Posts - CLL Support | HealthUnlocked

CLL Support

22,532 members • 38,709 posts

All posts for August 2021

Concerns about the level of protection of Covid vaccine while on Obinutuzimab and Venetoclax.

Hi I have recently had my last infusion of Obinutuzimab, and am taking 300g Venetoclax daily. I still haven't decided whether to have the covid vaccine....

Hi I have recently had my last infusion of Obinutuzimab, and am taking 300g Vene...

•3 years ago

Do We Stay On Ibrutinib Forever?

I was just reading a new post in which the question was asked about number of years until relapse when on Ibrutinib. This raised a different question for me;...

I was just reading a new post in which the question was asked about number of ye...

•3 years ago

Acceptable hospital procedure?

I had a CT scan today. At the end of the scan, when the nurse was removing the canular, he tore off a strip of tape and stuck it to his shirt. He then...

I had a CT scan today. At the end of the scan, when the nurse was removing the ...

•3 years ago

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CLL and Dermatology by Patient Power Thursday, August 12th at 2 pm Pacific time / 5 pm Eastern USA

https://patientpower.info/events/event/cll-and-dermatology/2021-08-12/1400/ Thursday, August 12th at 2 pm Pacific/5 pm Eastern - Did you know more than 25% of...

https://patientpower.info/events/event/cll-and-dermatology/2021-08-12/1400/ Thu...

Volunteer•3 years ago

Response from the FDA re Regeneron

This is part of the response I received from the FDA when I asked when the Regeneron Monoclonal Antibody cocktail will be available for use as a preventative...

This is part of the response I received from the FDA when I asked when the Regen...

•3 years ago

A new challenge........

My real name is not Hamish_McTavish_III as you may have guessed! That is the pet name we have for one of our lovely 10 year old Flatcoated Retrievers. No doubt...

My real name is not Hamish_McTavish_III as you may have guessed! That is the pet...

Hamish_McTavish_III

•3 years ago

CLL, Imbruvica and the vaccine

I'm looking for someone who has CLL and is on Imbruvica. I am concerned about the effect of the vaccine on my T-cells on the Imbruvica. I am scared to death...

I'm looking for someone who has CLL and is on Imbruvica. I am concerned about t...

•3 years ago

Covid Anti-body Tests through LLS

The Leukemia and Lymphoma Society has set up a registry and is offering a testing program to patients. Sign up through the LLS COVID -19 Patient Registry...

The Leukemia and Lymphoma Society has set up a registry and is offering a testin...

•3 years ago

LLS Covid-19 Vaccine Trial: Antibody response to SARS-CoV-2 vaccines in patients with hematologic malignancies

Posted July 29, 2021 by Dr. Brian Koffman...

Posted July 29, 2021 by Dr. Brian Koffman...

Volunteer•3 years ago

How long can you take Ibrutinib for?

Hi all, I have just started treatment of Ibrutinib (4 months) and wondering generally how long people are on this for? I know this is a ‘how long is a piece...

Hi all, I have just started treatment of Ibrutinib (4 months) and wondering gen...

•3 years ago

Is there something wrong with my CBC? Please help.

Good day everyone. I am very afraid of what I have right now. I have almost everyday light headedness. I did blood work up such as cbc, lipid profile, ast,...

Good day everyone. I am very afraid of what I have right now. I have almost ever...

•3 years ago

Damn Mosquitoes

About 2 years before my cLL diagnosis I started to get bad reactions to insect bites. First noticed it in Miami where I got bitten by a bed bug. Following on...

About 2 years before my cLL diagnosis I started to get bad reactions to insect b...

•3 years ago

Holiday

Just returned from a weeks holiday in Menorca. I admit the holiday excitement was replaced by apprehension, I managed to get there, have a safe holiday and...

Just returned from a weeks holiday in Menorca. I admit the holiday excitement wa...

•3 years ago

Good News for Immunocompromised

https://www.healio.com/news/infectious-disease/20210730/fda-authorizes-regeneron-antibody-cocktail-for-postexposure-prophylaxis-of-covid19?utm_medium=social&utm

https://www.healio.com/news/infectious-disease/20210730/fda-authorizes-regeneron...

•3 years ago

Ibrutinib and hypoglycemia

has anyone on Ibrutinib experienced hypoglycemia as a side effect? In case I need to go off Ibrutinib, what is now the equivalent drug, with equally low side...

has anyone on Ibrutinib experienced hypoglycemia as a side effect? In case I ne...

•3 years ago

Too tired

OMG just lost what I wrote. Too tired going to bed😧😬

OMG just lost what I wrote. Too tired going to bed😧😬

•3 years ago

Red mark on my left leg like a rash. comes and goes depending on walking and ice pack. It's been 2 days.

I am taking 320mg of Brukinsa. Anyone experiencing this.

I am taking 320mg of Brukinsa. Anyone experiencing this.

•3 years ago

Do all CLLers have prolymphocytes present?

Do all CLLers have prolymphocytes present?

Do all CLLers have prolymphocytes present?

•3 years ago

Mouth Sores: Red Light laser therapy

Has any one tried red light laser therapy for mouth sores? See...

Has any one tried red light laser therapy for mouth sores? See...

•3 years ago

On W&W and need a Parathyroidectomy

I am scheduled to have parathyroid surgery. I am on W&W for 1-1/2 years. WBC at 18.40 and Lymph #12.44. Very nervous about infection, time of healing. Any...

I am scheduled to have parathyroid surgery. I am on W&W for 1-1/2 years. WBC a...

•3 years ago

Wedding Blues

Screwed up all my courage to attend the wedding service for my friend’s daughter which was postponed for a year. Not confident enough to risk the reception and...

Screwed up all my courage to attend the wedding service for my friend’s daughter...

•3 years ago

Acalabrutinib anniversary

Hi everyone never posted before, never really needed to, as practically all my questions have mostly been answered in the feeds. A big thank you to all for...

Hi everyone never posted before, never really needed to, as practically all my q...

•3 years ago

Worried and Scared - Blood Work CBC

Hi Everyone, This is my first post here and really can use everyone’s comfort. Last week I was severely sick with strep throat and my body did not react very...

Hi Everyone, This is my first post here and really can use everyone’s comfort. ...

•3 years ago

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