I would appreciate Community opinions on the following case.
Diagnosed with CLL in May 2010, I had 6 cycles of FCR between September 2012 and February 2013.
Since then my Hgb has required supplementing with blood transfusions every 3 weeks (so I have had 40+ transfusions of 2 or 3 units).
Iron overload from the transfusions is being fairly well treated with chelation (Exjade), but there are side effects.
There is not enough evidence from the latest bone marrow biopsy to support an MDS diagnosis.
At 74, I feel well and keep fit (running/weight training).
The hospital has been wonderful with the treatments, and regard this as an unusual (perhaps exceptional) case. The consensus medical opinion seems to be to continue the transfusion/chelation treatment.
Has anyone had experience of this length of bone marrow suppression after FCR? Is there any alternative treatment?