Posts - CLL Support | HealthUnlocked

CLL Support

22,532 members • 38,709 posts

All posts for September 2018

Cough

Hi...anyone else having a cough as a side effect of imbruvica?I was fine til 1 month ago..had been n the meds for 11 months...now I have this persistent...

Hi...anyone else having a cough as a side effect of imbruvica?I was fine til 1 ...

•6 years ago

News from BBC today re CAR-T cell treatment

While we’ve been seeing information on this for a while now and it is not directly related to CLL it shows the future creeping nearer. To me another step in...

While we’ve been seeing information on this for a while now and it is not direct...

•6 years ago

Anyone from #Alberta?

Hi, my name is Donna and I’m new here. This is my first post. I was diagnosed with CLL in April, 2017, Stage 0, W &W. Anyone from #Alberta?

Hi, my name is Donna and I’m new here. This is my first post. I was diagnosed w...

QuiltingGrandma

•6 years ago

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One year on from FCR - and I feel great

Teachers in the UK return to work this week after our summer holiday. For me, a teacher returning to his 23rd 'Start of the year' this year I am reminded that...

Teachers in the UK return to work this week after our summer holiday. For me, a ...

•6 years ago

reply to lenzellpetty regarding tablets to capsules of imbruvica.

I originally asked if anyone had the same issue as me. You answered your count also started to climb on the tablets. Well, I went back to the capsules one week...

I originally asked if anyone had the same issue as me. You answered your count a...

•6 years ago

Cll and chemo this is my first

I have cll my and now the test show bile duk dilated.my first treatment og chemo is this week my count is 154.000. Is tge bile duck another issue. Will i get...

I have cll my and now the test show bile duk dilated.my first treatment og chemo...

•6 years ago

CLL Ireland's winning poster at CLL Horizons 2018 that took place in Prague

The team at CLL Ireland are proud to win The Best Poster @ CLL Horizons 2018. A big thanks to all that voted for us and to the CLL Advocates Network for...

The team at CLL Ireland are proud to win The Best Poster @ CLL Horizons 2018. A ...

•6 years ago

Kidney stones on veneclexta and Gayzva

Anyone experiencing this ? Spent the day in emergency room yesterday and still in tremendous pain and lidocaine patches not pain killer work ???? I have had...

Anyone experiencing this ? Spent the day in emergency room yesterday and still i...

•6 years ago

Venetoclax and ibrutinib trial

Hello, I’m on month 19 of a 26 month trial taking Venetoclax & ibrutinib plus aciclovir, co-trimoxazole, lansoprazole & allopurinol to counteract side effects...

Hello, I’m on month 19 of a 26 month trial taking Venetoclax & ibrutinib plus ac...

•6 years ago

CLL Advocates Network Horizons conference just completed in Prague

Very proud that CLL Ireland is working closely with other advocates around the world, sharing best practices on access to the newer treatments and all things...

Very proud that CLL Ireland is working closely with other advocates around the w...

•6 years ago

conditions.

I have been on Imbruvica for several months. Oncologist seems pleased with the labs. In addition to Waldenstrom’s I also have RA and wonder if my lack of...

I have been on Imbruvica for several months. Oncologist seems pleased with the l...

•6 years ago

Vietnam War Veteran USAF

Diagnosed with CLL in 2012, but just within the last 6 months found out it could be due to my exposure to Agent Orange while stationed at Ubon RTAFB, Thailand...

Diagnosed with CLL in 2012, but just within the last 6 months found out it could...

•6 years ago

Thanks!

Thank you for posting! Interesting article indeed.

Thank you for posting! Interesting article indeed.

•6 years ago

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