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CLL Support

23,137 members • 39,744 posts

All posts for June 2021

3rd dose vaccine

Just came across an interesting article stating the benefits of a 3rd vaccine shot given to organ transplant recipients ....

Just came across an interesting article stating the benefits of a 3rd vaccine sh...

Monetfan2017

•3 years ago

3 Replies

New drug cuts deaths among patients with no Covid antibodies

New drug cuts deaths among patients with no Covid antibodies...

Harvist

•3 years ago

7 Replies

Kappa/Lambda Question

Met with a new haematologist yesterday to discuss my SLL diagnosis and I was hit with a myeloma potential diagnosis as well because I had a lambda <1% which he...

Met with a new haematologist yesterday to discuss my SLL diagnosis and I was hit...

Waves01

•3 years ago

3 Replies

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Low Hemoglobin

Wondering if anyone runs a low hemoglobin level ( without bleeding or low iron ) while on ibrutinib or other BTKs ? I have been running 11.7 and 11.8 Thanks...

Wondering if anyone runs a low hemoglobin level ( without bleeding or low iron )...

Davidcara

•3 years ago

5 Replies

Dental Graph for dental implant

I have CLL since 2010 currently on imbrutinib. I have to have a tooth pulled and wondering if possible dental bone graph for a dental implant would be ok for...

I have CLL since 2010 currently on imbrutinib. I have to have a tooth pulled an...

DaveCll

•3 years ago

14 Replies

I have had both doses of the Pfizer vaccine, while they applauded me after I got my 2nd dose, 90 days later I found that I have no immunity!

I took Ibrutinib prior to January 20 when it gave me AFib and a few other problems, then stated Venetoclax in July of 2020, and in August started the first of...

I took Ibrutinib prior to January 20 when it gave me AFib and a few other proble...

KevinCLLITP

•3 years ago

8 Replies

Latest consultation

Good morning, Dr Munro called yesterday after my blood tests. White cells 208 and Heamaglobin 96. Not as good as I would have liked but no real problems and...

Good morning, Dr Munro called yesterday after my blood tests. White cells 208 ...

kitchengardener2

•3 years ago

9 Replies

Burning skin sensation

I’m on W and W and tonight I am feeling a burning sensation on right hip and lower back right side . I can’t say it’s an ache... more a burning. My lymph...

I’m on W and W and tonight I am feeling a burning sensation on right hip and low...

Gardengirl44

•3 years ago

14 Replies

Calquence swelling and blood in urine

After 18 days on imbruvica my wife was hospitalized due to side effects. 30 days later put on Calquence. Now, after 24 days she has random blood visible in...

After 18 days on imbruvica my wife was hospitalized due to side effects. 30 days...

c8385m

•3 years ago

6 Replies

Acalabrutinib

Thanks to everyone for your advice. My husband has started the drugs and is doing well so far.

Thanks to everyone for your advice. My husband has started the drugs and is doi...

paddlerwhite

•3 years ago

1 Reply

New drug zanubrutinib

Hi there. Wondering if anyone on this site takes a drug called Zanubrutinib for their CLL?

Hi there. Wondering if anyone on this site takes a drug called Zanubrutinib for ...

Bsv39

•3 years ago

2 Replies

Best browser for this site?

I've been using the Chrome browser for this site, but the formatting is confusing, thus sorry if I haven't posted or responded well. I also have Edge and...

I've been using the Chrome browser for this site, but the formatting is confusin...

E-Lynn

•3 years ago

11 Replies

Venetoclax and tiredness

Hi, I'm on week four of the ramp up. My bloods are good but since I've upped the dosage to 200mg I've noticed an increase in drowsiness. I nearly always fall...

Hi, I'm on week four of the ramp up. My bloods are good but since I've upped the...

Kenn123

•3 years ago

32 Replies

Predicting effectiveness of CAR-T therapy

“…our data may help identify patients at risk of early loss of CAR T cells…” https://www.nature.com/articles/s43018-021-00207-7

“…our data may help identify patients at risk of early loss of CAR T cells…” ht...

Luap001

•3 years ago

1 Reply

Overcoming resistance to BCR inhibitors

This is an interesting paper particularly because of the counterintuitive approach: If the brake stops working, what is one to do? Floor it! Perhaps this will...

This is an interesting paper particularly because of the counterintuitive approa...

Luap001

•3 years ago

1 Reply

Superior vena cava syndrome.

Hi all, My bf was diagnosed CLL in 2017. He’s been taking imbruvica for the last 3years with fantastic results. NED as far as the oncologist can say. Here’s...

Hi all, My bf was diagnosed CLL in 2017. He’s been taking imbruvica for the las...

Beefcakesgirl

•3 years ago

7 Replies

Presentation on Mechanisms of resistance to targeted therapies in CLL - an EHA slide presentation

Complex presentation for those of you that like to have a deep dive into the biology and clonal dynamics of resistance....

Complex presentation for those of you that like to have a deep dive into the bio...

Jm954

Administrator•3 years ago

1 Reply

Zanubrutinib looks promising on all fronts in first interim analysis of ALPINE Trial - Ibrutinib v Zanubrutinib in R/R CLL - report from EHA

Dr Pete Hillmen (UK) reported on this at EHA on 11th June 2021 Background First-generation BTK inhibitor ibrutinib is a standard of care in CLL/SLL around the...

Dr Pete Hillmen (UK) reported on this at EHA on 11th June 2021 Background First-...

Jm954

Administrator•3 years ago

13 Replies

CLL for 14 years: Venclexta for 4 years: I have COVID antibodies after vaccination !!

. I am14 years into my dance with CLL and currently four years on Venclexta. My 2nd jab was 2/23/21. My first LLS draw on 4/13/21 showed 55.12 unitls/mL...

. I am14 years into my dance with CLL and currently four years on Venclexta. My ...

E-Lynn

•3 years ago

7 Replies

Fewer antibodies with second test

Took my second Antibody test ; while I'm happy I still have antibodies (they were very low to begin with), I now have fewer. I wonder if the ibrutinib...

Took my second Antibody test ; while I'm happy I still have antibodies (they wer...

ElMaga

•3 years ago

26 Replies

The health of our T cells…

I am wondering if the health of T cells in CLL generally declines if there is disease progression. If it does, I would think that it might make sense to have...

I am wondering if the health of T cells in CLL generally declines if there is di...

Luap001

•3 years ago

8 Replies

Changing meds: Imbruvica to Calquence

I am a 23 year CLL patient. I have been on Imbruvica for 7 years. I now want to move to Calquence. I need to know details, risks, transition period any other...

I am a 23 year CLL patient. I have been on Imbruvica for 7 years. I now want to...

999990Bruno

•3 years ago

10 Replies

Hi just asking as my partner started this treatment 2 weeks ago

Hi has anyone had holidays while on O&V treatment ? In our own country

Hd07

•3 years ago

8 Replies

No Antibodies after Vaccine

Just got my results back for Covid Antibodies after Vaccination. It was Negative with a reported level of less than 0.4(U/mL). I took two doses of Pfizer, 8...

Just got my results back for Covid Antibodies after Vaccination. It was Negative...

MovingForward4423

•3 years ago

27 Replies

Immune Boosting Power Of Mushrooms

I receive a magazine free every month called Life Extension, and there are always fascinating articles on health and natural substances and life extension....

I receive a magazine free every month called Life Extension, and there are alway...

wizzard166

•3 years ago

2 Replies

AbbVie Pharm--positive phase 3 for CLL!

Hey, all, see this article about AbbVie pharma! AbbVie Sees Continued Positive Results for Leukemia Treatment 7:05 am ET June 11, 2021 (Dow Jones) Print By...

Hey, all, see this article about AbbVie pharma! AbbVie Sees Continued Positiv...

Vlaminck

•3 years ago

21 Replies

Pemphigus and CLL

Hi all, since the last time I post my life has not become easier, still struggling with everyday living, not eating, not talking... Until today we all believed...

Hi all, since the last time I post my life has not become easier, still struggli...

DivineLight

•3 years ago

6 Replies

Antibody testing

I noticed from one or 2 comments that after the 2nd jab people had not built up any antibodies.Can anybody tell me which accredited lab people have had this...

I noticed from one or 2 comments that after the 2nd jab people had not built up ...

studi

•3 years ago

11 Replies

The lowdown on Covid vaccine efficacy and blood cancer

Around 152,000 people in the UK have died with Covid19 on their death certificate. Around 230,000 people in the UK with blood cancer have been shielding during...

Around 152,000 people in the UK have died with Covid19 on their death certificat...

bennevisplace

•3 years ago

6 Replies

Long-term effects of ibrutinib on blood pressure in patients with CLL

It seems that the hypertension ( HTN) seen by patients being treated with Ibrutinib continues to rise year on year with treatment. At 5 years 74% of...

It seems that the hypertension ( HTN) seen by patients being treated with Ibruti...

Jm954

Administrator•3 years ago

41 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for June 2021

3rd dose vaccine

New drug cuts deaths among patients with no Covid antibodies

Kappa/Lambda Question

Low Hemoglobin

Dental Graph for dental implant

I have had both doses of the Pfizer vaccine, while they applauded me after I got my 2nd dose, 90 days later I found that I have no immunity!

Latest consultation

Burning skin sensation

Calquence swelling and blood in urine

Acalabrutinib

New drug zanubrutinib

Best browser for this site?

Venetoclax and tiredness

Predicting effectiveness of CAR-T therapy

Overcoming resistance to BCR inhibitors

Superior vena cava syndrome.

Presentation on Mechanisms of resistance to targeted therapies in CLL - an EHA slide presentation

Zanubrutinib looks promising on all fronts in first interim analysis of ALPINE Trial - Ibrutinib v Zanubrutinib in R/R CLL - report from EHA

CLL for 14 years: Venclexta for 4 years: I have COVID antibodies after vaccination !!

Fewer antibodies with second test

The health of our T cells…

Changing meds: Imbruvica to Calquence

Hi just asking as my partner started this treatment 2 weeks ago

No Antibodies after Vaccine

Immune Boosting Power Of Mushrooms

AbbVie Pharm--positive phase 3 for CLL!

Pemphigus and CLL

Antibody testing

The lowdown on Covid vaccine efficacy and blood cancer

Long-term effects of ibrutinib on blood pressure in patients with CLL

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