My husband who has SLL and had been on W & W for just a year, started the Flair Trial at the end of Oct. He was lucky (we hope, after it was called "a wonder drug "by his consultant) and got the Ibrutinib + Rituximab arm. All started well but after 4 days of Ibrutinib and the first Rituximab he contracted pneumonia and spent 9 days in hospital and had to stop the Ibrutinib. He received fantastic treatment there, and now, 3 weeks later is back on the trial and feeling really well, had his 2nd Rituximab this week and so far has not had any side effects except for the occasional dry mouth. ( good excuse for a beer!! ) We walk every day and he is planning to get back on the golf course next week.
His Neutrophil count went down to 0.3 whilst in hospital so is now injecting himself with Granocyte 34 which has brought it up to 4.1. His consultant wants him to continue this over the Christmas period.
Of course we do still worry about infections with him having a lower immune system but try not too get too paranoid about it. Also difficult with young grandchildren with their runny noses this time of year!!!
We would be very interested to hear experiences from anyone else who is also on the Fair Trial.