obinutuzumab and eyes : Anyone have issue with... - CLL Support

CLL Support

23,137 members39,744 posts

obinutuzumab and eyes

Gardengirl44 profile image
2 Replies

Anyone have issue with floaters/light flashing after obinutuzumab infusion?

Went to ED to be on safe side and following up with ophthalmologist . Definately a link….. retina is intact and no brain bleed so there is that!! Perspective .

Written by
Gardengirl44 profile image
Gardengirl44
To view profiles and participate in discussions please or .
Read more about...
2 Replies
HailMary-USA profile image
HailMary-USA

Hello, not sure if you’ve already seen your ophthalmologist, so just sharing some info.

Your symptoms are similar to what I’m experiencing from PVD with hemorrhage. (Posterior Vitreous Detachment.)

No Ob or other infusion history.

Although I’m on Calquence and my platelets are slightly low, I’ve been told this is simply an age-related issue, with risk increasing from age 50 on.

Very Common and inevitable the docs say.

A PVD itself is harmless but creates a high risk of Retinal Detachment over the next six weeks from onset.

Which is an emergency requiring urgent surgery.

So my Opthalmologist saw me on a Saturday for thorough emergency exam; again the following Friday; and scheduled again two weeks after that.

With strict instructions to call immediately (cell phone provided) with Any increase in symptoms such as flashes of light, further impaired vision, and especially the appearance of a dark curtain partially closing off field of vision.

(I skipped the ER visit because a friend with similar problem had been misdiagnosed by ER docs and ended up needing more extensive surgery as a consequence.)

It will take at least 3 months for the abnormal visual phenomena to fully resolve.

And then—bonus!—expect the other eye to develop same within one to three years.

So please be vigilant and report any changes immediately.

Of course this is just my own experience as a patient with no medical training.

Your issue could be different.

Best wishes from Mary.

Jmiah717 profile image
Jmiah717 in reply to HailMary-USA

I've had several vitreous detachment and after several years the floaters have never left. I hope it's better for the rest of you.

Not what you're looking for?

You may also like...

Acalabruitinib and Obinutuzumab

Acalabrutinib Dr is suggesting adding Obinutuzumab would like to know more about it. The...

venetoclax and obinutuzumab

good evening ( well it is in Wales) I am about to start treatment on venetoclax and obinutuzumab...

Obinutuzumab

Just wondered of anyone has had obinituzumab iv with venetoclax as this is a treatment option I...

Celiac testing and Obinutuzumab

So I am getting tested for celiac disease. I've known I had issues with gluten for years, and my...

Obinutuzumab and Venetoclax

Hi everyone, I start my Obinutuzumab infusion on October 26th. I’ve read most everyone’s...