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SPECIAL FEATURE: CLL Resources
CLL Society aims to provide all those living with CLL/SLL the resources they need to conquer their diagnosis. That’s why we have cultivated materials such as a custom spreadsheet to track your lab results along with tables to help you understand what normal lab values are, a list of Expert Physicians from around the world, our Patient Education Toolkit for an overview of all things CLL/SLL, and more. Our new website features the a webpage where all our CLL/SLL resources and materials can be conveniently found in one place.
Learn More cllsociety.org/resources/
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WHAT'S NEW IN CLL/SLL
ASH 2021: Dr. Constantine Tam on Novel BCL2 Inhibitor BGB-11417 for Patients with Relapsed/Refractory B-Cell Malignancies
The BCL2 inhibitor Venetoclax has been very effective for treating CLL and SLL. Now, next-generation BCL2 inhibitors are hoping to improve the safety and efficacy of this class of drugs. We spoke to Dr. Constantine Tam about the latest results from a Phase 1 clinical trial testing the novel BCL2 inhibitor BGB-11417.
Read More cllsociety.org/2022/04/ash-...
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COVID-19 UPDATES
ASH 2021: Dr. Larry A. Saltzman Discusses SARS-CoV-2 Antibody Levels in Blood Cancer Patients after a Third Sars-Cov-2 “Booster” Vaccination
At the annual ASH 2021 meeting, the most recent data from the Leukemia and Lymphoma Society (LLS) study looking at the response blood cancer patients have to a third dose of the COVID-19 vaccine was presented. By now we know the recommended number of COVID-19 vaccine doses for people who are immunocompromised is five doses, but this data may still be of interest to consider how additional COVID-19 vaccine doses can be of benefit.
Read More cllsociety.org/2022/04/ash-...
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UPCOMING EVENTS - Is a Clinical Trial Right for You?
Monday, May 16th at 11:00 AM PT / 2:00 PM ET
Clinical trials can provide the most advanced treatments for CLL/SLL before they are commercially available. Adrian Wiestner, MD and Kaitlin Kennard, RN will share key information about clinical trials so you can make an informed decision on whether participating in one is right for you. Fellow CLL patient Christina Rodriguez Fuller will also be joining us to share her experience participating in a clinical trial as part of her frontline treatment.
Register Now cllsociety.org/2022/04/ash-...
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EDUCATION ON-DEMAND
Health and Wellness: Beyond the Medicine Cabinet
BTK inhibitors and BCL2 inhibitors are widely used to treat CLL/SLL and are highly effective. However, some patients still need further treatment even after receiving these drugs. Watch our video of Dr. Koffman explaining the ASH 2021 abstract about the new outcomes data for patients who were previously treated with these two drug classes.
Watch Now cllsociety.org/2022/04/cll-...
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Why Do These Matter in CLL: Long-term Data, Side-Effect Management, and Staying Healthy?
When you first receive a diagnosis of CLL/SLL it can be overwhelming when you try to understand treatment options, associated side effects, and potential complications. Join Dr. Jennifer Woyach, a noted hematologist-oncologist, along with patient advocate Therese Conlin, as they discuss current and emerging therapies, strategies to manage side-effects, and patient-caregiver health maintenance. Learn about real-world and long-term data findings on BTK inhibitors and other treatments and how they impact quality of life for patients with CLL/SLL.
Watch Now cllsociety.org/2022/04/why-...
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LIVING WITH CLL - Patient Advice - Paying It Forward
Sometimes the best advice comes from those who have traveled the path before you. CLL Society recently asked ten individuals living with CLL/SLL to share advice they wish they had known earlier. We are now pleased to share a compilation video of their advice. If you want to hear more from any of the individuals featured, be sure to check out their individual video.
Learn More cllsociety.org/2021/11/pati...
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Help Us Better Understand CLL – Paid Opportunity
Pinpoint Patient Recruiting is looking to speak with patients who have been diagnosed with CLL to participate in a 60-minute online interview about their experiences. If you are a US resident and have been diagnosed with CLL, you may be eligible to participate. Those who qualify and participate in the study will receive at least $125 as a thank you.
Take the Survey cllsociety.org/2022/04/help...
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Patient Preference Survey - Paid Opportunity
CLL Society is a strong supporter of making sure the patient voice is elevated in decisions that directly impact them. In partnership with RTI-Health Solutions (RTI-HS), a non-profit research organization, we are providing CLL/SLL patients the opportunity to share what aspects of treatment matter most to them. This survey will help make patient needs and preferences known and be used to guide the development of future treatments. For the time commitment required, all participants will be generously compensated.
Take the Survey cllsociety.org/2022/03/pati...
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