Ibrutinib and Probiotics : Wondering if anyone... - CLL Support

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Ibrutinib and Probiotics

Davidcara profile image
14 Replies

Wondering if anyone knows if it is safe to take probiotics while on ibrutinib. Specifically wondering about a kefir that’s has added probiotics after pasteurization

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Davidcara profile image
Davidcara
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14 Replies
annmcgowan profile image
annmcgowan

Hi I use a probiotic called VSL#3 which is approved by my haematologist while on ibrutinib. I was taking this prior to treatment. I don’t know about kefir. You would need to run it past your haematologist.

Ann

Davidcara profile image
Davidcara in reply to annmcgowan

Thanks Ann, will need to check it out

annmcgowan profile image
annmcgowan in reply to Davidcara

👍

WinJ3 profile image
WinJ3

I drink Lifeway Plain Unsweetened Cultured Lowfat Kefir. It helps to keep me regular.

Win

Davidcara profile image
Davidcara in reply to WinJ3

Thanks Win, have you been approved to drink this by your oncologist. Are you in treatment. I have used lifeway before treatment and am considered going back to it. But concerned about ibrutinib and probiotics

Ginajetta profile image
Ginajetta in reply to Davidcara

Ive been on Imbruvica and i take Lifeway plain kefir almost every day for two years. Haven’t had a problem.

Davidcara profile image
Davidcara in reply to Ginajetta

Just bought some, thanks Ginajetta

WinJ3 profile image
WinJ3 in reply to Davidcara

Yes I am in treatment with ibrutinib. My doctor told me to avoid grapefruit and Seville oranges. I read the food labels to check ingredients on everything I eat or drink. In addition to kefir, I also drink kombucha.

I have no problems with any probiotics I have used.

Davidcara profile image
Davidcara in reply to WinJ3

Great, thanks Win

vog292 profile image
vog292 in reply to WinJ3

Kombucha ? Check around and ask your hematologist.

Emerfly profile image
Emerfly

I was told by a cancer nutritionist not to eat fermented foods . I used to make my own kefir, kombucha and kimchi . She also told me not to eat ripe bananas as the brown spots are a type of fungus and I’m prone to fungal infections . Hope this info helps . All the best . Emer

vog292 profile image
vog292

Yogurt is the most reliable, beneficial and least controversial. I use non-fad, plain yogurt and drain the liquid until it seems like "farmers cheese", then add some organic "ranch dressing": The result is like imported cheese from Europe. (Take the lid off the container and turn container downside up over a collander for several days to drain liquid ).

Davidcara profile image
Davidcara in reply to vog292

Thanks vog

Emerfly profile image
Emerfly in reply to vog292

I agree a good yogurt like Activia or my personal favourite which is Yakult which managed to keep my fungal infections at bay during pretty much non stop antibiotics for infections.

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