs have become quite swollen since starting venetoclax. "Popeye legs." Is this common? Any...

I am on O&V treatment. 200 mg of venetoclax daily so far. My lower legs have bec...

Nanaimo1

•2 years ago

8 Replies

More CLL patients are using Calquence vs Imbruvica

Calquence gaining market share on Imbruvica. More CLL patients are using Calquence vs Imbruvica and it is having an impact on AbbVie stock....

Calquence gaining market share on Imbruvica. More CLL patients are using Calque...

whmk

•2 years ago

5 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for August 2022

EVUSHELD

Atorvastatin

LET’S GET READY FOR WORLD CLL DAY ON 1 SEPTEMBER!

Allergic Skin Reaction While Using Paxlovid?

confused

2nd dose of Paxlovid

Study shows that over half of known human pathogenic diseases can be aggravated by climate change

Any experience with taking Ibrutinib with Eliquis?

What pox do you choose?

Hello. I haven't received the publications in my email for several days, what will be the reason? Thank you

Need Urgent help for CAR-T therapy

Did you know that...

My Covid experience.

Dizziness

3 IGHV Mutation Rate

CLL and oral cancer

Medicare plan D coming $2000 yearly drug copay cap looks to soon be law.

Rare Skin Disorder - PLEVA

Fibromyalgia after covid vaccine?

PI3K inhibitors (idelalisib,copanlisib, duvelisib, parsaclisib, umbralisib, zandelisib, ACP-319) in CLL: where do we go from here?

Incorrect Interpretation of BTKis & Incidence of SPM

Evusheld and white blood cells

My CLL journey

Attention Those Taking Ibrutinib & BTK Inhibitors:Second Cancer Incidence in CLL Patients Receiving BTK Inhibitors

Update after uMRD/completed antiobiotic

Car-T and other cellular therapies in CLL: The Present and Future

Opinion: Why We Fall for Fad Diets, by Janet Chrzan in The Scientist

Large Bruises

Swollen legs on O&V

More CLL patients are using Calquence vs Imbruvica

Search posts

Pinned Posts

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Posts - CLL Support | HealthUnlocked

CLL Support

All posts for August 2022

EVUSHELD

Atorvastatin

LET’S GET READY FOR WORLD CLL DAY ON 1 SEPTEMBER!

﻿Allergic Skin Reaction While Using Paxlovid?

confused

﻿2nd dose of Paxlovid

Study shows that over half of known human pathogenic diseases can be aggravated by climate change

Any experience with taking Ibrutinib with Eliquis?

What pox do you choose?

Hello. I haven't received the publications in my email for several days, what will be the reason? Thank you

Need Urgent help for CAR-T therapy

Did you know that...

My Covid experience.

Dizziness

3 IGHV Mutation Rate

CLL and oral cancer

﻿Medicare plan D coming $2000 yearly drug copay cap looks to soon be law.

Rare Skin Disorder - PLEVA

Fibromyalgia after covid vaccine?

PI3K inhibitors (idelalisib,copanlisib, duvelisib, parsaclisib, umbralisib, zandelisib, ACP-319) in CLL: where do we go from here?

Incorrect Interpretation of BTKis & Incidence of SPM

Evusheld and white blood cells

My CLL journey

Attention Those Taking Ibrutinib & BTK Inhibitors:Second Cancer Incidence in CLL Patients Receiving BTK Inhibitors

Update after uMRD/completed antiobiotic

Car-T and other cellular therapies in CLL: The Present and Future

Opinion: Why We Fall for Fad Diets, by Janet Chrzan in The Scientist

Large Bruises

Swollen legs on O&V

More CLL patients are using Calquence vs Imbruvica

Search posts

Pinned Posts

Latest poll

Part 2 of How well do you know HealthUnlocked's features? Rate yourself on this multichoice poll. Answers later or you can check Help!

Topics

Archive

Allergic Skin Reaction While Using Paxlovid?

2nd dose of Paxlovid

Medicare plan D coming $2000 yearly drug copay cap looks to soon be law.