Bmb results confused

[Jenny2020]

Confused what all this means even tho I have smudge cells and monoclonal protein trace and iga lambda and lymphocitosis However my number went down by 10 and 12 points in a week. My dr states the final report isn’t in but he does believe I have an early form of leukemia but not to worry as he is not alarmed. I’m just unsure of what form it could be since I had bmb and flow cytometry. So confused

[Jenny2020]

This wasn’t a fish test it was a bone marrow biopsy I don’t have deletion 17 or tp53? My mom has deletion 17 in myeloma and only lived 2 years so I was very concerned about that. My flow was inconclusive of CLL that’s why he did the bmb

[Hidden in reply to Jenny2020]

bone marrow biopsy is the removal from the marrow, then the various kinds of tests are done to this marrow. You are confusing the removal and getting the marrow with the tests that can be done to it.

[cllady01 Former Volunteer in reply to Hidden]

she has the interpretation, IVFN

[Jenny2020 in reply to cllady01]

WhT is that.

[cllady01 Former Volunteer in reply to Jenny2020]

Jenny, the word "interpretation" is written before your list of Results, I assume that was copied from the report?

[Hidden in reply to cllady01]

you and scott may understand some of this stuff. Since i already have 17p and tp53 any additional for me i don't worry about-i already know i have lousy markers.

[Jenny2020 in reply to Hidden]

I’m even more confused

[Jenny2020]

Did you see any concern for any abnormal chromosomes that I should be worried about

[cllady01 Former Volunteer in reply to Jenny2020]

Jenny, I know you are very concerned, and that is so understandable. As far as I can tell from your results on all tests, the Dr. has found a monoclonal situation--but has not found a specific identifier to name a blood disease. I think what you were told was that he is still looking. I assume you will be followed with blood tests on a regular basis to see if anything develops.

None of us can give a diagnosis, but only say there is something the Dr. is alerted to watch---not alarmed, but aware and will be there with you.

I know very well, the feeling of wanting to know and it can be unnerving. If you feel you need to get a second opinion, you have every right to do so. If you feel the Dr. is not hearing you, or you feel unable to ask the direct question of "what are you thinking"?

Is it possible for you to speak with the Nurse Practitioner and get some understanding?

I am so sorry you are having to go through the agony of not knowing. We all understand that as we have had some time with that of our own. But, you seem to have a puzzling situation that may be developing over time, but are getting no help in knowing what the possibilities are.

We do have to be our own advocates often, but is there someone who can go with you to your next appt (and if your want to do so, make an appt. ahead of the one scheduled) for someone with you to be able to help with getting something from the Dr. to help you weather this wait.

Please let us know how things go. Again, so sorry to be of no help in knowing what the Dr. is thinking.

[Jenny2020 in reply to cllady01]

No I think I’m in good hands with him. I do have labs scheduled on 2 months and if the same repeat 4 months after. I’m assuming it is a CLL due to the smudge cells and it just not picking up yet as all of this was an accidental finding with a female exam I had. I have no symptoms ect. So even if CLL I know most of the time is wait and watch anyways. Thank you for your thoughts and kind words

[Jenny2020]

Oh wow thank you for that info. I’ve been worried sick. My mom just passed this April at only 66 of myeloma due to the deletion 17 never sick a day in her life so for me to get this is just mind boggling

[Jenny2020]

I’ve been under a tremendous amount of stress and horrible anxiety and I do think some of that is why my wbc and lymphocytes were so much higher and dropped so much in a week

[Jenny2020]

lol. He may. He has become a personal friend as he treated my mom and we all became very close. He knew how worried o was as he texted me this last night while he was on vacation. So I do feel as if I’m in good hands with him. Thank you for all of your help. I don’t have the cytometry results just this and my c blood work of everything else

[cllady01 Former Volunteer in reply to Jenny2020]

As that is the case, you have a caring and thorough Dr. and friend. Let him and his staff be your in person support. It can't be easy for a Dr. in a situation like this.

Best wishes is the days to come. Let yourself do the grieving you need to do and give the Dr. a chance to be there for you.

[Jenny2020]

That’s what I have come to terms with. I just have to put my trust and faith in him and his atafff. I am very fortunate and feel my mom is guiding me with him to help me through all of this. He is a very smart man and gets to the bottom of everything. He helped my mom and several other of our friends and takes it very personally. He normally doesn’t see leukemia patients but is doing this for me. So I feel very blessed

[Jenny2020]

I hope not. But I Thank all of you for your intelligence and support and pray for all of you.