Covid-19 2nd Positive

[Nickos66]

Hi folks,well it’s almost 12 months since my 1st Covid positive and this morning I have tested positive for the 2nd time.I have thus far received 2 vaccinations and 3 booster shots and after feeling a little off last night and testing negative,I tested again this morning after waking up with that really bad front of head and croaky! Let’s see how this one goes!

[Pekingese]

Sorry to hear you have caught Covid for the second time. Did you get Plaxiod the first time?

[Nickos66 in reply to Pekingese]

No,I didn’t require it just visited the hospital twice with low SATS @ 82%.

[Pekingese in reply to Nickos66]

I hope this time it’s much milder take care Ros 😊

[noeagaman]

I'm sorry to hear that you have gotten COVID for a second time. Let's hope that this case ends up being mild.

Chris

[Thursdaymorning]

Sorry to hear. I got COVID 4 days after starting treatment. In bed with 102-103 fever that never stopped. Thank God for prayers and good Drs. Cancer Dr said had I not been vaccinated she is pretty sure I would have died. In bed over 5 weeks. That was July. This past July got it again. This was like a bad summer cold. I've been vaccinated and boosted to the max! Still have effects from last yr. I have problems with focus, short term memory, fatigue. Does it ever end! Prayers for all

[elm1]

Keep us posted. Hopefully it’s mild. I got it a few weeks ago for the first time and took paxlovid. Wasn’t terribly sick. Got. Rebound two days after testing negative. Felt like a bad cold. I survived. Feel better!!!

[Nickos66 in reply to elm1]

Cheers Elm,I’m pretty sure it was day 3 and beyond that I started going downhill and being really unwell first time around and it was quite scary,I’d actually never been so ill in 56 years! But I’m optimistic all those jabs and boosters will have an impact on how good or bad it gets.Day 2 and I’m feeling ok,actually walking my dogs in the fields behind me,enjoying some free vitamin D 😎

[elm1 in reply to Nickos66]

Glad you’re feeling better. I’d you take paxlovid

[CClaver27]

I too just got my second positive this week after getting Covid for the first time this past May. So that's 3 months between Covid 1.0 and 2.0. I am double vaxed and double boosted (full doses with latest in Feb 22). I took Paxlovid during Covid 1.0 on the second day of symptoms and it helped keep the virus to a minimum (congestion and scratchy throat only and a little fatigue). Covid 2.0 same thing, same symptoms. I'm on day 4 taking Paxlovid. I highly recommend anyone who has CLL to talk to their doctor whether this anti-viral medication is right for you if you get Covid. Paxlovid (nirmatrelvir and ritonavir) is taken over 5 days twice a day. I have a theory though that Paxlovid may prevent your body building up the number of antibodies that help fight future infections since basically the anti-viral minimizes the virus from replicating itself. Just a theory. But the reported cases of people having a "rebound" case after taking Paxlovid (President Biden and elm1) is valid but usually right after the 5 day dosage is completed and usually mild symptoms (vs. me after 3 months). After going through FCR treatments in 2015, I monitor my immunoglobulins annually and unfortunately the key one IGG (actually all are key) is below standard range for me. I'm searching for ways to boost the IGG levels ( and IGM and IGA) if anyone has ideas besides IGG infusion. (Something more natural).

[Hidden]

Feel better!!!!

[DawnRedwood]

Not that it helps, but almost everyone I know has been COVID positive at least twice, and they all have had 2 shots and at least 2 boosters. Right now a couple I know both have tested positive for COVID for the second time, both are quite ill, but the woman is much sicker and also has a strep throat along with COVID. She's very upset that the COVID shots didn't work as well as she thought they would.

[Doggoneit101]

Oh no! Let's hope this time is like last time you got it.

[Unglorious]

How awful for you. The shots and the boosters do not work nearly as well for those of us who are taking Ibrutinib or any other BTK inhibitors. Are you attempting to get Paxlovid, we are advised to obtain those pills within the first five days of showing Covid systems. Good luck.

[Nickos66]

Hmmm…yes I’m taking Ibrutinib,have been for 2 years,everyone on this thread is recommending taking Paxlovid…it will be day 3 tomorrow,I will see how I am feeling.

[totara in reply to Nickos66]

I am in NZ. Tested positive for covid on Wednesday after two nights of bad coughing. After phone consultation with my haematologist/cancer clinic and then my doctor I am on treatment with Paxlovid for 5 days. They reduced the standard dosage as my last regular blood test showed my kidney function had got worse, but this in the past has returned to the normal range after drinking more water. I have been on ibrutinib since January 2021 but have ceased it while on Paxlovid. Will restart it three days after I stop using Paxlovid. Apart from the creatine level at my last complete blood test all my other blood counts have been in the normal range so touch wood after I am over this covid the ibrutunib will do its great job again. After a couple of days in bed I am up and about today with the sore throat and tiredness reducing. However I am a bit wary after reading stories of lond covid. Good luck with your recovery Nickos66.

[Nickos66]

Well it is day 3 and I don’t really feel any worse than I did on day 1,the headache always seems to be a none shifter despite paracetamol.I think I’m going to chance it this weekend and just treat it as a mild virus! I don’t have a temperature and no sign of a cough or wheeze and SATS are good.I really appreciate all the comments and input from you guys.It has been such a trying and stressful time these last 3 years,just when we thought we were winning the race against CLL with the game changing new drugs available we become embroiled in a fight with this deadly Virus.But staying positive and knowledgeable is our way of fighting on.Have a great weekend CLLers😊

[Nickos66]

Now on day 5 and after having a really heavy head cold on day 4 I seem to be pulling round and feel so much better…the positive test line on my Covid test is barely visible and my wife is happy I can now be in the same room! On a side note I did ring 111 NHS yesterday to enquire about Paxlovid.I eventually got thru to a human being who took details and told me a clinician would contact me pretty soon as I was high up on the priority list. Twelve hours later after not being contacted I rang again and after a 1 hour wait to speak to another human,I went thru exactly the same questions,even though she could see i had already been processed 12 hours earlier.I received a call from a local GP an hour later to be told that Paxlovid was only available Monday-Friday and that I wouldn’t qualify by Monday because it’s only effective within the first 5 days! Incredible really,moral of the story…don’t get ill mid week! It’s a good job I didn’t require it!