Most people in the "CLL world" are familiar with Andrew Schorr, a CLL patient for over 20 years and his wife, Esther. They are also co-founders of Patient Power. Earlier this week, they hosted a live Facebook Q&A session where they shared their story, talked about patient empowerment/centricity and answered audience questions. Check it out here- facebook.com/PatientPower.I...
They plan on doing more of these in the future so leave a comment offering your thoughts and suggestions!
We always enjoy watching Esther and Andrew informative sessions for Patient Power. We are also trying to emulate their example and make something positive come out of our Cll journey.
My social entrepreneur husband received treatment for Cll last year and during his treatment in Dublin developed a treatment planner app. It is free to download in all the main app stores.
Treatment planner mission is simply trying to make a difference to people living with a chronic illness.
We would like to hear if there are any other people with Cll who like us strongly believe in patient empowerment and in their own way enabling others to regain some control of their situation
Please give our suggestion your utmost consideration.
Take a plane to Seattle to meet and learn more
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Ibrutinib and gum bleeding 
CNS involvement with CLL
