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CLL Support

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All posts for May 2022

Evusheld and booster timing

I still cannot get a straight answer (even called Evusheld) about how long after my evusheld shot do I need to wait to get my next booster. I have heard...

I still cannot get a straight answer (even called Evusheld) about how long after...

ElMaga

•2 years ago

25 Replies

Thank You/ Imbruvica

Hello again: Thank you all for the feedback on being on imbruvica. This might help to calm my mind. We will all live long together. Thank you again

Hello again: Thank you all for the feedback on being on imbruvica. This might h...

larry54

•2 years ago

3 Replies

Imbruvica

April 2019 17P as well White blood cell is normal platelets are low of course Imbruvica doing its job.

April 2019 17P as well White blood cell is normal platelets are low of cours...

estaff01

•2 years ago

2 Replies

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5th Covid booster

I had an appointment for this tomorrow, however I have just tested positive. Will I still be offered a booster after my infection clears? I was also due to...

I had an appointment for this tomorrow, however I have just tested positive. W...

Safel

•2 years ago

3 Replies

TP53 Wild Type.

Although I have learnt much about my CLL since 2008 and CD markers,fish tests etc, I have yet to get a more fuller understanding of the above. Any better...

Although I have learnt much about my CLL since 2008 and CD markers,fish tests et...

westcountrylad

•2 years ago

4 Replies

Lymph Nodes Increasing

At what point do increasing lymph nodes mean treatment is nearing? Is it the # of nodes? The size? Where they are located? Is blood work results always in the...

At what point do increasing lymph nodes mean treatment is nearing? Is it the # o...

Wendy328

•2 years ago

2 Replies

My Hemo mentioned

Hi all, A couple of days ago my hemo mentioned that another her patients mentioned about a study where we can send of a blood samplke for a national research...

Hi all, A couple of days ago my hemo mentioned that another her patients mentio...

westcountrylad

•2 years ago

8 Replies

Richter's Transformation - Update 11-05-2022

Richter's Transformation Hello partners. I want to update the status of the Richter transform group. Three weeks ago my hematologist told me that after...

Richter's Transformation Hello partners. I want to update the status of the Rich...

Priss69

•2 years ago

15 Replies

Imbruvica

Hello all: It's been some time since I have posted anything. Just a thought.... I have been on Imbruvica since September of 2017. I see my doctor about every...

Hello all: It's been some time since I have posted anything. Just a thought.......

larry54

•2 years ago

12 Replies

New clinical info from biopsy

I guess this was also found. Don't know why I didn't see it. Anyone see anything interesting there ? Thanks Kerry

I guess this was also found. Don't know why I didn't see it. Anyone see anything...

JerrysGirl3

•2 years ago

21 Replies

How long before Acalabrutinib kicks in?

Greetings CLL friends I've been on Acalabrutinib (Calquence) for 10 days now. I did allopurinol for a week prior and told to continue with allopurinol for...

Greetings CLL friends I've been on Acalabrutinib (Calquence) for 10 days now. I...

lpac

•2 years ago

33 Replies

Costa Rica Discontinues covid protection

The newly elected president of Costa Rica was inaugurated last Sunday, May 8. One of the first things he did in his new role yesterday is to eliminate the law...

The newly elected president of Costa Rica was inaugurated last Sunday, May 8. O...

CCgroup

•2 years ago

6 Replies

New here

I'm new here, just hoping to find out more, never been on any site like this before...

I'm new here, just hoping to find out more, never been on any site like this bef...

Moorland

•2 years ago

9 Replies

Mixed news from the CLL-VR study into SARS-Cov-2 vaccination in chronic lymphocytic leukemia

A pre-proof letter in the journal Cancer Cell was released on 6 May, to report on the latest findings of the Birmingham CLL-VR study determining antibody and...

A pre-proof letter in the journal Cancer Cell was released on 6 May, to report o...

CLLerinOz

Administrator•2 years ago

Results of biopsy

Biopsy of node on jaw determined to be SLL/CLL. See attached. Happy to find out. Now I can talk to doc about choosing to start meds. Thanks everyone for your...

Biopsy of node on jaw determined to be SLL/CLL. See attached. Happy to find out....

JerrysGirl3

•2 years ago

7 Replies

Coming off medication

I’ve been on Acalabrutinib for 10 months. WBC has dropped from 101 to 12.1 which is obviously good news. However my haematologist tells me even if/when WBC...

I’ve been on Acalabrutinib for 10 months. WBC has dropped from 101 to 12.1 which...

julianlydes

•2 years ago

7 Replies

What is a high white blood cell count? I'm baffled.

I'm lucky enough to be on Watch and Wait even after ten years of CLL. I haven't really paid too much attention to the numbers in the past, but at my last blood...

I'm lucky enough to be on Watch and Wait even after ten years of CLL. I haven't ...

DMF_online

•2 years ago

31 Replies

New diagnosis, yet to see specialist

Hi all Posting on behalf of my partner 41yo female who has just been diagnosed by GP via a random blood test with CLL. Doctor doesn't know a lot about it and...

Hi all Posting on behalf of my partner 41yo female who has just been diagnosed b...

NewCll

•2 years ago

25 Replies

Good News

Diagnosed with CLL in 2019. Began treatment in 2021. Finished 12 months of Venetoclax and Obinutuzumab 2022. Had a CT scan last week. All my lymph nodes are...

Diagnosed with CLL in 2019. Began treatment in 2021. Finished 12 months of Venet...

GerryPL

•2 years ago

28 Replies

Fatigue

Hi Everyone , i’m new to this Forum . Well i’ve been following it since my diagnosis last november but this is my first post . i’m on watch and wait and don’t...

Hi Everyone , i’m new to this Forum . Well i’ve been following it since my diagn...

Theruff1

•2 years ago

24 Replies

Evusheld and sports

I had my 5th jab last week, I always produced antibodies but surprisingly after some discussion with my doc I additionally will get Evusheld on Tuesday next...

I had my 5th jab last week, I always produced antibodies but surprisingly after ...

Reinhard

•2 years ago

10 Replies

Reaction to 5th covid jab

Hi not sure if I am worrying about nothing. I had my 5th covid jab this morning. I was given Moderna, my four others have all been Pfizer. I commented on the...

Hi not sure if I am worrying about nothing. I had my 5th covid jab this morning...

kitchengardener2

•2 years ago

23 Replies

In case of emergencies

Was wondering does any one use a medical alert bracelet, necklace or card for any kind of emergency?

Was wondering does any one use a medical alert bracelet, necklace or card for an...

Arro

•2 years ago

13 Replies

Vitamin B12 help with CLL?

Dose vitamin B12 increase HAEMOGLOBIN.

tms99532

•2 years ago

8 Replies

5th jab

Good morning all, having my 5th covid jab this morning.

kitchengardener2

•2 years ago

20 Replies

Rare steak & Sushi

Is it ok to eat rare steak and sushi whilst undergoing V&O treatment? In the quest for successful and trouble free treatment, it’s no problem to omit these two...

Is it ok to eat rare steak and sushi whilst undergoing V&O treatment? In the que...

Miu48

•2 years ago

11 Replies

Zanubrutinib My doc wants to start me on this when my numbers are good

I have nodes particularly in my neck area and one in my chest that are growing slowly. Only the chest node is about 2-3". My wbc has been mainly in the high...

I have nodes particularly in my neck area and one in my chest that are growing s...

JerrysGirl3

•2 years ago

42 Replies

4th Obinutuzumab infusion this week - that’ll be cycle Number 1 completed…

So, I now feel very relaxed about heading to the ‘chemotherapy village’ at Guy’s Cancer Centre. I’m a regular, and will be for the next 11 months. This...

So, I now feel very relaxed about heading to the ‘chemotherapy village’ at Guy’s...

Miu48

•2 years ago

14 Replies

First real night sweat

Hi All, I have just had my first introduction to a medium night sweat, having been diagnosed in June 2018. Being an 'Olympic Class Worrier', I am off course...

Hi All, I have just had my first introduction to a medium night sweat, having b...

Vindicatrix

•2 years ago

11 Replies

CLL Society This Week (USA Support Organization) - With Online Resources Available to All CLL Patients Worldwide

Sign Up to have CLL Society’s newsletter: This Week! delivered to your email inbox every Tuesday!: https://cllsociety.org/newsletter-sign-up/ ...

lankisterguy

Volunteer•2 years ago

1 Reply

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for May 2022

Evusheld and booster timing

Thank You/ Imbruvica

Imbruvica

5th Covid booster

TP53 Wild Type.

Lymph Nodes Increasing

My Hemo mentioned

Richter's Transformation - Update 11-05-2022

Imbruvica

New clinical info from biopsy

How long before Acalabrutinib kicks in?

Costa Rica Discontinues covid protection

New here

Mixed news from the CLL-VR study into SARS-Cov-2 vaccination in chronic lymphocytic leukemia

Results of biopsy

Coming off medication

What is a high white blood cell count? I'm baffled.

New diagnosis, yet to see specialist

Good News

Fatigue

Evusheld and sports

Reaction to 5th covid jab

In case of emergencies

Vitamin B12 help with CLL?

5th jab

Rare steak & Sushi

Zanubrutinib My doc wants to start me on this when my numbers are good

4th Obinutuzumab infusion this week - that’ll be cycle Number 1 completed…

First real night sweat

CLL Society This Week (USA Support Organization) - With Online Resources Available to All CLL Patients Worldwide

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