Posts - CLL Support | HealthUnlocked

CLL Support

22,532 members • 38,709 posts

All posts for March 2016

Extra signal for IGH/14q (?)

Can anyone tell me what this is. Just got the new FISH results and this was mentioned. Can't tell if it's good or bad or just weird. Virginia

Can anyone tell me what this is. Just got the new FISH results and this was ment...

•8 years ago

An "Aah" moment, perchance?

OK, nothing to do with CLL, but it may give some members a cheerful moment, especially Ozziebee, who I know to be a "cat person". These are twin girls, 7...

OK, nothing to do with CLL, but it may give some members a cheerful moment, espe...

•8 years ago

Imbruvica Approved Frontline in the USA!

This changes everything. This is very good news in contrast to the bad news in the UK....

This changes everything. This is very good news in contrast to the bad news in t...

CLL CURE Hero•8 years ago

Want to take advantage of all our features? Just log in!

or

Is ibrutinib enough?

Hi all, new to posting, so hope to be concise as possible. Currently on ibrutinib now for 14 months with a wonderful response other than the multitude of...

Hi all, new to posting, so hope to be concise as possible. Currently on ibrutini...

•8 years ago

multivitamin and/or supplements?

My husband, aged 55 (diagnosed 18mths ago), full time alpine ski instructor is feeling really jaded and tired. Some fatigue is normal at this time of year, we...

My husband, aged 55 (diagnosed 18mths ago), full time alpine ski instructor is f...

shoppingtrolley

•8 years ago

Anyone out there with a very high ALC and not needing treatment.

I just came back from the Dr. and my ALC is 63.5 getting near treatment. Just wondering if anyone has higher numbers than this and not needing treatment....

I just came back from the Dr. and my ALC is 63.5 getting near treatment. Just w...

•8 years ago

Transferring treatment to another country

I've been told today that I need to start FCR treatment soon for my CLL. This will be my first treatment having been diagnosed in Nov 2011. Trouble is, my wife...

I've been told today that I need to start FCR treatment soon for my CLL. This wi...

•8 years ago

Any way to shrink lymph nodes without full treatment?

Hi, I was diagnosed in late November of 2014. On w&w with appointments every 3 months until my last checkup in October 2015 where they 'signed me off' for 6...

Hi, I was diagnosed in late November of 2014. On w&w with appointments every 3 m...

•8 years ago

Update before starting 2nd FCR treatment v

Hi. My 1st treatment FCR has been challenging to say the least. The actual treatment was what I expected after reading all your messages. The normal tiredness...

Hi. My 1st treatment FCR has been challenging to say the least. The actual treat...

•8 years ago

Lymphangitis - red streaks under your skin require urgent attention!

My local hospital is undergoing an accreditation review this month and I've been helping by auditing from a challenging patient's perspective*. :) Last...

My local hospital is undergoing an accreditation review this month and I've been...

Administrator•8 years ago

Heartburn with Imbruvica

Just curious if anyone suffers from heartburn since you e been taking imbruvica. I've been taking it for a little over a month now and my heartburn is...

Just curious if anyone suffers from heartburn since you e been taking imbruvica....

•8 years ago

Month 6 on iFCR and Going Strong

I last posted four months ago when my wife "NoMoreCLL" began the Ibrutinib plus FCR Study. We're here at the Farber today, on Day 1 of 3, Month 6 of 6 for the...

I last posted four months ago when my wife "NoMoreCLL" began the Ibrutinib plus ...

•8 years ago

25% increase in WBC and total lymphocytes in 2 weeks

I'm waiting for my CLL specialist to get back to me I noticed that my blood test last night but within 2 weeks my total lymphocyte and WBC count have increased...

I'm waiting for my CLL specialist to get back to me I noticed that my blood test...

•8 years ago

Dr. Stephan Stilgenbauer on clonal evolution from the American Society of Hematology and several educational meetings across the USA

Friends, This week in the 2015 Conference Coverage section of the CLL Society website, we have posted an interview with Dr. Stephan Stilgenbauer as he...

Friends, This week in the 2015 Conference Coverage section of the CLL Society w...

CLL CURE Hero•8 years ago

1
2
3