On FLAIR trial. Having stopped Ibrutinib for a week due to side effects of extreme muscle pain, I began again with low dose of 1 pill. After 12 days (fingers and toes crossed) I seem to be OK. Feeling much better. Now we move up to 2 a day. Dr thinks I will not go back to full dosage. General opinion that maybe the high dose was effective, worth the pain... WBC went from 196 to 44 and now to 48.
Anyway the main point of this post is that as a result of the Idealisib trial problems with infections they have immediately added antibiotics and anti fungal medication to the Ibrutinib I am taking. To be taken with the IB as a precaution.