DIAGNOSIS today cll/sll: Got my "official... - CLL Support

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DIAGNOSIS today cll/sll

Pat351v profile image
8 Replies

Got my "official " diagnosis today....even though I full suspected it. I will have a baseline ct scan the end of the month then see my dr in Jan 2019. We will do blood draws every 4 mos. WBC actually reduced from 42.6 to 30.9 in 5 weeks and absolute lymphocytes reduced from 32 to 22. Still high but reduced naturally. Do I begin my new normal...she said go live like you have been! Continue to plan your daughter's wedding and see you after the holidays! I'm doing ok

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Pat351v
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8 Replies
Pat351v profile image
Pat351v

PS. It's low grade

Jm954 profile image
Jm954Administrator

You’re not doing OK Pat, you’re doing GREAT!! Fantastic news 😃👍

Pat351v profile image
Pat351v in reply toJm954

Thank you so much!

Kathp profile image
Kathp

That is good news! It’s now just the waiting game like me. My figures are similar to yours and I am seen by the haematology consultant every six months and have bloods done every 3 months). I was diagnosed in Oct 2016.....tiredness every now and again and the odd ear infection are my only symptoms so far!

Very best wishes x

Pat351v profile image
Pat351v in reply toKathp

Thank you! Positive thoughts

DoriZett profile image
DoriZett

That's what you want to hear! Now do you need dance lessons for your daughters wedding? ;)

Pat351v profile image
Pat351v

Haha. Thank you

GoldenPaint profile image
GoldenPaint

Hi Pat,

So glad to hear of your news! I’m new here and was diagnosed just this last Monday with cll. My wbc and absolute counts are similar to yours so I’m curious if you were doing anything proactive to bring them down? (supplements, diet etc...) I have my BMB and CT scan on Wednesday to get my baseline and then we’ll see. My best to you and thanks!

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