Hi, I find myself here I'm sure like everyone else rather incredulously. I'm a 50 year old male from UK but living in the French Alps, . I was diagnosed 3.5 years ago after my GP treated me for a bout of pneumonia and just sent me for some extra tests. I've never really been ill in my life, always recovered from flu and colds fine and only experienced hospitals and doctors as a result of sporting activities. I've rarely met people with pneumonia but at the same time there were about 5 people in the same village / town with it, all fit healthy people, maybe a particularly horrible strain bit town.
Anyway I'm on watch and wait, just about to go for a body scan. Blood tests yesterday were actually back to same level of 2 years ago after rising slowly but continually and peaking last January. I recently decided to trim down, and cut out the big carbs, potatoes, wheat (bread, pasta), rice. I've never really eaten junk food, just a bit too much of everything else. Definitely feel better
My consultant is allegedly very good but is unable to communicate or it seems empathize, it's not just me, I know both French and poor / non French speakers who have the same problem, he doesn't give away much information. Which it seems to me in watch and wait is massively frustrating, I feel like I'm being treated like a child a bit, with the attitude "I'll tell you when to worry, in the meantime get a grip"
I've asked a couple of times about being tired and is there any link? but he's dismissed me with a wave of the hand.
My blood numbers are I'm sure very low compared to some people but I'd just like to know at what point they become a cause for concern. As I've read in a few posts there is a lot of wild information on the web. And I don't really know when I'm looking at them whether I should be jumping for joy or running to the hills screaming, it's the lack of knowledge that's driving me nuts
My leucocytes (white cells) are at 31.3 giga / l the range on the paper is (4 - 11) last time they were 40 giga / l, they were about 18 when I had pneumonia
Lymphocytes 92% 29,015 / mm3 (range is 1000 - 4800) last time 37,208.
Plaquettes (think platelets) 159,000 mm3 ( range 150,000 - 400,000) last time 170,000.
What happens when they get sub 150, is that heading towards aneamia?
Polynucleaires neutrophiles 6.8% 2,128 /mm3
Polynucleaires eosinophiles 0.5% 156 / mm3 ( 20 - 630) last time 323
Polynucleaires basophiles 0% (< 110) last time 323
What level of these numbers do people get sent for treatment at?
I've got a lot of enlarged ganglions, or lymph nodes but the specialist said they were not a problem. When do lymph nodes become a problem is it the "feel" of them, ie soft and pulpy not hard and uniform? My liver is fine.
Basically I'm sure the consultant is absolutely right, but his style of communicating and confidence building is rubbish. It leaves me suspecting worse due to ignorance.
Obviously I'm not looking for someone to just placate me I want to know warts and all so I can deal with it in my head and my way
Anyway that's my intro, bit rambling sorry but that's how I feel at the moment.