Posts - CLL Support | HealthUnlocked

CLL Support

22,532 members • 38,709 posts

All posts for January 2020

What is the correct Vitamin D dose

Article aimed at bone condition but still relevant to anyone taking Vit D supplement...

Article aimed at bone condition but still relevant to anyone taking Vit D supple...

•4 years ago

Negative for CLL and lymphoma panel

Hi. I just received my bmb negative for CLL or lymphoma panel. My dr stated he believes I do have some form of leukemia but the final diagnosis is not in....

Hi. I just received my bmb negative for CLL or lymphoma panel. My dr stated...

•4 years ago

Follow up of post 2 months ago .leg pain .

Leg pain , stopped Ibrutinib and started Alacabrutinib ... leg pain non existent after 1 week ...... oncologist may start Vento , but prefers to wait to see...

Leg pain , stopped Ibrutinib and started Alacabrutinib ... leg pain non existent...

•4 years ago

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Intestinal issuex.

I was just wondering if anyone who is or was on Imbruvica had a lot of stomach problems? Thank you

I was just wondering if anyone who is or was on Imbruvica had a lot of stomach p...

•4 years ago

Ibrutinib at 92

Hello I am on here because my mom (92) has been told her cll has woken up. My mom was first diagnosed 12 years ago. Her onco wants her to start ibrutinib . Due...

Hello I am on here because my mom (92) has been told her cll has woken up. My mo...

•4 years ago

Shingles antivirals vs infections and reduced immunity

First, happy new year (if this is new year for you :-) As well as being in watch and wait with my CLL, I am recovering from shingles (which i’ve never before...

First, happy new year (if this is new year for you :-) As well as being in watc...

•4 years ago

Trying to get a diagnosis

any ideas why I had two CBC within 5 days wbc 28.1, then 28.4 lymphocytes 24, 24.11 smudge cells present flow cytometry did not show CLL pending bmb results...

any ideas why I had two CBC within 5 days wbc 28.1, then 28.4 lymphocytes 24, 24...

•4 years ago

A nervous wreck.

I have been referred to Hematology for Lymphocytosis (symptomatic). He is in the process of checking to see if it is Leukemia. I'm trying to find out as much...

I have been referred to Hematology for Lymphocytosis (symptomatic). He is in the...

•4 years ago

Acalabrutinib Ventoclax

Acalabrutinib after 2 cycles today is the day I start my Ventoclax cycle.So far my results have been brilliant on Acalabrutinib I am hoping for the same on my...

Acalabrutinib after 2 cycles today is the day I start my Ventoclax cycle.So far...

•4 years ago

What is the difference between non fdg avid node and fdg avid node?

In my latest PET non fdg avid nodes were found after 4 cycle of FCR. What is the difference between nod fdg avid and fdg avid nodes.?

In my latest PET non fdg avid nodes were found after 4 cycle of FCR. What is the...

•4 years ago

Bloodshot eyes with Ibrutinib and venetoclax.

My husband has been on Ibrutinib and venetoclax for several months and he is now starting to have problems with bloodshot eyes. Has anyone else had a problem...

My husband has been on Ibrutinib and venetoclax for several months and he is now...

•4 years ago

2018 study explains why Green Tea, pomegranates, strawberries and other foods containing elegitannins (and thus EA) work against CLL

I just found a fabulous 2018 study which explains why green tea, pomegranates, strawberries and other foods containing elegitannins (and thus EA) could reduce...

I just found a fabulous 2018 study which explains why green tea, pomegranates, s...

•4 years ago

Happy new year

I rarely write but read intensely. I wish you all the blessings of a new year. Thank you for all the info and support.

I rarely write but read intensely. I wish you all the blessings of a new year. ...

•4 years ago

Happy New Year 2020.

To all of you who have become my HealthUnlocked family, I wish you the best of health and happiness in this new day, new month, new year, new decade. Be well....

To all of you who have become my HealthUnlocked family, I wish you the best of h...

•4 years ago

CLL and RA

Looking for people in NSW Australia with CLL and RA

Looking for people in NSW Australia with CLL and RA

•4 years ago

Macular Degeneration - what results?

Having macular degeneration -- anyone reporting good results from shots? Complications because of CLL?... am 80...on infusions but no chemo... worrying...

Having macular degeneration -- anyone reporting good results from shots? Complic...

•4 years ago

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