Posts - CLL Support | HealthUnlocked

CLL Support

23,254 members•39,951 posts

All posts for January 2021

Pretend it didn't happen – expert advice on how to behave after receiving a single dose of any of the Covid-19 vaccines

I haven't seen this posted yet, so thought I would share. The message is in the title, and the article itself...

I haven't seen this posted yet, so thought I would share. The message is in the ...

bennevisplace

•4 years ago

20 Replies

Diagnosed 9/20 and needing treatment already

Since my previous post, I have seen my doctor who recommended starting treatment based on my levels of platelets and hemoglobin. Because I was getting the...

Since my previous post, I have seen my doctor who recommended starting treatment...

Bajabarb

•4 years ago

11 Replies

How things have changed

Admiral of the Fleet Sir Michael Le Fanu GCB DSC, First Sea Lord and (briefly) Chief of the Defence Staff was diagnosed in May 1970 with CLL. He was treated...

Admiral of the Fleet Sir Michael Le Fanu GCB DSC, First Sea Lord and (briefly) ...

SERVrider

•4 years ago

10 Replies

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Vaccine

Hi everyone just wanted to know how you all feel about having the vaccine 🥰

Deniz2012

•4 years ago

21 Replies

Richter's Syndrome! One pill, Triple Combination Therapy is in clinical trial for Richter’s Transformation & De Novo Large B-Cell Lymphoma

Richter's Syndrome! One pill, Triple Combination Therapy is in clinical trial for Richter’s Transformation and De Novo Large B-Cell Lymphoma with impressive...

Richter's Syndrome! One pill, Triple Combination Therapy is in clinical trial fo...

bkoffman

CLL CURE Hero•4 years ago

5 Replies

use of green tea and turmeric for CLL

Hi there! i finished my last infusion of the 6 cycles of R-CVP treatment in May 2020 which had been recommended for my CLL. my WBC count on 01-01-2021 was...

Hi there! i finished my last infusion of the 6 cycles of R-CVP treatment in May ...

amaagabg2020

•4 years ago

25 Replies

The UK RECOVERY Trial closes Recruitment to the Convalescent Plasma treatment arm for patients hospitalised with COVID-19

The RECOVERY trial independent Data Monitoring Committee (DMC) held a routine meeting on Thursday 14 January to review the available safety and efficacy data....

The RECOVERY trial independent Data Monitoring Committee (DMC) held a routine me...

Jm954

Administrator•4 years ago

5 Replies

Report from a Doctor in USA - An unexpected COVID-19 vaccine side effect

This is his first hand report. "Today, I had my second shot of the Pfizer vaccine and suffered an unexpected and unreported side effect. That’s the...

This is his first hand report. "Today, I had my second shot of the Pfizer vaccin...

Jm954

Administrator•4 years ago

26 Replies

Low risk?

What exactly does having low risk disease mean? I have progressed to Stage B during the pandemic and have only been diagnosed 2 years now, but am still told I...

What exactly does having low risk disease mean? I have progressed to Stage B dur...

Pinkdark2018

•4 years ago

8 Replies

Where to get vaccinated now for Corvid 19 because of having CLL and having a chance of dying because the leukemia makes more likely to die

Has anyone found a State or place to get Vaccine for COvid-19 because of having CLL. Leukemia makes us 9 times more vulnerable to dyeing from the Coved so I am...

Has anyone found a State or place to get Vaccine for COvid-19 because of having ...

Funman

•4 years ago

5 Replies

I will be starting on Calquence in 3 days. What can I expect energy wise?

Calquence Results

Mackiec1108

•4 years ago

4 Replies

Help for muscle and bone pain

I have been taking Imbruvica 420 for about 4 years. I have been having muscle and bone pain, my doctor lowered my dose to 280. I again have pain. Can anyone...

I have been taking Imbruvica 420 for about 4 years. I have been having muscle a...

Gridleythedog

•4 years ago

3 Replies

Vaccination Progress rates for UK, USA, Europe and other COVID date (for UK)

I find this site quite useful. It's UK based but does have some vaccination data for USA and Europe. Have a look at all the tabs, there's data about UK ICU...

I find this site quite useful. It's UK based but does have some vaccination dat...

Jm954

Administrator•4 years ago

11 Replies

Ibrutinib – Results after 10 Months

Hi All I just wanted to provide a brief update on my results on Ibrutinib after 10 months of treatment for those starting Ibrutinib. I’m 61, living in Canada...

Hi All I just wanted to provide a brief update on my results on Ibrutinib after ...

Lakeviewg

•4 years ago

23 Replies

It's Good Deed Day! Fill, click, send! Help cancer patients become vaccinated. We called the health departments in all 50 states!

It's Good Deed Day! Fill, click, send! Help the susceptible become vaccinated. Throughout the pandemic we have felt helpless, but now there is something we can...

It's Good Deed Day! Fill, click, send! Help the susceptible become vaccinated. T...

bkoffman

CLL CURE Hero•4 years ago

18 Replies

CCL Diagnosis

Hello everyone, i was diagnosed Christmas eve and because of coved been unable to speak to a doctor face to face. Since being diagnosed i have felt very...

Hello everyone, i was diagnosed Christmas eve and because of coved been unable t...

Archie_K

•4 years ago

34 Replies

Richter Transformation - Update

Update on cases of the Ricther Transformation. A year ago I formed the Transformed Ricther group to be able to focus only on these cases, since there are few...

Update on cases of the Ricther Transformation. A year ago I formed the Transform...

Priss69

•4 years ago

10 Replies

Bladder Cancer with CLL

CLL since 2012 ( Ibrutinib 5 years , Gayzva 6 months , Acalabrutinib 2 years ) now bladder cancer , high grade , no wall penetration .... advised to take BCG...

CLL since 2012 ( Ibrutinib 5 years , Gayzva 6 months , Acalabrutinib 2 years ) n...

fish61

•4 years ago

8 Replies

Has your state prioritized cancer patients to receive the COVID-19 vaccine? Use our link to find out CLL Society has called every state + DC

The COVID-19 vaccine! Has your state prioritized cancer patients to receive the COVID-19 vaccine? CLL Society has called every state + Washington D.C. to find...

The COVID-19 vaccine! Has your state prioritized cancer patients to receive the ...

bkoffman

CLL CURE Hero•4 years ago

20 Replies

Allogenic HSCT with frozen stem cells?

I am possibly having my second allogenic HSCT in not too long. Due to corona they will now most likely freeze the cells from the donor during the process to...

I am possibly having my second allogenic HSCT in not too long. Due to corona th...

UniversallyPersonal

•4 years ago

10 Replies

Good experience with Regeneron infusion

Happy New Year to everyone. One week ago (last Saturday) I noticed I had no taste and no smell. I knew right away it had to be Covid. I called my Family Doctor...

Happy New Year to everyone. One week ago (last Saturday) I noticed I had no tast...

louie48

•4 years ago

16 Replies

2 questions 😊

Q1. Is there a connection between EBV & likelihood of RT? Q2. Anyone got dental fragility & chipping on Venetoclax & Ibrutinib?

Q1. Is there a connection between EBV & likelihood of RT? Q2. Anyone got dental ...

Sepsur

•4 years ago

40 Replies

All about Waldenstrum Macroglobulinemia and ibrutinib

I am on ibrutinib for 2 months for Waldenstrum macroglobulinemia

topgpsingh

•4 years ago

3 Replies

Ranitidine for improvement of vaccination

I have had CLL for 21 years (15 years w&w, V+O 2015-2018 with mrd- remission in PB and bone marrow ). Being a member of the forum that long I remember Terry...

I have had CLL for 21 years (15 years w&w, V+O 2015-2018 with mrd- remission in ...

Reinhard

•4 years ago

7 Replies

Covid Vaccine

I heard that the Moderna and Pfizer vaccine will be ok for us Cllers, but has anyone heard anything about the Johnson & Johnson , being that it is not a MRNA...

I heard that the Moderna and Pfizer vaccine will be ok for us Cllers, but has an...

Budd77

•4 years ago

8 Replies

Regeneron treatment for CLL people with early Covid symptoms

Hi, Great community! Thanks to everyone who posts their experiences. It’s been comforting, informative and helpful. This is my first post, and I’m not someone...

Hi, Great community! Thanks to everyone who posts their experiences. It’s been c...

Twin21

•4 years ago

11 Replies

Which vaccine is best for CLLers on W&W?

If you are on W&W with CLL, and you had a choice of Covid vaccine, would you choose the Pfizer-BioNTech or Oxford-AstraZeneca vaccine? And why? I'm asking...

If you are on W&W with CLL, and you had a choice of Covid vaccine, would you cho...

Alobs

•4 years ago

8 Replies

Should I isolate from someone who had vaccine

When my grandchildren have vaccinations I have to keep away for 2 weeks as they shed the virus. Do I have to keep away from someone who has had the Covid...

When my grandchildren have vaccinations I have to keep away for 2 weeks as they ...

Notmuchenergy

•4 years ago

8 Replies

Health Canada approves Ibrutinib plus Rituximab for First Line Treatment of Patients with Chronic Lymphocytic Leukemia (CLL)

Good News for our untreated Canadian members! This latest approval is based on the Phase 3 ECOG1912 study (also referred to as E1912) that...

Good News for our untreated Canadian members! This latest approval is based o...

AussieNeil

Administrator•4 years ago

12 Replies

Super Low IGG levels. 384. What odds vaccine will work?

All 3 levels extremely below normal. Should we request IVIG.?

Palmetto

•4 years ago

8 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for January 2021

Pretend it didn't happen – expert advice on how to behave after receiving a single dose of any of the Covid-19 vaccines

Diagnosed 9/20 and needing treatment already

How things have changed

Vaccine

Richter's Syndrome! One pill, Triple Combination Therapy is in clinical trial for Richter’s Transformation & De Novo Large B-Cell Lymphoma

use of green tea and turmeric for CLL

The UK RECOVERY Trial closes Recruitment to the Convalescent Plasma treatment arm for patients hospitalised with COVID-19

Report from a Doctor in USA - An unexpected COVID-19 vaccine side effect

Low risk?

Where to get vaccinated now for Corvid 19 because of having CLL and having a chance of dying because the leukemia makes more likely to die

I will be starting on Calquence in 3 days. What can I expect energy wise?

Help for muscle and bone pain

Vaccination Progress rates for UK, USA, Europe and other COVID date (for UK)

Ibrutinib – Results after 10 Months

It's Good Deed Day! Fill, click, send! Help cancer patients become vaccinated. We called the health departments in all 50 states!

CCL Diagnosis

Richter Transformation - Update

Bladder Cancer with CLL

Has your state prioritized cancer patients to receive the COVID-19 vaccine? Use our link to find out CLL Society has called every state + DC

Allogenic HSCT with frozen stem cells?

Good experience with Regeneron infusion

2 questions 😊

All about Waldenstrum Macroglobulinemia and ibrutinib

Ranitidine for improvement of vaccination

Covid Vaccine

Regeneron treatment for CLL people with early Covid symptoms

Which vaccine is best for CLLers on W&W?

Should I isolate from someone who had vaccine

Health Canada approves Ibrutinib plus Rituximab for First Line Treatment of Patients with Chronic Lymphocytic Leukemia (CLL)

Super Low IGG levels. 384. What odds vaccine will work?

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