Posts - CLL Support | HealthUnlocked

CLL Support

23,138 members • 39,744 posts

All posts for September 2018

adverse reaction to aromatherapy?

The cancer nurse at my GP practise suggested I might like to take advantage of various treatments our local hospice provides for cancer sufferers. I went...

The cancer nurse at my GP practise suggested I might like to take advantage of v...

Mandy56

•6 years ago

19 Replies

Appointment update

Hi Everyone, Well today was D Day, the appointment for the results of several blood tests and a Ct Scan and the discussion of which treatment. I have worried...

Hi Everyone, Well today was D Day, the appointment for the results of several b...

stunned

•6 years ago

6 Replies

An unusual case?

I was diagnosed with stage 4 lung cancer, metastasised to ribs, hip and liver in January this year after having CLL for nine years. The targeted drug,...

I was diagnosed with stage 4 lung cancer, metastasised to ribs, hip and liver in...

Jabb-UK

•6 years ago

25 Replies

Want to take advantage of all our features? Just log in!

CLL Society Weekly Alert

http://campaign.r20.constantcontact.com/render?m=1120967015548&ca=5ba78127-52a5-4bc2-af6c-33d6c0c6710a - Website The Basics Living Well with CLL -...

http://campaign.r20.constantcontact.com/render?m=1120967015548&ca=5ba78127-52a5-...

lankisterguy

Volunteer•6 years ago

Be the first to reply

Is Fenbendazole useful in treating CLL?

I'm relatively new to CLL, having been diagnosed a little over a year ago. I'm currently in a Wait and Watch status, but I've been curious about how we are...

I'm relatively new to CLL, having been diagnosed a little over a year ago. I'm c...

Cobra73

•6 years ago

6 Replies

Why did my IGHV test not run

Hello, disappointed today, my IGHV test did not run, having little sleep last night thinking about the results. So now they will do the test again. However I...

Hello, disappointed today, my IGHV test did not run, having little sleep last ni...

Annieareyouok

•6 years ago

3 Replies

MDS

What is MDS

Belkin123

•6 years ago

1 Reply

Shingles

Please give information on the Shingles vaccine for us with CLL. I had my first Shingles DX and after I am cleared, I want the vaccine. Diagnosed CLL 2013,...

Please give information on the Shingles vaccine for us with CLL. I had my firs...

JC70

•6 years ago

32 Replies

Imbruvica and High BP/Cholesterol

Hi everyone: Im "Offeritup". I am new to this community. I have had CLL since 2014, and have been in remission for 6 months. I was wondering if anyone...

Hi everyone: Im "Offeritup". I am new to this community. I have had CLL since...

offeritup

•6 years ago

3 Replies

Antibiotics

Which antibiotics interact with imbruvica....I am on 2 and my stomach is in agony..I also have an ulcer....brutal...will be off the one tomorrow....

Which antibiotics interact with imbruvica....I am on 2 and my stomach is in agon...

tlcladygiraffe

•6 years ago

19 Replies

Recently I'd treatment needed

Hi hubby 49 diagnosed CLL in February been on watch & wait know needs treatment yd last week, quick question he has swollen ankles bottom legs any body else...

Hi hubby 49 diagnosed CLL in February been on watch & wait know needs treatment ...

Duder

•6 years ago

13 Replies

Imbrutinib resistance

Is it better to be mutated or not mutated for Imbrutinib resistance?

jenxgen

•6 years ago

11 Replies

IVIG Infusions

Have been on watch and wait for almost 3 years. Because I have had pneumonia 4 times in the last 2 years I will need IVIG infusions. I am anxious and afraid....

Have been on watch and wait for almost 3 years. Because I have had pneumonia 4 t...

bayside64

•6 years ago

17 Replies

My 20 years with CLL

Diagnosed with CLL in 1998 and spent the first six years in Watch & Wait. There was not many chemo options in those W&W years. In 2004 with my whites at 90,00,...

Diagnosed with CLL in 1998 and spent the first six years in Watch & Wait. There ...

FLSurvivor

•6 years ago

13 Replies

Probiotics are mostly useless and can actually hurt you

This is the outcome of a study into the effects of probiotics on healthy people, not those immunocompromised! “Relying on faecal samples as an indicator...

This is the outcome of a study into the effects of probiotics on healthy people,...

AussieNeil

Administrator•6 years ago

24 Replies

Thoughts on Car-T?

Hi Everyone, I haven't been here for years, but thought I'd jump on to say hello and ask what people's vibe is regarding Car-T and the news that it is to be...

Hi Everyone, I haven't been here for years, but thought I'd jump on to say hello...

zentangle

•6 years ago

16 Replies

Sinus bradycardia

Hi ,due to start ibrutinib on Tuesday, had ecg today and now have sinus bradycardia ( slow heartbeat) will this prevent my treatment? Thanks for your help...

Hi ,due to start ibrutinib on Tuesday, had ecg today and now have sinus bradycar...

Stacky66

•6 years ago

3 Replies

Statin use/cholesterol management during venetoclax

Has anyone had to use statins/cholestorol reducing meds during venetoclax? In particular has anyone used ezetrol or crestor? My Dad was on statins prior to...

Has anyone had to use statins/cholestorol reducing meds during venetoclax? In pa...

jaye0

•6 years ago

3 Replies

Facebook profile - Make Blood Cancer Visible

If anyone wants to change their facebook profile picture to have the Make Blood Cancer Visible logo you can go to facebook.com/profilepicframes and Search:...

If anyone wants to change their facebook profile picture to have the Make Blood ...

Myrddin

•6 years ago

2 Replies

Hydration for venetoclax

Does anyone have any advice on how much water to drink each day? Should this increase with the ramp up each week? Thank you.

Does anyone have any advice on how much water to drink each day? Should this inc...

jaye0

•6 years ago

5 Replies

Just got my FISH results

Hi everyone, I've just been to see my haematologist for my FISH results, the first since diagnosed 3 weeks ago. He says I have both the 11q and 13 deletions. I...

Hi everyone, I've just been to see my haematologist for my FISH results, the fir...

fugazi

•6 years ago

15 Replies

TPLL - Experience with venetoclax/similar treatment

Hello. I hope it is okay to post here as it is very difficult to find dedicated TPLL forums for discussion. My Dad was diagnosed with TPLL in 2013 after...

Hello. I hope it is okay to post here as it is very difficult to find dedicated ...

jaye0

•6 years ago

10 Replies

Agent Orange

Hi all....someone said here that there are no dumb questions, so mine is this: I was a ground pounder in Vietnam, Agent Orange defoliation everywhere, and was...

Hi all....someone said here that there are no dumb questions, so mine is this: ...

Totffe

•6 years ago

6 Replies

DIAGNOSIS today cll/sll

Got my "official " diagnosis today....even though I full suspected it. I will have a baseline ct scan the end of the month then see my dr in Jan 2019. We...

Got my "official " diagnosis today....even though I full suspected it. I will h...

Pat351v

•6 years ago

8 Replies

2 nd fcr day over

A big thank you for all your good wishes and advice, I sailed through second day no reactions at all, now a break till October once again thank you for all...

A big thank you for all your good wishes and advice, I sailed through second day...

dandelup

•6 years ago

13 Replies

Not even a week on Acalabrutinib and...WOW!

Hi, all. Well, I've been in the Dana-Farber clinical trial for almost a week, starting with Acalabrutinib. This weekend, after four full days on it, my right...

Hi, all. Well, I've been in the Dana-Farber clinical trial for almost a week, st...

Lily_Pad_Master

•6 years ago

39 Replies

Completely lost appetite

Hi there I hope everybody is doing well here. Very soon I am going to start my first cycle of FCR. The problem is that there is loss of appetite not due to...

Hi there I hope everybody is doing well here. Very soon I am going to start my f...

MoSamir

•6 years ago

27 Replies

Newbie on Ibrutinib

Diagnosed in the fall of 2013. Six rounds of chemo over 6 month period in 2016-2017 proved unsuccessful. Started on Ibrutinib capsules (3 per day) in June...

Diagnosed in the fall of 2013. Six rounds of chemo over 6 month period in 2016-...

kirkdr

•6 years ago

12 Replies

The Use of Novel PI3K Inhibitors in CLL - Dr Jennifer Brown MD Dana-Farber Cancer Institute

The Use of Novel PI3K Inhibitors in CLL...

lankisterguy

Volunteer•6 years ago

7 Replies

First dose over

Just had my first day of fcr, had slight blip halfway through got the shivers and for some reason got very emotional don’t ask me why, the nurses reckon it’s...

Just had my first day of fcr, had slight blip halfway through got the shivers an...

dandelup

•6 years ago

20 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for September 2018

adverse reaction to aromatherapy?

Appointment update

An unusual case?

CLL Society Weekly Alert

Is Fenbendazole useful in treating CLL?

Why did my IGHV test not run

MDS

Shingles

Imbruvica and High BP/Cholesterol

Antibiotics

Recently I'd treatment needed

Imbrutinib resistance

IVIG Infusions

My 20 years with CLL

Probiotics are mostly useless and can actually hurt you

Thoughts on Car-T?

Sinus bradycardia

Statin use/cholesterol management during venetoclax

Facebook profile - Make Blood Cancer Visible

Hydration for venetoclax

Just got my FISH results

TPLL - Experience with venetoclax/similar treatment

Agent Orange

DIAGNOSIS today cll/sll

2 nd fcr day over

Not even a week on Acalabrutinib and...WOW!

Completely lost appetite

Newbie on Ibrutinib

The Use of Novel PI3K Inhibitors in CLL - Dr Jennifer Brown MD Dana-Farber Cancer Institute

First dose over

Search posts

Pinned Posts

Latest poll

Part 2 of How well do you know HealthUnlocked's features? Rate yourself on this multichoice poll. Answers later or you can check Help!

Topics

Archive