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CLL Support

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All posts for March 2016

Chemotherapy-Induced Peripheral Neuropathy Overview from the CancerNetwork

Chemotherapy-induced peripheral neuropathy (CIPN) is a common treatment-related side effect of several widely used drugs, including those used in CLL...

Chemotherapy-induced peripheral neuropathy (CIPN) is a common treatment-related ...

AussieNeil

Administrator•8 years ago

4 Replies

eye problems

Hi I wonder if this problem I have is any thing to do with CLL it started about 12-15 months ago my left eye started weeping it would do it for a few hours or...

Hi I wonder if this problem I have is any thing to do with CLL it started about ...

mush56

•8 years ago

16 Replies

"Reimagining the Hospital Experience of Cancer" - Contest seeking ideas to improve the experience for people affected by CLL

Do you have ideas that could help improve the hospital experience of people living with cancers like CLL or SLL? We all know that the hospital experience...

Do you have ideas that could help improve the hospital experience of people livi...

HAIRBEAR_UK

Founder Admin•8 years ago

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Dr. Pagel on the Risks of Frontline Idelalisib and some upcoming meetings and support groups

Friends, Very apropos to the recent withdrawal of trials of idelalisib frontline, this week in the 2015 Conference Coverage section of the CLLSociety.org...

Friends, Very apropos to the recent withdrawal of trials of idelalisib frontlin...

bkoffman

CLL CURE Hero•8 years ago

2 Replies

361.64

Hi Everyone Training is going well and we have raised 361.64 for the Cllsa so far 2900 members that equates to just over 12p each- come on guys lets make it...

Hi Everyone Training is going well and we have raised 361.64 for the Cllsa so ...

Hidden

•8 years ago

13 Replies

My first treatment

I had Chlorambucil a 6 mg/day ,seven days:1-7 March,with Allopurinol a 300mg/day (11days) My side effekt was milde haedoche,irritation...

I had Chlorambucil a 6 mg/day ,seven days:1-7 March,with Allopurinol a 300mg/day...

Name-1

•8 years ago

23 Replies

What's New in Version 1.1.2 of Treatment Planner

The following changes have been made after feedback from our users: - Import from address book in support groups and locations - Bug fixes and performance...

The following changes have been made after feedback from our users: - Import fro...

TreatmentPlanner

•8 years ago

2 Replies

Technology used in FISH testing shows promise for developing better drugs

Many of us have had a FISH (Fluorescence In Situ Hybridization) test to find out our prognostic factors - what genetic damage is driving our CLL. There's some...

Many of us have had a FISH (Fluorescence In Situ Hybridization) test to find out...

AussieNeil

Administrator•8 years ago

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Hot flushes

I had some chemotherapy (FCR) last year and now my bloods are improving all the time. The thing that reminds me that I've still got Cll is the hot flushes....

I had some chemotherapy (FCR) last year and now my bloods are improving all the ...

snowdroprose

•8 years ago

17 Replies

Iv reaction

My husband is getting ready to start his 5th round of BR. After the last one he got a large bump and redness where the iv was placed. They said this was a...

My husband is getting ready to start his 5th round of BR. After the last one he ...

Chriskw68

•8 years ago

8 Replies

1985 early computer workers r s

Are there many people on here with call who worked on the early computers , IBM , etc ?

Are there many people on here with call who worked on the early computers , IBM ...

Jsk1950

•8 years ago

16 Replies

Antibiotics added to Ibrutinib as result of of Idealisib problems

On FLAIR trial. Having stopped Ibrutinib for a week due to side effects of extreme muscle pain, I began again with low dose of 1 pill. After 12 days (fingers...

On FLAIR trial. Having stopped Ibrutinib for a week due to side effects of extr...

romarin

•8 years ago

6 Replies

What now? ...after BR

My husband has his 6th round of BR chemotherapy this week...I'm wondering what happens now? Do we just go away and wait for the CLL to return? During his...

My husband has his 6th round of BR chemotherapy this week...I'm wondering what h...

alice111

•8 years ago

18 Replies

Diagnosed at 40

Having been diagnosed with CLL on Tuesday I have had a week of many emotions. I am 40 years old and fit and healthy, but for a infected facial spot in November...

Having been diagnosed with CLL on Tuesday I have had a week of many emotions. I ...

rspencer75

•8 years ago

54 Replies

If you ever feel stupid

-- If you ever feel a little bit stupid, just dig this up and read it again; you'll begin to think you're a genius.....

-- If you ever feel a little bit stupid, just dig this up and read it again; you...

shazie

•8 years ago

7 Replies

Irish Daffodil day

In Ireland today is daffodil day. My family and I volunteer every year on daffodil day to raise awareness and funds for the Irish Cancer Society. It truly...

In Ireland today is daffodil day. My family and I volunteer every year on daffod...

Groetjes

•8 years ago

5 Replies

Idelalisib Trial frozen!

Was starting a trial on Monday with Idelalisib. Today I've been told the trial has been frozen. Have to discuss with the team at Birmingham next week. MRI and...

Was starting a trial on Monday with Idelalisib. Today I've been told the trial h...

Aklambert

•8 years ago

28 Replies

New version of Treatment Planner is now available

What's New in Version 1.0.9 The following changes have been made after feedback from our users: - Changed the Date Format for U.S. users. - Added save as...

What's New in Version 1.0.9 The following changes have been made after feedback ...

TreatmentPlanner

•8 years ago

10 Replies

spleen scan

I am having a spleen scan today due to the fact that I am having pain when I eat a main meal. The consultant doesnt think my spleen is enlarged but obviously...

I am having a spleen scan today due to the fact that I am having pain when I eat...

janloveslife

•8 years ago

4 Replies

Explainer: what happens to your skin when you get sunburnt?

For a great, easy to read explanation on how our skin reacts to sunburn, accompanied by a memorable picture of why DIY is NOT a good idea when it comes to...

For a great, easy to read explanation on how our skin reacts to sunburn, accompa...

AussieNeil

Administrator•8 years ago

1 Reply

Cancer Network tips for the Immunocompromised Traveller - that's us :(

Here's a one page overview of recommended preparations we would be very wise to follow to ensure health-wise trouble free travels. The accompanying tables...

Here's a one page overview of recommended preparations we would be very wise to ...

AussieNeil

Administrator•8 years ago

2 Replies

Sooo is it a new problem to see Lymphoma cells in my blood work??

WBC4.00 - 10.80 K/uL19.24H RBC3.85 - 5.15 M/uL 4.57 HGB12.0 - 15.3 g/dL13.3 HCT36.0 - 45.2 % 40.9 MCV81.5 - 97.5 fL 89.5 MCH27.0 - 34.0...

WBC4.00 - 10.80 K/uL19.24H RBC3.85 - 5.15 M/uL 4.57 HGB12.0 - 15.3 g/dL13...

goneblonder

•8 years ago

11 Replies

Beware artichoke soup!

I ate a bowl of delicious jerusalem artichoke (sun chokes) soup in a restaurant 3 days ago and am still suffering. I looked it up and apparently it is the most...

I ate a bowl of delicious jerusalem artichoke (sun chokes) soup in a restaurant ...

romarin

•8 years ago

10 Replies

FLAIR Ibrutinib stopped because of pain

So I stopped the Ibrutinib for a week because of severe and debilitating pains, after 2 or 3 days felt much better. No pain. Furthermore my blood results...

So I stopped the Ibrutinib for a week because of severe and debilitating pains, ...

romarin

•8 years ago

11 Replies

Dr. Stilgenbauer: Resistance to ibrutinib in relapsed and refractory patients with 17p deletion and News about CLL Meeting across the USA

Friends, This week in the 2015 Conference Coverage section of the CLL Society website, we have posted a continuation of my interview with Dr. Stephan...

Friends, This week in the 2015 Conference Coverage section of the CLL Society w...

bkoffman

CLL CURE Hero•8 years ago

3 Replies

Searching for CLLers in Hong Kong

Dear CLL friends. I’ve been part of this group for quite a while and, thank God, continue to do well although my WBC is inching up a bit. I know there are...

Dear CLL friends. I’ve been part of this group for quite a while and, thank God,...

andrewschorr

•8 years ago

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Finally went for update on my CT Scan

For those who remember back in October I ran from my Doctors office prior yo receiving my CT Scan results. Today I went back and found out all is perfect with...

For those who remember back in October I ran from my Doctors office prior yo rec...

CCLandwell

•8 years ago

35 Replies

Thankful to be Healing

A week or so ago , I had a lymph node or ant bight in my right arm pit. And an egg size bump on my bottom. The worry was tremendous, now I'm so glad I saw my...

A week or so ago , I had a lymph node or ant bight in my right arm pit. And an e...

ballyhoo

•8 years ago

4 Replies

Ibrutinib enhances chimeric antigen receptor T-cell engraftment and efficacy in leukemia

"In this study, we demonstrated that ibrutinib treatment enhances the feasibility of generating CAR T cells from CLL patients." "Given that 90% or more of...

"In this study, we demonstrated that ibrutinib treatment enhances the feasibilit...

kebnekaise

•8 years ago

7 Replies

ASH 2015: Dr. John M Pagel on the Problems with Idelalisib as Frontline Therapy in CLL

It has been a while since I posted an interview on my blog first instead of the CLL Society website, but I thought the contrast of the broad approval of...

It has been a while since I posted an interview on my blog first instead of the ...

bkoffman

CLL CURE Hero•8 years ago

8 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for March 2016

Chemotherapy-Induced Peripheral Neuropathy Overview from the CancerNetwork

eye problems

"Reimagining the Hospital Experience of Cancer" - Contest seeking ideas to improve the experience for people affected by CLL

Dr. Pagel on the Risks of Frontline Idelalisib and some upcoming meetings and support groups

361.64

My first treatment

What's New in Version 1.1.2 of Treatment Planner

Technology used in FISH testing shows promise for developing better drugs

Hot flushes

Iv reaction

1985 early computer workers r s

Antibiotics added to Ibrutinib as result of of Idealisib problems

What now? ...after BR

Diagnosed at 40

If you ever feel stupid

Irish Daffodil day

Idelalisib Trial frozen!

New version of Treatment Planner is now available

spleen scan

Explainer: what happens to your skin when you get sunburnt?

Cancer Network tips for the Immunocompromised Traveller - that's us :(

Sooo is it a new problem to see Lymphoma cells in my blood work??

Beware artichoke soup!

FLAIR Ibrutinib stopped because of pain

Dr. Stilgenbauer: Resistance to ibrutinib in relapsed and refractory patients with 17p deletion and News about CLL Meeting across the USA

Searching for CLLers in Hong Kong

Finally went for update on my CT Scan

Thankful to be Healing

Ibrutinib enhances chimeric antigen receptor T-cell engraftment and efficacy in leukemia

ASH 2015: Dr. John M Pagel on the Problems with Idelalisib as Frontline Therapy in CLL

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