CLL Support Association
9,252 members14,625 posts

My first treatment

I had Chlorambucil a 6 mg/day ,seven days:1-7 March,with Allopurinol a 300mg/day (11days)

My side effekt was milde haedoche,irritation esophagus,stomatitis,opstipation and shell palm of the hand.Not terrible.

Today lab.:urea,creatinin,AST,ALT Gama GT,electroylits is ok.Acidum uricum 360(155-357)

Se 38 ,WBC 43.6 RBC 3.80 (380-5.80) HGB 121 (110-165) HCT 370 PLT 211(150-390) ALC 37.8# Lymf.86.8%

Mon.5.2 GRAN.8.0% -3.6#

My control hematolgist will be 29 March.

Thanks all for attention.

Olga

23 Replies
oldestnewest

Be strong and be well Olga!

Jeff

1 like
Reply

Thank You very much Jeff!

Reply

That's a great start Olga - your WBC has halved already and your other counts are improving too!

Neil

2 likes
Reply

Thank You Neil.Your response is very important for me.

1 like
Reply

Dobar pocetak Olga. Samo tako nastavite.

Lara_B

1 like
Reply

Uzbudjena sam!Probudila se nada.

Hvala draga Lara .Pisaću kasnije.

Olga

Reply

A good start. I'm glad the side effects haven't been terrible, but hope that they lessen with time.

1 like
Reply

Thank You very mutch pkenn.

Reply

Lglle is not to reduce.

I see tard..

Reply

As another who has just got through the first months treatment,I wish you all the best in your fight Olga

Regards

John

Reply

Thank my friends!

Go.

Reply

I see John ,You are so courage man!

Reply

Good to hear that things are going in the right direction, Olga. Wishing you all the best as you continue with the treatment.

best wishes,

Paula

Reply

Thank You Paula,

You are special for me!

Olga

1 like
Reply

Watch out for allopurinol - quite a lot of us have unpleasant side-effects or are allergic to it (maybe 1/3) and I am a bit surprised that it is used so often, TBH - I lost consciousness the last time I took it (just one pill) - if you Google it, you'll see that although it can 'work' for maybe 2/3 of people, 1/3 can have side-effects - sometimes severe. You may well be one of the lucky ones, but be aware and alert to possible reactions. This is a site Llisting patient responses - some good, some not:

askapatient.com/viewrating....

1 like
Reply

Rasburicase is an alternative ...used in high risk patients who can't tolerate allopurinol...

Allopurinol is used to prevent tumor lysis syndrome, TLS in CLL, which can be fatal that is why its use is common...

~chris

2 likes
Reply

Thank You Chris.

Reply

I had pain in kidney..I dont know about risk,my hematologist give me 3oomg/(TLS).It is very important information for next cycle.

Reply

Olga.. remember drink lots of water...you need to flush the dead B cells...

1 like
Reply

Yes,I drink water and other fluid.

Reply

I was use Allopurinol one day before th,with therapy Chlorambucil and 3 days after therapy.Now not more.

Acidum uricum is 36o( ref.155-357)?Which risk now?

I drink fluid ,but I have milde pain in my kidney(one).

What You think Chris?

Reply

Olga,

I don't post much but I just wanted to let you know I am wishing you all the best during your treatment. Stay strong

Best Wishes,

BC

1 like
Reply

Thank You very mutch KK!

Reply