Posts - CLL Support | HealthUnlocked

CLL Support

22,866 members • 39,229 posts

All posts for January 2020

Off Ibrutinib .. on Acalabrutinib

Off Ibrutinib for 2 months , on Acalabrutinib ... all is well , blood tests are almost perfect , next visit to MDAnderson in 3 months ... asked about using...

Off Ibrutinib for 2 months , on Acalabrutinib ... all is well , blood tests are ...

fish61

•5 years ago

7 Replies

Dr Nicole Lamanna's Thoughts on the Recent FDA Approval of Acalabrutinib in CLL

"The introduction of BTK inhibitor therapy has truly transformed the treatment landscape in chronic lymphocytic leukemia (CLL). : Despite...

"The introduction of BTK inhibitor therapy has truly transformed the treatment l...

AussieNeil

Administrator•5 years ago

2 Replies

Does anyone know if the Indian pharmaceutical industry has good result in the treatment of CLL 17p?

Hi! I am new My father has CLL 17p since 2013. He has to take imbruvica for all his life. We live on Chile and the cost of the 120 capsules is overwhelming...

Hi! I am new My father has CLL 17p since 2013. He has to take imbruvica for all ...

Calita

•5 years ago

15 Replies

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Headaches

What can be done for migraines and cll?

Pat351v

•5 years ago

2 Replies

Bee pollen?

Is raw bee pollen good for us CLLers? What about raw honey?

bayside64

•5 years ago

7 Replies

Survey for CLL patients having taken Venetoclax or Acalabrutinib

CLL/SLL Patient Survey If you have CLL or SLL and have been treated with the following therapies, you can help by completing our survey: Venetoclax...

CLL/SLL Patient Survey If you have CLL or SLL and have been treated with the fo...

CLL_Canada_Group

•5 years ago

15 Replies

WBC rising

My WBC went from 35-48 in 6 mos...should I be worried? Most of my other bloodwork is normal except lymphocytes

My WBC went from 35-48 in 6 mos...should I be worried? Most of my other bloodwo...

Pat351v

•5 years ago

8 Replies

Need Advice

My ALC has steadily increased this year. 3.3 Jan. 2019, 7.8 June 2019, 15.2 Sept. 2019, 29.5 Dec. 2019. My RBC was 3.26 and platelets 108 in Dec. 2019. last...

My ALC has steadily increased this year. 3.3 Jan. 2019, 7.8 June 2019, 15.2 Sept...

laldoroty

•5 years ago

3 Replies

ASH 2019 CLL highlights and 'hot' topics - Drs Nicole Lamanna & Florence Cymbalista

Prof Nicole Lamanna - ASH 2019 - Maturing CLL clinical trial data Dr. Nicole Lamanna, Associate Clinical Professor of haematological malignancies at Columbia...

Prof Nicole Lamanna - ASH 2019 - Maturing CLL clinical trial data Dr. Nicole Lam...

HAIRBEAR_UK

Founder Admin•5 years ago

13 Replies

Zap 70 + cd5 & cd23

Pokerguy

•5 years ago

2 Replies

Information for CLL chemo

Hi..my dad has been detected with CLL ,stage D.FIRST CHEMO OF RITUXIBIN AND ENDOXON IS DONE.DOCTOR IS SUGGESTING TO START WITH IBUTRININ ORAL.SHOULD I GO WITH...

Hi..my dad has been detected with CLL ,stage D.FIRST CHEMO OF RITUXIBIN AND ENDO...

sweetromeet

•5 years ago

2 Replies

umass medical center worcester massachusetts

Does anyone see an oncologist.hemaatologist here or have experience with their transplant dept.

Does anyone see an oncologist.hemaatologist here or have experience with their t...

Hidden

•5 years ago

11 Replies

Amalgum, root canal influence on general health and CLL

Hi Everyone Just wondering if there is any evidence of health issues arising from root canals and amalgum fillings? I receive information from family and...

Hi Everyone Just wondering if there is any evidence of health issues arising fro...

AussieRock

•5 years ago

9 Replies

how often to be checked when starting ibrutanib

i've started ibrutanib and i have to return to my doc in 2 weeks. how often do you think i'll need to be rechecked? will it go to monthly? stay at every 2...

i've started ibrutanib and i have to return to my doc in 2 weeks. how often do y...

bachplayer13

•5 years ago

3 Replies

does a second cancer exclude from a clinical trial? forever?

clinical trial question: does having a second cancer preclude you from ever being on a clinical trial? when my doc said he wanted to treat me. i asked about a...

clinical trial question: does having a second cancer preclude you from ever bein...

bachplayer13

•5 years ago

9 Replies

Weight loss

I've been on Ibrutinib for 3 months and I've been losing weight. Just wondering if anyone else has been affected. I see my doctor on the 14th...

I've been on Ibrutinib for 3 months and I've been losing weight. Just wondering ...

habsrule

•5 years ago

11 Replies

New York City -- CLL Patient Support Group January 12 at 3:00pm.

CLL PATIENT AND CAREGIVER SUPPORT GROUP New York City -- CLL Patient Support Group The CLL Society invites you to our support group sponsored by the CLL...

CLL PATIENT AND CAREGIVER SUPPORT GROUP New York City -- CLL Patient Support Gro...

lankisterguy

Volunteer•5 years ago

Be the first to reply

After BMT, how long can last in the hospital?

Hello, it is me again about my girlfriend, she is still in a sealed room, and she is having diarrhea everyday, sometimes headache, she is desperate, she just...

Hello, it is me again about my girlfriend, she is still in a sealed room, and sh...

menin

•5 years ago

6 Replies

My good news and more research news from EHA and iwCLL

It’s not just our CLL that determines how well we do. It is also what other illness we have. At EHA 2019, Dr. Danilov discusses his findings related to our...

It’s not just our CLL that determines how well we do. It is also what other illn...

bkoffman

CLL CURE Hero•5 years ago

6 Replies

starting ibrutanib tomorrow bleeding AFib worries

i'm starting ibrutanib tomorrow. initially they are starting me at a low dose of 240 mg. maybe due to my age and co morbidities? ( i already have significant...

i'm starting ibrutanib tomorrow. initially they are starting me at a low dose of...

bachplayer13

•5 years ago

32 Replies

Please help

I am a 38 year old black woman. I have been sick the past month. Long story short just got out of hospital and I have c diff bacterial virus, CMV viral...

I am a 38 year old black woman. I have been sick the past month. Long story shor...

Diva7633

•5 years ago

8 Replies

Thank you!

Thanks to everyone who sent me posts. Lots of useful and helpful information. Blessings to you all.

Thanks to everyone who sent me posts. Lots of useful and helpful information. Bl...

Ninetyfive

•5 years ago

Be the first to reply

B cell lymphocytosis

Hi. I’m getting closer to a diagnosis. My dr stated they are waiting for one more test and after that result they MAY have a dx of B cell lymphocitosis....

Hi. I’m getting closer to a diagnosis. My dr stated they are waiting for one ...

Jenny2020

•5 years ago

6 Replies

My white blood cells are 65.3. My oncologists wants to put me on imbruvica 420mg. I really don't want to, I feel fine. I need input on this.

My white blood cells are 65.3 my oncologist wants to put me on imbruvica 420mg. I feel fine & see no need for imbruvica. I need input please.

My white blood cells are 65.3 my oncologist wants to put me on imbruvica 420mg. ...

Rottie1934

•5 years ago

18 Replies

Post ASH CLL Society/City of Hope Patient and Caregiver Educational Forum (live or stream) this Saturday morning in Duarte, CA

This Saturday at 9 AM PT at City of Hope, Duarte, CA, the CLL Society will have another great post ASH CLL patient and caregiver educational forum with Drs....

This Saturday at 9 AM PT at City of Hope, Duarte, CA, the CLL Society will have ...

bkoffman

CLL CURE Hero•5 years ago

7 Replies

Lymph trend?

How about this one

Nick2121

•5 years ago

3 Replies

Lymphocyte percent trends

Here's the lymphocyte numbers

Nick2121

•5 years ago

2 Replies

Just an update from my latest blood work

I am deletion 13/14 mutated Wbc going up very very slowly....always within the error margin so not much change Just thought I would post it to see if this...

I am deletion 13/14 mutated Wbc going up very very slowly....always within the ...

Nick2121

•5 years ago

5 Replies

Remission

So the PETSCAN and the bone marrow biopsy say no leukemia or lymphoma for me. That means total remission but they still want me to have a transplant waiting...

So the PETSCAN and the bone marrow biopsy say no leukemia or lymphoma for me. Th...

SwiftT

•5 years ago

52 Replies

IBS

I am new here. I have had IBS for 3 years. Now I have CLL and am on Ibrutinib, just starting my 2nd month. Has anyone experienced any problems with this?...

I am new here. I have had IBS for 3 years. Now I have CLL and am on Ibrutinib,...

Ninetyfive

•5 years ago

14 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for January 2020

Off Ibrutinib .. on Acalabrutinib

Dr Nicole Lamanna's Thoughts on the Recent FDA Approval of Acalabrutinib in CLL

Does anyone know if the Indian pharmaceutical industry has good result in the treatment of CLL 17p?

Headaches

Bee pollen?

Survey for CLL patients having taken Venetoclax or Acalabrutinib

WBC rising

Need Advice

ASH 2019 CLL highlights and 'hot' topics - Drs Nicole Lamanna & Florence Cymbalista

Zap 70 + cd5 & cd23

Information for CLL chemo

umass medical center worcester massachusetts

Amalgum, root canal influence on general health and CLL

how often to be checked when starting ibrutanib

does a second cancer exclude from a clinical trial? forever?

Weight loss

New York City -- CLL Patient Support Group January 12 at 3:00pm.

After BMT, how long can last in the hospital?

My good news and more research news from EHA and iwCLL

starting ibrutanib tomorrow bleeding AFib worries

Please help

Thank you!

B cell lymphocytosis

My white blood cells are 65.3. My oncologists wants to put me on imbruvica 420mg. I really don't want to, I feel fine. I need input on this.

Post ASH CLL Society/City of Hope Patient and Caregiver Educational Forum (live or stream) this Saturday morning in Duarte, CA

Lymph trend?

Lymphocyte percent trends

Just an update from my latest blood work

Remission

IBS

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