Wondering if anyone runs a low hemoglobin level ( without bleeding or low iron ) while on ibrutinib or other BTKs ? I have been running 11.7 and 11.8
Thanks
Wondering if anyone runs a low hemoglobin level ( without bleeding or low iron ) while on ibrutinib or other BTKs ? I have been running 11.7 and 11.8
Thanks
Hi Davidcara,-
I have had low Hg & Hct multiple times in my CLL journey. The really low points were just before starting treatment in 2010 (10.3) , 2012 (10.9) and 2016 (11.3). I took Idelalisb 2012 to early 2015 and Ibrutinib in late 2015, but did not see low Hg or Hct on those treatments. I've had minor dips since 2016 (12.1 & 12.4) those were during Venetoclax treatment.
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Len
I have been taking Acalabrutinib for 1 year and my Hemoglobin went from a low of 10.8 to a high of 14.1 in 5 months. However, Hemoglobin dropped to 12.3 five months later. My theory is this happened due to COVID Vaccine which I received 1st dose 3 weeks before blood test. Very interested to see next result which is scheduled for August. I feel great with no side effects but a bit concerned about Hemoglobin. Can you tell us how long you have been taking Ibrutinib?
Hi...I have a hard maintaining above 9.3 while getting treated by any of the CLL Treatment Drugs. My anemia that results from this situation is a constant battle to get past some days. Good luck!
My Hgb was usually about 12+. But in May it sank to 11.6 . They prescribed Folivane PlusCap. One per day. Now a month later it had gone up to 14.6. I was told to stop the Folivane until they get results of a special test. I am now waiting for the message how to continue. I have not noticed any bleeding in the urine or fecal bleeding. I am on Imbruvica since almost 3 years and doing well otherwise. My only chronic CLL issue is allergic rhinitis.