CLL newbie on forum

[LadyWingshot]

Hi all!

New here, any info is appreciated.

~Lady

[lankisterguy Volunteer]

Hi LadyWingshot,-

Welcome to the club none of us wanted to join.

You may want to start with this Pinned Post:

healthunlocked.com/cllsuppo...

there are many links and suggestions there- as you read through all of them please ask any questions that arise.

-

For most of us it takes 6 to 12 months to calm our emotional panic and fully embrace that like aging or high blood pressure, CLL will not kill us today. And if we adjust our sanitation habits, eat healthy, maintain our weight, exercise regularily, we may live a normal life span thanks to new treatments only available in the last 5-10 years.

-

Len

[marcyh]

Welcome to a place that will not only provide you with information, but experience and support. Best wishes as you navigate through the twists and turns that are already apparent in your journey, There is a lot of hope ahead as well with a wealth of experts, research and treatments for CLL.marcyh

[bkoffman CLL CURE Hero]

LadyWingshot,Take your time, You have time to learn. HU is a great site. CLLSociety.org is there to help too with physician curated information, support and services,

Stay strong, we are in this together

Brian Koffman EVP and CMO, CLLSociety

[kablea]

Sitting down is probably the worse thing you can do! Get outside and exercise as much as you can. It's the lifesaver.

[LeoPa]

I see from your profile that your blood count rose a lot since you were diagnosed. From what I learned on this site is that vitamin c can be detrimental and make the progression faster. You need to rethink those intravenous vitamin c infusions. You don't mention what other supplements you take. Supplementation with this blood disorder is a minefield. Tread carefully.

[Phil4-13]

You’re are definitely in the right place. I’m in W&W. Doctors figured I’ve had this for 3 years. My WBC climbed from 24,000 to now 72,000. It has slowed down its climb somewhat at this time. That relaxes me, but I’ve learned through this site, that research is moving at tremendous strides. I’m 72 years old and staying in healthy habits of diet(Uhh, I do love my coffee and chocolate!) and daily activities for my mind and body. I feel good and thank God every day! Sandra🙂

[Smakwater]

LadyWingshot,

Please be comfortable with any specific questions that you may have. I encourage you to pursue life's substance enthusiastically and joyously while learning and growing in your personal pursuit to manage this chronic illness. There is a lot of good information and treatments available, however, it is easy to get saturated. Pace yourself appropriate to your life.

Having a CLL specialist to guide you, is in my view a paramount priority.

Consider Starting here > cllsociety.org/wp-content/u...

Advocate for your well being, Quality of life, and a cure,

JM

[Jacksc06]

Hi. Welcome to the family, Ask questions, update us with your progress or just have a rant. We are here to support you.

[bennevisplace]

LadyW, welcome. Here the consensus view is to get a CLL specialist on board ASAP. I had a hematologist from day one, and a naturopath, but I always deferred to the former. It's important they know what supplements you're taking.

[Ibru]

Go to CLLSociety.org Read everything, subscribe to their newsletter.