Posts - CLL Support | HealthUnlocked

CLL Support

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All posts for July 2019

Exciting times for CLL

The end of Chemo for first line treatment is near. Hang on in there is there is ...
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Rheumatoid Arthritis and CLL

This is my first post in this group since I was diagnosed May of this year. I am...
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is there hope

after three months on ibrdutinib I'm getting red pimples all over my face and so...
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Enlarged spleen

Diagnosis enlarged spleen and getting bigger on last vist can any explain
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New Portland, OR Support Group meeting 8/14

We are happy to announce that the CLL Society's Portland, OR support group will ...

Can anyone recommend a CLL expert MD preferably in North Central WI or nearby

I live in North Central Wisconsin (Marathon county) USA about 2 hours drive dire...
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Ibrutinib side effects

My husband is taking Ibrutinib for CLL and one of his many side effects is very...
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EU Panel Backs Expanded Indication of Ibrutinib Combos in CLL

Friday, Jun 28, 2019 The European Medicines Agency’s Committee for Medicinal Pro...
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Administrator

Dr. Shadman on Fixed Durations of Treatment in CLL

Mazyar Shadman, MD, MPH Published: Monday, Jul 08, 2019 Mazyar Shadman, MD, MPH,...
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Administrator

Ibrutinib, is it working for me?

Hi all Let's start with the good news, I found 5p in the road lol. My update is...
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No comfort from Insurance Cos while suffering from Cancer

It’s 3 years since I was diagnosed with CLL stage 0 and got another set back ye...
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Newly diagnosed with Chronic Lymphocytic Leukemia or Small Lymphocytic Lymphoma - CLL/SLL or just found us? This post is for you!

Welcome to the CLL Support community on HealthUnlocked, a very active community ...
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Administrator

8 and 1/2 months on ibrutinib , great news

After 8 1/2 months on Ibrutinib, new labs and ct scan , i was told by my Dr : 1-...
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New York City -- CLL Patient Support Group We will meet on the second Sunday in July (and the 3rd Sunday in August) at 3:00pm

CLL PATIENT AND CAREGIVER SUPPORT GROUP New York City -- CLL Patient Support Gro...
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Volunteer

Would like to be boring but just starting out!

Newly diagnosed with CLL after tissue samples from my basal cell skin cancer cam...
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CLL Patient and Caregiver Support Group of Long Island Monthly Meeting - July 11th.

An open invitation to anyone who may be in the Long Island, NY area. We will be...
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Itching, rash and bumps after CLL/SLL treatments?

Itching, rash and bumps after CLL/SLL treatments? My husband finished his second...
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MS Contin vs bupernorphine

Dr changed me from MS Contin to bupernorphine - anyone else done this ?
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Zanubrutinib versus Acalabrutinib: cardiac side effects

I just learned of zanubrutinib. Does anyone know if it is purported to have fewe...
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Is 400 mg of venetoclax always better?

A number of people in the CLL forum seem to have the same problem. That is, they...
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Anyone on Eliquis and ibrutinib, or other CLL med?

I've read a Mayo Clinic article discussing the use of ibrutinib and blood thinn...
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Rough patch

Beeen on imbrutinib for almost 5 months now and was doing extremely well and pla...
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feeling better

been feeling much better this week worked it out every time I had my morning cof...

Remission over .... venetoclax (&R) here we come

After 4 years of remission following FCR we heard yesterday that my husband’s re...
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CAR-t on BBC2 Sunday 9 pm

Interesting programme 9 pm this Sunday
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MRD-U Baby your one of four in two million!

So had a consultation with the amazing Prof Hillmen who is based in Leeds, but o...
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Anyone taking 100 mg of acalabrutinib?

I switched from acalabrutinib to venetoclax. Now I plan to take both. I want to ...
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Remission after Bendamustine and Rituximab

I've not long completed treatment with Bendamustine and Rituxumab (FCR back in 2...

Pleural effusion, its implications and pain relief

My husband has been diagnosed three days ago with pleural effusion and is due to...
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Achey hips

Hi a few years before I was dx I remember having achey hips especially in the su...
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