Posts - CLL Support | HealthUnlocked

CLL Support

22,865 members • 39,227 posts

All posts for January 2020

CLL queries

Hi..my dad has been detected with CLL ,stage D.FIRST CHEMO OF RITUXIBIN AND ENDOXON IS DONE.DOCTOR IS SUGGESTING TO START WITH IBUTRININ ORAL.SHOULD I GO WITH...

Hi..my dad has been detected with CLL ,stage D.FIRST CHEMO OF RITUXIBIN AND ENDO...

sweetromeet

•5 years ago

3 Replies

New Clinical Trail EA9161 with great results!

Hello folks. I have been on the site for a while and I have placed a couple of post but more an observer. I have something to share that I am pretty excited...

Hello folks. I have been on the site for a while and I have placed a couple of ...

Riven8

•5 years ago

29 Replies

CLL

Been on Imbruvica 420 mg since November, very little side effects, WBC still increasing up from 191,000 to 216,000 feel fine, should I try Imbruvica 600 mg

Been on Imbruvica 420 mg since November, very little side effects, WBC still inc...

Die-Hard

•5 years ago

15 Replies

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Small B cell lymphoma

Hi. My tests still not confirmed but suggestive of small B cell lymphoma. Does anyone know much about this and prognosis treatment ect.

Hi. My tests still not confirmed but suggestive of small B cell lymphoma. Doe...

Jenny2020

•5 years ago

2 Replies

Rash with Imbruvica & Allopurinol

My 70 yo husband has been on Imbruvica (420) & Allopurinol for 3 months with little side effects other than occasional small patch of petechia which goes away...

My 70 yo husband has been on Imbruvica (420) & Allopurinol for 3 months with lit...

TN2FL

•5 years ago

6 Replies

Shingles vaccine

I'm in Johannesburg South Africa. Shingrix is not available in SA only Zovirax. As a CLL sufferer who has had one session of Shingles has anyone been able to...

I'm in Johannesburg South Africa. Shingrix is not available in SA only Zovirax. ...

Alpha66

•5 years ago

1 Reply

Cataract surgery and CLL

My dad, 82yo, has been suffering from CLL for 7.5 years. He is on Ibrutinib, which seems to help, but he has low platellets count. He will need a cataract...

My dad, 82yo, has been suffering from CLL for 7.5 years. He is on Ibrutinib, whi...

MikeOr

•5 years ago

6 Replies

White Count Jumped

I'm fairly new, but many of you have communicated with me already. Went for blood testing today to see if my gamma globulins are too low, and the tech offered...

I'm fairly new, but many of you have communicated with me already. Went for bloo...

wizzard166

•5 years ago

53 Replies

Can’t get confirmed dx yet

Has anyone ever gotten a leukemia with it not being suggested on flow or bmb

Jenny2020

•5 years ago

1 Reply

First filling for me january 7 Venclexta 400 mg number 120 Medicare part D

I have written several posts over the year about how part D works. In january it always does a hard reset so the first payment is a combination of the...

I have written several posts over the year about how part D works. In january it...

Hidden

•5 years ago

33 Replies

Possible MBL?

Hi I went for a bone marrow biopsy in September 2019 as I have been mildly neutropenic for a number of years. Results couldn’t point to a particular cause of...

Hi I went for a bone marrow biopsy in September 2019 as I have been mildly neutr...

naa81

•5 years ago

2 Replies

Thanks Paula S

I had my recommend injections to day for pneumonia and influenza . I went prepared I'd copied the advice given here thanks Paula s. And I asked the nurse if...

I had my recommend injections to day for pneumonia and influenza . I went prepar...

pet-lamb

•5 years ago

11 Replies

Trabectedin Targets Leukemic Cells and Restores Immune Cell Function in Models of Chronic Lymphocytic Leukemia

The marine-derived compound trabectedin depletes both human primary leukemic cells and myeloid-derived suppressor cells, according to a new study published in...

The marine-derived compound trabectedin depletes both human primary leukemic cel...

wmay13241

•5 years ago

16 Replies

CLL SUPPORT CARDIFF CONFERENCE 23 January 2020 at the HILTON HOTEL, Cardiff, CF10 3HH

Come along and hear Prof. Chris Fegan speak on : "What does a diagnosis of CLL mean and what are the essential steps for patients to take?" If you have heard...

Come along and hear Prof. Chris Fegan speak on : "What does a diagnosis of CLL m...

pkguk2

Partner•5 years ago

1 Reply

CLL and Ear Problems? - Question

Happy New Year Everyone:) My next doc appointment is early February. During check-ups, one of the questions he always asks concerns hearing and any changes....

Happy New Year Everyone:) My next doc appointment is early February. During che...

peas50

•5 years ago

5 Replies

CLL and pneumonia jabs

Am I right in thinking that there is a different pneumonia jab for CLL patients? I seem to remember reading that there is a preferential two part one. My...

Am I right in thinking that there is a different pneumonia jab for CLL patients?...

Poohey

•5 years ago

3 Replies

Anyone Develop Nickel Allergy?

Could our CLL compromised immune systems be the culprit behind my having developed a nickel allergy at age 77 and 7 years into diagnosis? The very itchy rash...

Could our CLL compromised immune systems be the culprit behind my having develop...

cll2013

•5 years ago

5 Replies

Is CLL linked with lung cancer?

I have a nodule on my lung that appeared around the same time as my CLL diagnosis. I have a CT scan twice a year. It has not changed since it was first...

I have a nodule on my lung that appeared around the same time as my CLL diagnosi...

Pippismom

•5 years ago

8 Replies

Great people here

You are a great bunch, thanks all for the replies, truly appreciated the comments and suggestions DFM

You are a great bunch, thanks all for the replies, truly appreciated the comment...

DFM2018

•5 years ago

1 Reply

Imbruvica and rapid heart beat

Hi folks. I'm still on imbruvica but they put me on a does of 280 mg after the rapid heart beats daily to 150 bpm. It was NEWS to them that my verapamil...

Hi folks. I'm still on imbruvica but they put me on a does of 280 mg after the r...

Hidden

•5 years ago

12 Replies

Immunotherapy and Gene Modification of T Cells

I'm diagnosed as of April 2018, and like so many others in the Watch and Wait phase. I hate this approach, but I understand why it is taken. In essence the...

I'm diagnosed as of April 2018, and like so many others in the Watch and Wait ph...

wizzard166

•5 years ago

34 Replies

Insect like bites due to CLL?

I was diagnosed with CLL in 2005 and have not needed any treatment yet. For last 7 months I have had insect like bites on and off. Itch terribly for couple...

I was diagnosed with CLL in 2005 and have not needed any treatment yet. For las...

KirbyBH

•5 years ago

20 Replies

CLL with upper respiratory infection

For the past three months I have suffered from reoccurring upper respiratory tract infection. After four courses of antibiotics I am still bringing up mucus...

For the past three months I have suffered from reoccurring upper respiratory tra...

AdaYoung

•5 years ago

8 Replies

Anxiety

Happy New Year . So far I am still in remission from cll but have been feeling anxious a lot lately. The least little thing sets me off. When I do feel good...

Happy New Year . So far I am still in remission from cll but have been feeling ...

nanaseventimes

•5 years ago

14 Replies

Frustrated waiting and watching

I was diagnosed 5 yrs ago, am 46, and don’t have support.... the fatigue is wearing me... I am fairly healthy otherwise btw... but the stress/fatigue is...

I was diagnosed 5 yrs ago, am 46, and don’t have support.... the fatigue is wear...

DFM2018

•5 years ago

8 Replies

Does anyone get the hives?

Hi everyone, I have a lot of questions about my cll but right now I get the hives over various parts of my body in the evening( 8pm) or so before bed. The...

Hi everyone, I have a lot of questions about my cll but right now I get the hive...

Gman2

•5 years ago

19 Replies

Montreal CLL support group meeting January 8

The next meeting of the Montreal CLL support group will be held on Wednesday January 8 2020 from 18:00 to 20:30 at the CHUM. For more information or to confirm...

The next meeting of the Montreal CLL support group will be held on Wednesday Jan...

rvles

•5 years ago

Be the first to reply

What is the maximum dose of ATAVAN I could take before my Bone marrow biopsy ?

Last BMB I took only one It did nothing for my nervousness I shook like a dog going to the vet during the entire procedure which made it more difficult for...

Last BMB I took only one It did nothing for my nervousness I shook like a dog...

Catnap7

•5 years ago

24 Replies

Bmb results confused

Confused what all this means even tho I have smudge cells and monoclonal protein trace and iga lambda and lymphocitosis However my number went down by 10...

Confused what all this means even tho I have smudge cells and monoclonal protein...

Jenny2020

•5 years ago

16 Replies

imbruvica & lymph nodes

Hello All: Just a quick question. I have been on imbruvica since 2017. My last cat scan was about 3 months ago. when I got results I was told it was much...

Hello All: Just a quick question. I have been on imbruvica since 2017. My last ...

larry54

•5 years ago

4 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for January 2020

CLL queries

New Clinical Trail EA9161 with great results!

CLL

Small B cell lymphoma

Rash with Imbruvica & Allopurinol

Shingles vaccine

Cataract surgery and CLL

White Count Jumped

Can’t get confirmed dx yet

First filling for me january 7 Venclexta 400 mg number 120 Medicare part D

Possible MBL?

Thanks Paula S

Trabectedin Targets Leukemic Cells and Restores Immune Cell Function in Models of Chronic Lymphocytic Leukemia

CLL SUPPORT CARDIFF CONFERENCE 23 January 2020 at the HILTON HOTEL, Cardiff, CF10 3HH

CLL and Ear Problems? - Question

CLL and pneumonia jabs

Anyone Develop Nickel Allergy?

Is CLL linked with lung cancer?

Great people here

Imbruvica and rapid heart beat

Immunotherapy and Gene Modification of T Cells

Insect like bites due to CLL?

CLL with upper respiratory infection

Anxiety

Frustrated waiting and watching

Does anyone get the hives?

Montreal CLL support group meeting January 8

What is the maximum dose of ATAVAN I could take before my Bone marrow biopsy ?

Bmb results confused

imbruvica & lymph nodes

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