Posts - CLL Support | HealthUnlocked

CLL Support

22,532 members • 38,709 posts

All posts for August 2021

CLL newbie on forum

Hi all! New here, any info is appreciated. ~Lady

LadyWingshot

•3 years ago

10 Replies

Anyone have information on Quercetin?

I have been reading about Quercetin - don't know enough to make any determinations good or bad but the information out there relative to CLL is very...

I have been reading about Quercetin - don't know enough to make any determinatio...

CBME

•3 years ago

13 Replies

Safe to travel London and the South of England, thoughts on huggin and interacting with your adult child after not seeing them for 18 months

Hi All, Has anyone got any thoughts or relevant information regarding a 2 week holiday I intend to take soon, to London and the South of England. I have had my...

Hi All, Has anyone got any thoughts or relevant information regarding a 2 week h...

Vindicatrix

•3 years ago

32 Replies

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Post Pfizer booster

This is day four and I hope I can actually get back to my normal routine. My lymph nodes in my armpit swelled to 90 mm. In my second shot I had a similar, but...

This is day four and I hope I can actually get back to my normal routine. My lym...

StobiMan

•3 years ago

12 Replies

Dad diagnosed with CLL

Hi everyone, my dad (almost 65) was just recently diagnosed with CLL. He was told it was suspected 3 years ago but was just diagnosed now. I made the mistake...

Hi everyone, my dad (almost 65) was just recently diagnosed with CLL. He was to...

Rubymom

•3 years ago

12 Replies

Vitamins for immune health

Vitamins C, D and Zinc are being mentioned as being good for immune health. Should we be taking them, and if so, how much of each would be save

Vitamins C, D and Zinc are being mentioned as being good for immune health. Sho...

Lindaan

•3 years ago

15 Replies

First vaccine, which to choose?

Hi all, It’s been nearly 5 months since my last Obinutuzimab and I will be getting my first Covid vaccine soon (Dr Lamanna wanted me to wait til the end of...

Hi all, It’s been nearly 5 months since my last Obinutuzimab and I will be gett...

NaturalWaze

•3 years ago

5 Replies

CAR-T post 9 months

Hi all Just the latest update on me - I’m still MRD negative 9 months after my CAR-T for aggressive CLL at the Peter Mac in Melbourne. Sadly the trial has now...

Hi all Just the latest update on me - I’m still MRD negative 9 months after my C...

Debinoz

•3 years ago

44 Replies

To boost or not to boost

Finally got a reply from my haematologist saying yes to a booster jab, yes at the same time as flu jab and that any make of vaccine is acceptable as a...

Finally got a reply from my haematologist saying yes to a booster jab, yes at t...

skytortoise

•3 years ago

12 Replies

Possible role of melatonin in CLL

Would our admins have any views on this? I value their feedback more than any paper. Requires Authentication Pre-published online by De Gruyter August 5,...

Would our admins have any views on this? I value their feedback more than any ...

nuji

•3 years ago

3 Replies

Breaking News! The AZD7442 PROVENT Phase III Prophylaxis Trial met its primary endpoint in preventing symptomatic COVID-19!

Clinical Trial Breaking News Today! CLL Society is delighted to share today's readout from the AZD7442 PROVENT Phase III Prophylaxis Trial, which met its...

Clinical Trial Breaking News Today! CLL Society is delighted to share today's re...

bkoffman

CLL CURE Hero•3 years ago

37 Replies

Booster vaccine

Is there any protocol to be taken when getting the booster vaccine eg. discontinuing Ibrutinib prior to getting the booster and waiting a few days after...

Is there any protocol to be taken when getting the booster vaccine eg. disconti...

desti

•3 years ago

3 Replies

Covid in Florida

It is very wrong to scare people this way. Many people need to travel to Florida for serious reasons - seeing family, work, health care. We plan to go to...

It is very wrong to scare people this way. Many people need to travel to Flori...

ikahan

•3 years ago

12 Replies

MONOCLONAL ANTIBODY INFUSIONS

There was a post today on our site asking about availability of these infusions before we get infected. Instead of posting this as a reply on that site, I...

There was a post today on our site asking about availability of these infusions ...

wizzard166

•3 years ago

3 Replies

Interesting news - read all

https://www.ft.com/content/4f71162d-125f-46cc-9993-65b47c7ad772 Regards. Sue

https://www.ft.com/content/4f71162d-125f-46cc-9993-65b47c7ad772 Regards. Sue ...

wroxham-gb

•3 years ago

11 Replies

Dr. Koffman's commentary on the FDA authorization for a 3rd booster dose of the Moderna or Pfizer vaccine for immunocompromised patients

CLL Society's Booster Newsflash Update! The official FDA and CDC statements have been published since we posted our initial Newsflash: FDA Okays Third Vaccine...

CLL Society's Booster Newsflash Update! The official FDA and CDC statements have...

bkoffman

CLL CURE Hero•3 years ago

3 Replies

booster + 1

Okay thinking aloud. If we need a booster to get responses closer to what "regular" folks do, and if "regular" folks are now getting a booster because the...

Okay thinking aloud. If we need a booster to get responses closer to what "re...

ElMaga

•3 years ago

8 Replies

Dos’ & Don’ts’ for CLLers.

I’m a bit apprehensive about this post, but it’s about a wish list of dos and don’ts that dummies like me would cherish. It would be great if people in the...

I’m a bit apprehensive about this post, but it’s about a wish list of dos and do...

nuji

•3 years ago

10 Replies

How Good is the Level of Scientific Evidence Underlying the National Comprehensive Cancer Network Clinical Practice (NCCN) CLL Guidelines?

Our community support team take pride in maintaining reliable content in this community. When your life depends on it, you need confidence that what you are...

Our community support team take pride in maintaining reliable content in this co...

AussieNeil

Founder Admin•3 years ago

3 Replies

Calquence

Experience of people on calquence?

200185

•3 years ago

2 Replies

Chronic Lymphocytic Leukaemia (CLL) 2020 Australian Study by Centre for Community Driven Research has been published

With thanks to the many members of our community who contributed their time last year to this comprehensive survey of those living with CLL and their carers,...

With thanks to the many members of our community who contributed their time last...

AussieNeil

Founder Admin•3 years ago

2 Replies

Obinutuzumab and diabetes

Has anyone here taken obinutuzumab infusion and had diabetes. How high did your blood sugar spike and what did you do about it?

Has anyone here taken obinutuzumab infusion and had diabetes. How high did your ...

Blackdog2206

•3 years ago

2 Replies

Hematoma & Cll

Dear CLL Warriors 💜 I have a few Q’s. I had a Hysteroscopy and 2 other procedures done on Friday the 13th. The surgery was not completed as the surgeon cut a...

Dear CLL Warriors 💜 I have a few Q’s. I had a Hysteroscopy and 2 other procedur...

OkanaganCLL

•3 years ago

1 Reply

On the end of COVID Restrictions: the CLL patient’s dilemma

We are told that, as CLL patients, we continue to be at risk from COVID even if we are vaccinated. Yet the world is opening up, despite the Delta variant. Do...

We are told that, as CLL patients, we continue to be at risk from COVID even if ...

CLL_Canada_Group

•3 years ago

12 Replies

Florida opens mAb centers for early treatment of Covid

florida has opened 15 monoclonal antibody treatment centers; each apparently has the capacity to treat 300 COVID-positive individuals per day. People can...

florida has opened 15 monoclonal antibody treatment centers; each apparently has...

ikahan

•3 years ago

11 Replies

I have been on Calquence since January 2021, and have recently gotten muscle aches and very fatigued. Has anyone experienced this?

Muscle weakness on Calquence

Mackiec1108

•3 years ago

11 Replies

Oncologist recommended no booster

When I had my second dose of Moderna last March, I had hives from head to toe very bad. Laid in bed for days with ice packs. My oncologist said if they come...

When I had my second dose of Moderna last March, I had hives from head to toe ve...

Vacationmountaintop

•3 years ago

14 Replies

What about About Monoclonal Antibodies

For those of us who test negative for antibodies, should we consider trying to get an infusion of Monoclonal Antibodies. Does anyone know how long such an...

For those of us who test negative for antibodies, should we consider trying to g...

Lindaan

•3 years ago

8 Replies

Booster shot?

After having very large swollen lymph node and large rash from second Pfizer vaccine is it advisable to have the booster?

After having very large swollen lymph node and large rash from second Pfizer va...

Grandmajoanie

•3 years ago

14 Replies

Vaccine Effectiveness Wanes over time - Boosters Necessary

@CDCgov is finally admitting what I have been arguing for over a month: vaccine effectiveness wanes over time and breakthrough cases become more common and...

@CDCgov is finally admitting what I have been arguing for over a month: vaccine ...

whmk

•3 years ago

6 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for August 2021

CLL newbie on forum

Anyone have information on Quercetin?

Safe to travel London and the South of England, thoughts on huggin and interacting with your adult child after not seeing them for 18 months

Post Pfizer booster

Dad diagnosed with CLL

Vitamins for immune health

First vaccine, which to choose?

CAR-T post 9 months

To boost or not to boost

Possible role of melatonin in CLL

Breaking News! The AZD7442 PROVENT Phase III Prophylaxis Trial met its primary endpoint in preventing symptomatic COVID-19!

Booster vaccine

Covid in Florida

MONOCLONAL ANTIBODY INFUSIONS

Interesting news - read all

Dr. Koffman's commentary on the FDA authorization for a 3rd booster dose of the Moderna or Pfizer vaccine for immunocompromised patients

booster + 1

Dos’ & Don’ts’ for CLLers.

How Good is the Level of Scientific Evidence Underlying the National Comprehensive Cancer Network Clinical Practice (NCCN) CLL Guidelines?

Calquence

Chronic Lymphocytic Leukaemia (CLL) 2020 Australian Study by Centre for Community Driven Research has been published

Obinutuzumab and diabetes

Hematoma & Cll

On the end of COVID Restrictions: the CLL patient’s dilemma

Florida opens mAb centers for early treatment of Covid

I have been on Calquence since January 2021, and have recently gotten muscle aches and very fatigued. Has anyone experienced this?

Oncologist recommended no booster

What about About Monoclonal Antibodies

Booster shot?

Vaccine Effectiveness Wanes over time - Boosters Necessary

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