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CLL Support

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All posts for December 2014

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Hi All Just wanted to wish all a Merry Christmas. Had a virus for the last few weeks but it is slowly getting better. I am running a Tombola at work next week...

Hi All Just wanted to wish all a Merry Christmas. Had a virus for the last few w...

Hidden

•9 years ago

4 Replies

FLAIR Trial - ErnieUK Baseline Bloods before FCR

As mentioned in my last post, my final baseline bloods just before starting the FCR treatment (please excuse me the underscore characters here to try to make a...

As mentioned in my last post, my final baseline bloods just before starting the ...

Ernest2

•9 years ago

6 Replies

FLAIR Trial - FCR for me

Apologies first for the slowness of getting my post out here but thankfully the roller-coaster has just slowed down enough for a few words on my progress with...

Apologies first for the slowness of getting my post out here but thankfully the ...

Ernest2

•9 years ago

24 Replies

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Dr. O'Brien on Trial Design, CT scans and the one and only place for FCR.

Friends, Please check out my blog: http://bkoffman.blogspot.com to hear my last interview from ASCO 2014: Dr. O'Brien Discusses Improved Trial Designs, CT...

Friends, Please check out my blog: http://bkoffman.blogspot.com to hear my last...

bkoffman

CLL CURE Hero•9 years ago

11 Replies

Dr. Turtle's presentation at ASH 2014

Phase 1 trial results of jcar014 could someone please translate the second para. that begins "a subset of NHL patients"?

Phase 1 trial results of jcar014 could someone please translate the second para....

jammerjer

•9 years ago

1 Reply

Does Ginger Reduce Chemo-Induced Nausea? What's Your Experience?

One Mythbusters episode found that ginger worked fairly effectively to reduce motion induced nausea: http://mythbustersresults.com/episode43 But can it do the...

One Mythbusters episode found that ginger worked fairly effectively to reduce mo...

AussieNeil

Administrator•9 years ago

3 Replies

Long-Term Data for Zydelig (idelalisib) from ASH2014

Skip down to the section titled Long-Term Data in CLL, Includes information on Study 116/117 and the boxed warning (safety information) for idelalisib:...

Skip down to the section titled Long-Term Data in CLL, Includes information on S...

AussieNeil

Administrator•9 years ago

3 Replies

Itchy bumps

I know this is a subject that has appeared before but it seems to me that no one has ever come up with a specific diagnosis/treatment for the spontaneous bumps...

I know this is a subject that has appeared before but it seems to me that no one...

SusanBo

•9 years ago

5 Replies

Ibrutinib with afib

I was diagnosed with CLL about 3 months ago. Doctor put me on leukeran for about 4 weeks then switched to ibrutinib. White cell count dropped from a high of...

I was diagnosed with CLL about 3 months ago. Doctor put me on leukeran for abou...

purrdog

•9 years ago

5 Replies

Don't forget to check out our pinned posts

Posts that answer commonly asked questions are pinned on this site for ease of access. With the changes to the HealthUnlocked website, pinned posts have...

Posts that answer commonly asked questions are pinned on this site for ease of a...

AussieNeil

Administrator•9 years ago

Be the first to reply

5 weeks into Flair Trial

My husband who has SLL and had been on W & W for just a year, started the Flair Trial at the end of Oct. He was lucky (we hope, after it was called "a wonder...

My husband who has SLL and had been on W & W for just a year, started the Flair ...

annsathome

•9 years ago

6 Replies

Spot the difference: harmless mole or potential skin cancer?

Back to the normal program after my indulgence on Australian birds, here's a valuable article on how to identify suspicious moles with a great deal of...

Back to the normal program after my indulgence on Australian birds, here's a val...

AussieNeil

Administrator•9 years ago

1 Reply

Six extraordinary Australian birds you need to see

Totally non-CLL related, but since I've been accompanying many of my posts with my pictures of Australian birds which many have appreciated, I hope you'll...

Totally non-CLL related, but since I've been accompanying many of my posts with ...

AussieNeil

Administrator•9 years ago

3 Replies

Why Patients Need to Be Heard At Medical Congresses

Hi friends, I have just posted on my blog - http://bkoffman.blogspot.com - the first of a series of monologues on why the patients' voice needs to part of...

Hi friends, I have just posted on my blog - http://bkoffman.blogspot.com - the ...

bkoffman

CLL CURE Hero•9 years ago

2 Replies

WiFi Wound Healing and Sensor Tatoos

Here are two new technological possibilities that show promise in keeping us healthy. Dissolving, infection treating implants Scientists from Tufts...

Here are two new technological possibilities that show promise in keeping us hea...

AussieNeil

Administrator•9 years ago

5 Replies

Cancer: getting to the fat of the issue

The global cancer community convening this week in Melbourne, Australia for the UICC World Cancer Congress, prompted Alessandro Demaio, Australian Medical...

The global cancer community convening this week in Melbourne, Australia for the ...

AussieNeil

Administrator•9 years ago

Be the first to reply

ASCO 2014: Dr. Susan O'Brien Outlines Open Trials of Novel Agents and Equipoise in Trial Design for CLL

This is important stuff on my blog, http://bkoffman.blogspot.com, a strong argument to consider a clinical trial and an even stronger push to make sure it is...

This is important stuff on my blog, http://bkoffman.blogspot.com, a strong argu...

bkoffman

CLL CURE Hero•9 years ago

4 Replies

Non-Germinal Center B-cell Diffuse Large B-cell Lymphoma (DLBCL) may benefit most from Immunochemotherapy.

"Progression-free and overall survival were significantly longer in patients with non-GCB DLBCL who were treated with R-ACVBP compared with R-CHOP. No...

"Progression-free and overall survival were significantly longer in patients wit...

AussieNeil

Administrator•9 years ago

4 Replies

Health Check: does alcohol have medicinal properties?

With Christmas fast approaching, there'll be more opportunity to imbibe in this form of 'Christmas Cheer'. Also, many of us wonder at diagnosis or when...

With Christmas fast approaching, there'll be more opportunity to imbibe in this ...

AussieNeil

Administrator•9 years ago

4 Replies

ASCO 2014: Dr. Susan O'Brien Speculates on Combinations with Ibrutinib to Get a Complete Remission in CLL (chronic lymphocytic leukemia)

Friends, In this audio post on my blog, ( http://bkoffman.blogspot.com ) Dr. O'Brien gives some very informed speculation on what combination therapies with...

Friends, In this audio post on my blog, ( http://bkoffman.blogspot.com ) Dr. O'...

bkoffman

CLL CURE Hero•9 years ago

3 Replies

How to protect your skin while getting enough vitamin D

Vitamin D levels should be of particular interest to CLL patients, given the frequently self reported improvement in energy levels and possibly a reduction in...

Vitamin D levels should be of particular interest to CLL patients, given the fre...

AussieNeil

Administrator•9 years ago

Be the first to reply

“Welcome to the Family” A Practical Guide for Newly Diagnosed CLL Patients and those close to them.

“Welcome to the Family” A Practical Guide for Newly Diagnosed CLL Patients and those close to them Written for CLLSA by Professor Chris Fegan MB,...

“Welcome to the Family” A Practical Guide for Newly Diagnosed CLL Patients an...

HAIRBEAR_UK

Founder Admin•9 years ago

3 Replies

Bone Marrow Exam

Hope the following might help anyone faced with a Bone Marrow Exam for the first time. Just had my first one recently as part of the baseline tests for the...

Hope the following might help anyone faced with a Bone Marrow Exam for the first...

Ernest2

•9 years ago

28 Replies

Edit work around for Apple device users

Thanks to the HU Admin site, I'm very pleased to be able to provide this tip from Starbys on how to edit submissions to HU on an iPad, iPod touch or iPhone:...

Thanks to the HU Admin site, I'm very pleased to be able to provide this tip fro...

AussieNeil

Administrator•9 years ago

1 Reply

Health Check: what you need to know about mucus and phlegm

With winter comes an increased risk of respiratory infections when we begin to wonder what the colour of our mucus is telling us about the severity of our...

With winter comes an increased risk of respiratory infections when we begin to w...

AussieNeil

Administrator•9 years ago

2 Replies

Bloods

Hi All Had a blood test as had cough for about 4/5 weeks Dr decided said it was viral Normal count good and bad 54 I am seeing him tomorrow but was told HB...

Hi All Had a blood test as had cough for about 4/5 weeks Dr decided said it was ...

Hidden

•9 years ago

8 Replies

TG Therapeutics announces Clinical Trial of TGR-1202 in combination with Ibrutinib

TG Therapeutics, Inc. announced today the initiation of a multi-center, Phase I trial to evaluate the safety and efficacy of the combination of TGR-1202 and...

TG Therapeutics, Inc. announced today the initiation of a multi-center, Phase I ...

AussieNeil

Administrator•9 years ago

3 Replies

Irish greetings from a new joiner!

Hi folks, I'm new! A big thanks to you all for this great community which has already given me loads of positivity, information and helps since my diagnosis 3...

Hi folks, I'm new! A big thanks to you all for this great community which has al...

Firefly14

•9 years ago

30 Replies

NICE u turn after Roche drug price negotiations

Excellent news re: Gazyvaro!! http://m.bbc.co.uk/news/uk-wales-30274804 NICE press release added by admin...

Excellent news re: Gazyvaro!! http://m.bbc.co.uk/news/uk-wales-30274804 NICE p...

Spike27

•9 years ago

16 Replies

Kindness and Compassion for Better Health Care

"When healthcare is delivered with kindness and compassion, it has a significantly greater effect than when it is given in a dispassionate fashion that assumes...

"When healthcare is delivered with kindness and compassion, it has a significant...

shazie

•9 years ago

2 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for December 2014

Fundraising

FLAIR Trial - ErnieUK Baseline Bloods before FCR

FLAIR Trial - FCR for me

Dr. O'Brien on Trial Design, CT scans and the one and only place for FCR.

Dr. Turtle's presentation at ASH 2014

Does Ginger Reduce Chemo-Induced Nausea? What's Your Experience?

Long-Term Data for Zydelig (idelalisib) from ASH2014

Itchy bumps

Ibrutinib with afib

Don't forget to check out our pinned posts

5 weeks into Flair Trial

Spot the difference: harmless mole or potential skin cancer?

Six extraordinary Australian birds you need to see

Why Patients Need to Be Heard At Medical Congresses

WiFi Wound Healing and Sensor Tatoos

Cancer: getting to the fat of the issue

ASCO 2014: Dr. Susan O'Brien Outlines Open Trials of Novel Agents and Equipoise in Trial Design for CLL

Non-Germinal Center B-cell Diffuse Large B-cell Lymphoma (DLBCL) may benefit most from Immunochemotherapy.

Health Check: does alcohol have medicinal properties?

ASCO 2014: Dr. Susan O'Brien Speculates on Combinations with Ibrutinib to Get a Complete Remission in CLL (chronic lymphocytic leukemia)

How to protect your skin while getting enough vitamin D

“Welcome to the Family” A Practical Guide for Newly Diagnosed CLL Patients and those close to them.

Bone Marrow Exam

Edit work around for Apple device users

Health Check: what you need to know about mucus and phlegm

Bloods

TG Therapeutics announces Clinical Trial of TGR-1202 in combination with Ibrutinib

Irish greetings from a new joiner!

NICE u turn after Roche drug price negotiations

Kindness and Compassion for Better Health Care

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