Rough patch: Beeen on imbrutinib for almost... - CLL Support

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Rough patch

haposwald profile image
6 Replies

Beeen on imbrutinib for almost 5 months now and was doing extremely well and plan to keep on doing so! Noticed a bump in blood pressure which I knew was a side effect had my gp prescribe losarton 50mg 1 x daily and at the same time developed a cold / flu with some major plenty. I can’t seem to shake it. Did a Z-pack and it helped a little and taking 2000mg vita c daily as well drinking over a gallon of water daily! I want this GONE NOW!. Breathing is fine lymph nodes still gonzoed and not feeling super bad but the cold /flu issue day scare me a little and and all comments will be greatly appreciated thanks as always and hope all are kickn CLL rear end

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haposwald
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6 Replies
haposwald profile image
haposwald

PLHEM not plenty auto correct spelling I’m going to disable

LovecuresCLL profile image
LovecuresCLL

I think we all get a cold or flu even if you don’t have CLL. Just check your absolute neutrophil count with your doctor . Find out how low it is and if that’s why you are getting flu. Sounds like you are having some side effects with hypertension and are somewhat immunocompromised from CLL and treatment.

Just be patient let your body heal, you will feel better soon. Notify doctor of these things and don’t take armchair medical advice from us only.

Thanks for saying hello!

-John newbie CLLer.

Jonquiljo profile image
Jonquiljo

Losartan can cause upper respiratory symptoms. In fact, I take Olmesartan (same class of drug with similar side effect profile), and I have runny nose, congestion, sore throat, etc. I may have symptoms which I don't even know are blood pressure drug related.

I’d ask your Dr. - one that cares enough to check things out. At times, I can say that these symptoms are not minor. I don’t feel like I have the flu, etc. , though. Some people will cough on Losartan too.

Good luck.

haposwald profile image
haposwald in reply toJonquiljo

My biggest concern is the sticky dark green phelm that seems to always be there now!

IRN83 profile image
IRN83

I was on IB for one year. Like you I continued to get sick almost every month. The doctor discovered my IGG was very low. Ultimately I got so sick I had to be admitted to the hospital. An X-ray showed that I had a very bad case of pneumonia. But after 4 days of antibiotics there was no change. So I had several lung biopsies that all came back negative. The doctors were stumped. But my oncologist figured it out. I had a rare side effect from the IB called pneumitous (sp?). Once I stopped taking IB my lungs cleared. Strange. I hope this isn't your case but you might want to mention this to your doctor or keep it in mind. Good luck, I hope things get much better quickly.

haposwald profile image
haposwald in reply toIRN83

Thanks I will ask!

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