Alacabrutinib for relapsed CLL: Hi everyone, I... - CLL Support

CLL Support

22,986 members39,473 posts

Alacabrutinib for relapsed CLL

lymphomaoz profile image
2 Replies

Hi everyone, I was just wondering if anyone in this group is from Australia and has had alacabrutinib for relapsed CLL. It would be great to know more

Thank you Sharon

Written by
lymphomaoz profile image
lymphomaoz
To view profiles and participate in discussions please or .
2 Replies
lankisterguy profile image
lankisterguyVolunteer

Hi lymphomaoz,

-

I see that you have been with us since 2017, and an active participant in the Australian medical approval process. So you probably have used this to review the profiles of the members that list Australia in their profiles: healthunlocked.com/cllsuppo...

-

And you likely know that AussieNeil and CLLerinOz are both from "down under" so they may be able to point you to Acalabrutinib/Calquence patients.

-

There are some videos healthunlocked.com/cllsuppo...

where Debinoz interviews some of your CLL experts.

I recall that Deb has stopped taking Venetoclax and started Ibrutinib after considering Acala & Zana - cllforum.com/reply.php?topi...

-

But you probably know all that.

-

Len

lymphomaoz profile image
lymphomaoz in reply to lankisterguy

Hi Len thanks so much for this and I know Neil and Deb. I am CEO of lymphoma Australia and my mum was diagnosed with CLL many years ago. This group is great and we hope to have a good announcement about this treatment soon and we were hoping to have a patient help. All the best and hope we can do more for everyone

Not what you're looking for?

You may also like...

Relapsed CLL: New Approaches Prolong Survival

Dr Furman says that genetically unstable CLL patients need a combination therapy approach to...

Zanubrutinib PFS, ORR Is Superior to Ibrutinib for Relapsed/Refractory CLL/SLL

Zanubrutinib PFS (Progression Free Survival) , ORR (Overall Response Rate) Is Superior to...

CAR T was just approved for Relapsed/Refractory CLL/SLL ( Potentially 20% CURE rate)

What are your thoughts/suggestions/comments? Thank you, Pat...

Treatment for CLL

Treatment for CLL does anyone know at what # WBC and #Lym? Do Doctors start treatment?

Brukinsa for CLL

Anyone have experience with taking Brukinsa for Cll. I had and a fib reaction to imbruvica. My...