Update on cases of the Ricther Transformation.
A year ago I formed the Transformed Ricther group to be able to focus only on these cases, since there are few in the world, but every day there are more.
Of all the cases that entered, there are already 124 members, of which I think about 80 will be Ricther's transformation. Not all share their cases and only read the comments of others. In this year four people have died, being three deceased in December. Three deceased people were not treated and died within weeks of being diagnosed. They were diagnosed very late, in a very miserable condition and without the possibility of being treated due to their condition. On Christmas Day our dear Angelo died, who was also diagnosed in very bad condition and he did go through different types of treatments and as a last resort he was treated with the Car-T. No treatment was effective and in the last control they detected a new cancer in the liver. He went on palliative and died three days later.
The other cases are people who follow after a year some, by transplant from a donor in remission. The case of the person who has been in remission the longest is five years.
There is a case that came in this summer where it seemed to have the Ricther in the ganglia of the neck. They are treating him with the R-CHOP and they did the control Pet Scan and he still has remains, so he did not go into complete remission and is going to undergo a transplant.
We also got a very young boy, he is currently 24 years old. Very aggressive CLL and Ricther transformation. He is currently going to be treated with a donor transplant.
A curious fact is that all the people who have been diagnosed with Ricther, took at the time of the transformation Venetoclax 80% and the rest Ibrutinib being 20% Pseudo Ricther and the rest Ricther.
Also a curious thing is that the success of the treatments is that it is detected in time and located. If detected early in the disease, the success of the treatment working in the first year is 99%.
Also a curious case is that people who have Ricther their CLL have been very aggressive with which there are more possibilities of a transformation.
Another curious fact is that many people enter because the doctors before the biopsy have already confirmed that he has Ricther. When you ask about his symptoms and treatment and the events of the last month, we know from statistics that he is no longer a Ricther. No symptoms and only lymph node growth in a very fast way. When you ask them if they have been removed to biopsy the treatment, they all say yes. Large parts of these people do not have a Ricther, but by withdrawing the "Ibrutinib" treatment, they are temporarily transformed into a Ricther.
A hug family from CLL and Ricther
Richter Transformation treatments
