2 nd fcr day over: A big thank you for all your... - CLL Support

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2 nd fcr day over

dandelup profile image
13 Replies

A big thank you for all your good wishes and advice, I sailed through second day no reactions at all, now a break till October once again thank you for all your kind words of support.

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dandelup
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13 Replies
Gailandbert profile image
Gailandbert

Great news . A third of the way through

Best

Gail

Gailandbert profile image
Gailandbert

Ignore earlier reply - I thought you were on session no 2 ! No brain . Still , glad all is going well .

Gail

dandelup profile image
dandelup in reply toGailandbert

Thank you Gail much appreciated

Jm954 profile image
Jm954Administrator

🎉👍😃🎈🎊

JigFettler profile image
JigFettlerVolunteer

Hi! Good news. Relax. Do stuff that brings you joy. Avoid infection. Keep fluids up. Keep active. Eat good food.

Just wondering... are you on a 2 day FCR regime... mine is a 3 day regime...?

We're are in sync, having completed day 2, albeit cycle 5. Feeling good.

Jig. UK

dandelup profile image
dandelup in reply toJigFettler

No mine was only two days for first week subsequent treatments will be just one day of infusion 5 days tablets

JigFettler profile image
JigFettlerVolunteer in reply todandelup

Ok. Understood! I am on 3 days of F and C. Same difference. My initial infusion was supposed to be 2 days, ended up 5 days due to reactions to the Retux infusion. Week 2 of round 1 onwards felt amazing. Hoping to hear same from you! I still savour feeling normal, daily!!!

Take it easy, a lot going on inside yr body this month. Keep fluids up.

John

dandelup profile image
dandelup in reply toJigFettler

Thanks John your advice will be taken I do feel very tired this morning I think I am also in mild shock at what has happened the past two days one thing I have noticed is I am no longer getting the sweats which where a daily occurrence, am slightly chilly today but temperature normal and everything else good so intend to have a day of rest and water intake

AnneHill profile image
AnneHill in reply todandelup

so glad you have got the first treatment done. Take it easy as others have said. Best of luck, Anne

Gfree profile image
Gfree

Hi

I am on a 6 cycle, 3 day treatment and am half way through it. I have rapid and dramatic improvements on both my numbers and lymph node reductions. However, FCR is strong medicine and I have been working through the side effects. I found that the side effects are worse on the few days after infusion and then start to improve. I am on my third cycle now and found that the first week after my first way tough, but then I recovered. I also found that the initial side effects are not as bad after the first cycle.

I know the side effects are different for all of us and since I am in the States, our teatments might be different, but I thought I would add this to the string

dandelup profile image
dandelup in reply toGfree

Much appreciated all info is valuable

pkpayne profile image
pkpayne

That's what everybody is here for - to support each other. Keep us posted on your progress and may it all go as smoothly as the first round.

Paula

casanova profile image
casanova

So pleased everything going so well. Just be aware of chills even without a temperature as sepsis can set in so quickly. I ignored chills after my first FCR treatment and ended up in hospital for nearly three weeks due to sepsis and my ignorance. Hopefully your feeling chilly is just down to tiredness. Hope all continues to be good for you

Maureen UK

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