The marine-derived compound trabectedin depletes both human primary leukemic cells and myeloid-derived suppressor cells, according to a new study published in Cancer Immunology Research.1 The researchers think their findings could lead to a new therapy that targets both leukemic cells and the protumor microenvironment, repairing the immune dysfunction that is characteristic of chronic lymphocytic leukemia (CLL).
Full article: cancertherapyadvisor.com/ho...
This was very exciting to read about. Wondering if any of our members are participating in this clinical trial at MDA. Would love to hear their experience so far.
Thanks for sharing...Hope lives!!!
Nan
This gives us much hope, i always like reading the positives and hope deep down in my heart that they come out with the cure. IT'S ALL I THINK ABOUT EVERYDAY😊.
I was Diagnosed 2 years ago January 15th (2018) I lost my job because the fatigue and bone/joint pain is too much to bare and for my co-workers to see me in, I THANK GOD for checking the "long-term Disability" box, so at least I've got money coming in, I was living in Wichita,Kansas,but once I couldn't work and was let go, I moved back to North Georgia to be close to my Son and family.
I applied for SSDI July 28th,2018, I got my denial letter June 16th,2019,did my appeal for the denial,it's still in the "Medical redetermination" phase, the health coverage I've had since I left my job has been COBRA,and it's going to end the end of March 2020, the "affordable healthcare( BULLSHIT) for a policy similar to what I have now is going to cost me $1400 a month
I make about $1500 more a year than what the Goverment allows to be able to get any type of Government assistance,I am in the 1% who's getting F'd royally.
Sorry for the rant,happy new year
Frenchie
It's ok we all come here to rant. This site and all the good people here are always very good with their great advice. So feel free to rant all you want. SSDI most of the time denies people on the first try so keep trying until approved. I'm sorry about all your setbacks and hope that things will ease up for you soon. We will always have our ups and downs with any disease. On my last appt. my doctor informed me that i might need treatment at the end of the year 😢and it was a big shock to hear that. I don't know how my reaction will be when u take that first pill. I just hope that it will be prolonged much further. Good luck to you, Frenchie😊👍.
I've been on Imbruvica since April 2018,and once I lose my Health Insurance,it will go from a $10 co-pay to $17,000 for a 28 day supply,last year I had the Genomic testing done and my type of CLL doesn't respond to Chemo,so, I'm on the BTK Inhibitor, once Imbruvica quits working,I'll have to go on Venclaxa(they say it works better than Imbruvica,but the side-effects are worse,and when you start it, you have to stay in the Hospital for 3 to 7 days to see how your body responds to it) and Venclaxa costs approx $35,000 for a 28 day supply.....
I get where you're coming from my fear is not being able to afford these ridiculously high priced drugs. (I still can't believe how expensive it is)
I'm going to go to all of my Doctors/Specialists before my Health Insurance expires at the end of March and try to work with them about getting me setup for all of my Meds
There are grants that u can also apply for, for help if u get in contact with cll society they might be able to help. Also ask your doctors where you can get help.
I agree tonyfrench,
I come from a line of working class that has a history of cancer appearing at the time the game should payoff.
I watched every one of them be denied benefits that they paid into the system for this very purpose including myself, and all the while others not having paid in being approved. The irony is that our request for benefit is not made in the spirit for a final run at the bucket list vacation, but rather to ensure that the costs to those around us who share the burden be reasonable.
This is not to say that we resent others who are afforded benefits not based on merit for there is no greater show of character than that expressed with mercy. Yet still, It does not come easy to accept insult with injury.
I maintain a hope that those of us who are blessed with the gift of being restored and made able can find the gratitude from such to be of higher worth.
I often fantasize about leading the cause for legislation to guarantee better terms of disability compensation for cancer patients.
Hope you get approved for benefits.
JM
Perhaps it is a giant Ponzi scheme?
I'll go to DC with you, it's CRAZY at how the system is, I literally have worked all of my life(I grew up on a farm with Cattle and we raised approx. 500,000 chickens a year for supermarkets) and my Dad bought a Mom&Pop Country store when I was 10,I went to work out in the "real world" when I graduated in 1983, I have NEVER asked for help of any kind in my Life,and now that I have,and I'm getting denied everywhere I turn to,I can't get on Georgia's Medicaid because I make $1,500 more a year than the Maximum amount allowed,what PISSES me off more than anything is I see and know people who has "worked the system" and can get every possible assistance program there is, I haven't been able to work for two years now, and I would give my "left nut" to be able to go back to work,I feel that not being able to work is almost as bad as the Fatigue,bone/joint pain,night sweats,and overall pain throughout my body
I love to work, and I get it brother.
I recently watched a Patient Power video where a man who was diagnosed with CLL chose not to tell his young daughter that he had blood cancer. After many years of fatigue progressing on watch and wait when it was time for treatment, he told his grown daughter. She responded by saying, When Mom did most of the work I just thought you were lazy.
I still think about that and laugh.
Yes it could be worse. My husband was fired when he became sick and they cancelled his insurance retroactively so all the hospital stays and testing costs were dumped in our lap when we thought it was covered by his insurance through work. We had an attorney but they won by some economic hardship BS. He was denied SSDI and had to appeal. What I suggest to you is what we did to get it speeded up. We contacted our congressman with a one page synopsis and phone call and he worked magic to get redetermination scheduled in three weeks! And we had voted for the other party's candidate. Good luck.
Thanks so much for posting this article!
I had not read this article and appreciate your posting it.
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