I'm relatively new to CLL, having been diagnosed a little over a year ago. I'm currently in a Wait and Watch status, but I've been curious about how we are progressing with treatments. In doing a little research unrelated to CLL I ran across an article from a man that had Stage 4 lung cancer and was given only three months to live...Willing to try anything, he took the advice of a friend and tried a drug called Fenbendazole which is normally used by veterinarians to treat dogs for worms. Miraculously, his condition improved and the Doctor's at MD Anderson were astonished. My question is, has anyone else heard of using this drug and is it viable for blood cancers?
Is Fenbendazole useful in treating CLL? - CLL Support
Is Fenbendazole useful in treating CLL?
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I have never heard of it used in CLL in 20 years... but you never know...
npr.org/sections/health-sho...
~chris
is anything ending in zole a fungal med? Is possible a fungus was eliminated?
Its used for parasites, primarily pinworms.
The suffix is azole...
My fav... antifungal is one of these, which keeps the fungus in check.
Posaconazole... or posy-cosy, as I affectionately refer to it...😋
I was on wait and watch for over 7 years before I started taking Ibrutinib. By the time you need actual treatment (hopefully several years from now) you will have an even better chance of surviving long term, do to the advancement in treatment coming your way.
Cheers,
Barger1951
Well,..... I just came across this pin-worm drug tonight, but it reminds me of Artemisinin in that along with being the most impressive contemporary treatment worldwide for malaria, evidently Artemisinin is used for other parasitic maladies as well... Artemisinin was an ancient Chinese herb rediscovered several decades ago, and a female Chinese scientist got the Nobel Peace Prize some time back for rediscovering it..... A Doctor in California has two very interesting videos on YouTube about Artemisinin..... Two scientists (One from China, the other from India) have been studying it for about twenty years now at University of Washington..... They seem to be trying to synthesize an analog to Artemisinin to amplify its' efficacy,..... AND to "tweek" it so that its' derivative will then be patentable... (My personal speculation,..... as ONLY THIS would then make Artmisinin ($$$)"interesting"($$$) to the BIG-PHARMA heavies.....)
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That inappropriate post has now been removed for the reasons you’ve cited.
Newdawn
I've been taking 150mm or more per day of Artemisinin capsules for almost 6 years... With only 4 or so exceptions. all of my bllod panel results have presented NO LYMPHOCYTOSIS since early 2020. The four exceptions wherein I DID present LYMPHOCYTOSIS were mild, and barely in the red,... somewhere around around ~4,5000 absolute... Recently however I was surprised to see me temporarily jumping up to over 6,000 absolute while in Veracruz, Mexico due to a bronchial infection, and mild asthma... I curious about fenbendazol as welpl though... Actually, these days I'm more concrrned about my liver, and would be absolutely DELIGHTED to find a natural herb that would shrink my prostate (benign hyperplasia of the prostate) without exacerbating my N.A.F. L.D. (from stage 1 to stage 2) in my liver... Remember,... 30% or more of C.L.L. folks die years later WITH C.L.L. rather than from it... If your bone marrow biopsy presents NEGATIVE Zap-70, and NEGATIVE CD-38 (as well as perhaps some other markers that I've personally never been tested for) those are good signs...
Correction;... Almost 5 years taking Artemisinin.