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Website The Basics Living Well with CLL
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Hello, Friends and Supporters of the CLL Society.
Blood Cancer Awareness Month takes place every September. The CLL Society joins 100s of other nonprofits and charities in promoting awareness. Pooled together, blood cancers (leukemia, lymphoma, and myeloma) would make the 4th most common cancer and a leading cause of cancer deaths. Too many blood cancers remain incurable. Too many patients suffer from problems from the cancer itself or its treatment. While our cancer may be invisible, that doesn't make it easy.
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September 15 is Lymphoma Awareness Day (LAD). Since CLL is both a leukemia and lymphoma, we join our electronic hands with other nonprofits, charities, and individuals across the globe helping those living with lymphoma.
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CLL Society is a proud member of the international Lymphoma Coalition and serves on the steering committee of the CLL Advocacy Network (CLL-AN). As I mentioned last week, it was CLL-AN that sponsored the recent international meeting in Prague where Brian and I spoke in front of advocates from 27 different countries.
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Please support the CLL Society and others who help those with blood cancer live longer and stronger lives.
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Watch and Wait
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This week Brian has written on one of the most counter-intuitive aspects of CLL, Watch and Wait, presenting historical data and new research done by the CLL Society.
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Expert Access is open!
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Don't have access to a CLL expert? Need a second opinion? We are pleased to offer this free resource for patients who need access to a CLL expert through a HIPAA compliant online video consultation.
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CLL/SLL patients in the US can advance research NOW with just a few clicks!
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The CLL Society is pleased to announce its collaboration with the Leukemia & Lymphoma Society (LLS) on the LLS National Patient Registry project (LLS-NPR). We are excited to have this unique opportunity to be at the forefront among blood cancer disease organizations in the United States.
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To learn more, click these links to read our press release and to watch a 2-minute video that explains the project further.
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Upcoming Special events:
Lymphoma Research Foundation Sponsored Meeting
Thursday, September 13 from 1:30 PM to 2:30 PM Eastern Time
The Lymphoma Research Foundation invites you to attend a FREE workshop teleconference: The Emerging Role of Immunotherapy in the Treatment of Lymphoma featuring Bruce D. Cheson, MD, FACP, FAAAS, FASCO from Georgetown University Hospital, Lombardi Comprehensive Cancer Center, Caron Alyce Jacobson, MD from Harvard Medical School, Peggy Ann Torney from Lymphoma Research Foundation, and Carolyn Messner, DSW, OSW-C, FAPOS, FAOSW from CancerCare. Find out more information and register here.
Prime Education Sponsored Webinar
Monday, September 17, 2018 at 2:00 PM Eastern / 11:00 AM Pacific
Real-World Patient Experiences & Evidence-based Treatment Strategies in CLL/SLL and FL Patients. A webinar featuring Dr. Danielle Brander and Dr. Larry Saltzman. Find out more information and register here.
San Diego Center for Precision Immunotherapy Symposium
Monday, September 17, 2018 from 7:00 AM to 12:30 PM in San Diego, CA
Targeting Myeloid Innate Immune Pathways in Cancer. While not specifically about CLL, this might be of interest for those looking at how cancer research is progressing. Please join hosts, Drs. Judy Varner, Ezra Cohen and Stephen Schoenberger, for an exciting SDCPI symposium highlighting important contributions of myeloid and innate immune pathways in cancer. Find out more information and Register here.
CLL-Specific Support Group Meetings Coming Up!
Tuesday, September 11th at 7:00 PM in Orange, CA - The Orange County CLL Support Group, sponsored by the CLL Society will be meeting. More information here.
Wednesday, September 12th at 7:00 PM in Salt Lake City, UT - The Salt Lake City CLL Support Group, sponsored by the CLL Society will be meeting. More information here.
Thursday, September 13th at 7:00 PM in Plainview, NY - The Long Island CLL Support Group, sponsored by the CLL Society will be meeting. More information here.
Saturday, September 15th at 3:00 PM in Vienna, VA - The Washington DC-area CLL Support Group, sponsored by the CLL Society will be meeting. More information here.
Saturday, September 15th at 10:30 AM in Tampa, FL - The Central Florida CLL Support Group, sponsored by the CLL Society will be meeting. More information here.
Saturday, September 15th at 10:00 AM in Belmont, NC - The Charlotte CLL Support Group, sponsored by the CLL Society will be meeting. More information here.
Saturday, September 15th at 12:00 PM in Los Angeles, CA - The Westside LA CLL Support Group, sponsored by the CLL Society will be meeting. More information here.
Sunday, September 16th at 3:00 PM in New York City - The New York City CLL Support Group, sponsored by the CLL Society, will be meeting. More information here.
Sunday, September 16th at 4:00 PM in San Francisco, CA - The San Francisco CLL Support Group, sponsored by the CLL Society will be meeting. More information here.
Monday, September 17th at 7:00 PM in Duarte, CA - The City of Hope CLL Support Group, sponsored by the CLL Society will be meeting. More information here.
Tuesday, September 18th at 7:00 PM in Chicago, IL - The Chicago CLL Support Group, sponsored by the CLL Society will be meeting. More information here.
Thursday, September 20th at 6:00 PM in Milwaukee, WI - The Milwaukee CLL Support Group, sponsored by the CLL Society will be meeting. More information here.
Thursday, September 20th at 7:00 PM in Minnetonka, MN - The Twin Cities CLL Support Group, sponsored by the CLL Society will be meeting. More information here.
Tuesday, September 20th at 7:00 PM in Denver, CO - The Denver CLL Support Group, sponsored by the CLL Society will be meeting. More information here.
Saturday, September 22nd at 10:00 AM in Nashville, TN - The Nashville CLL Support Group, sponsored by the CLL Society will be meeting. More information here.
That's it for now.
Stay strong.
We are all in this together!
Patty
Patricia Koffman/ Co-Founder and Executive Director
CLL Society Inc.
P.O. Box 1390
Claremont, CA 91711
September 11, 2018
VISIT OUR WEBSITE
The CLL Society Inc. is a patient-centric, physician-curated nonprofit focused on patient education and patient support. Dedicated to addressing the unmet needs
of the CLL and related blood
cancer communities, it explains the rapidly changing therapeutic landscape and the importance of clinical trials, supports and builds patient networks, and educates providers and patients alike
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Another 12 weeks with CLL 
UK Zoom meeting - COVID-19 and shielding update for UK CLL Patients
